Mothers of a child with Down syndrome: A qualitative analysis of the perspectives on non-invasive prenatal testing

Midwifery ◽  
2019 ◽  
Vol 76 ◽  
pp. 118-124
Author(s):  
Chelsea Valentin ◽  
Andy Smidt ◽  
Rebecca Barton ◽  
Nathan J Wilson ◽  
Bethea How
Keyword(s):  
Down Syndrome ◽  
Qualitative Analysis ◽  
Prenatal Testing ◽  
Non Invasive

Non-invasive prenatal testing for Down syndrome

2014 ◽  
Vol 19 (1) ◽  
pp. 9-14 ◽  
Author(s):  
Philip Twiss ◽  
Melissa Hill ◽  
Rebecca Daley ◽  
Lyn S. Chitty
Keyword(s):  
Down Syndrome ◽  
Prenatal Testing ◽  
Non Invasive

scholarly journals Review of: Kaposy C. (2018) Choosing Down Syndrome

2019 ◽  
Vol 2 (2) ◽  
pp. 21-22
Author(s):  
Meghan Chevalier
Keyword(s):  
Down Syndrome ◽  
Prenatal Testing ◽  
Pragmatic Approach ◽  
Social Disability ◽  
Children With Down Syndrome ◽  
Non Invasive ◽  
Qualitative Evidence ◽  
The Social

With the advent of Non-Invasive Prenatal Testing, Chris Kaposy believes that more people should choose to parent children with Down Syndrome. Kaposy advocates for the Social Disability Model and recommends a normative pragmatic approach as standard. He makes use of both quantitative and qualitative evidence to support his position.

Advantages and Disadvantages of Different Implementation Strategies of Non-Invasive Prenatal Testing in Down Syndrome Screening Programmes

2015 ◽  
Vol 18 (5) ◽  
pp. 260-271 ◽  
Author(s):  
Elke Mersy ◽  
Christine E.M. de Die-Smulders ◽  
Audrey B.C. Coumans ◽  
Luc J.M. Smits ◽  
Guido M.W.R. de Wert ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Implementation Strategies ◽  
Prenatal Testing ◽  
Advantages And Disadvantages ◽  
Non Invasive ◽  
Down Syndrome Screening

Budget impact of incorporating non-invasive prenatal testing in prenatal screening for Down syndrome in Turkey

2019 ◽  
Vol 8 (4) ◽  
pp. 402-407
Author(s):  
Zeynep Guldem Okem ◽  
Gokcen Orgul ◽  
Berna Tari Kasnakoglu ◽  
Mehmet Cakar ◽  
Mehmet Sinan Beksac
Keyword(s):  
Down Syndrome ◽  
Prenatal Screening ◽  
Budget Impact ◽  
Prenatal Testing ◽  
Non Invasive

scholarly journals The Influence of Experiential Knowledge and Societal Perceptions on Decision-Making Regarding Non-Invasive Prenatal Testing (NIPT)

2020 ◽  
Author(s):  
Sophie Montgomery ◽  
Zaneta M. Thayer
Keyword(s):  
Decision Making ◽  
Qualitative Analysis ◽  
Genetic Information ◽  
Prenatal Testing ◽  
Phenomenological Approach ◽  
Experiential Knowledge ◽  
Emotional Impact ◽  
Decision Making Process ◽  
Structured Interviews ◽  
Non Invasive

Abstract Non-invasive prenatal testing (NIPT) allows women to access genetic information about their fetuses without the physical risk inherent to prior testing methods. The advent of NIPT technology has yielded concerns among bioethicists regarding the quality and process of informed consent, as the routinization of this technology could degrade the intentionality of women choosing whether to undergo testing. Prior studies evaluating the NIPT decision-making process have focused on the clinical encounter as the primary environment for acquisition of biomedical information and decision formation. While important, this conceptualization fails to consider how additional sources of knowledge, including both embodied and empathetic experiential knowledge, shape perceptions of risk and the societal use of NIPT. In order to address this issue, qualitative, semi-structured interviews with 25 women who had been offered NIPT were performed. Women were categorized by NIPT use/non-use, as well as whether their described decision-making process was routinized. Qualitative analysis of the data using a phenomenological approach was used to explore themes in the data, develop a framework of NIPT decision-making, and compare the perceptions of women with differential decision-making processes and outcomes. A framework for decision-making regarding NIPT was developed based on three emergent factors: perceptions of the societal use of NIPT, expected emotional impact of genetic information, and perceived utility of genetic information. Qualitative analysis revealed that perceptions of widespread use of NIPT, pervasive societal narratives of NIPT use as progressive and “forward-thinking,” and a perception of information as anxiety-relieving contributed to routinized uptake of NIPT. In contrast, women who displayed a lack of routinization expressed fewer stereotypes regarding the audience for NIPT and relied on communication with their social networks in-person and online to consider how they might use the information provided by NIPT. The findings of this study reveal the societal narratives and perceptions that shape differential decision-making regarding NIPT. Understanding and addressing these perceptions that influence NIPT decision-making, especially routinized uptake of NIPT, is important as the use and scope of this technology increases.

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