P4.64 Monitoring care practices for Duchenne Muscular Dystrophy – the CARE-NMD project

2011 ◽  
Vol 21 (9-10) ◽  
pp. 723
Author(s):  
K. Gramsch ◽  
J. Vry ◽  
J. Rahbek ◽  
B. Steffensen ◽  
K. Bushby ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Care Practices

scholarly journals European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences

2016 ◽  
Vol 3 (4) ◽  
pp. 517-527 ◽  
Author(s):  
Julia Vry ◽  
Kathrin Gramsch ◽  
Sunil Rodger ◽  
Rachel Thompson ◽  
Birgit F. Steffensen ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Age Dependent ◽  
Care Practices

scholarly journals A comparative study of care practices for young boys with Duchenne muscular dystrophy between Japan and European countries: Implications of early diagnosis

2017 ◽  
Vol 27 (10) ◽  
pp. 894-904 ◽  
Author(s):  
Fumi Takeuchi ◽  
Hirofumi Komaki ◽  
Zentaro Yamagata ◽  
Kazushi Maruo ◽  
Sunil Rodger ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Early Diagnosis ◽  
Comparative Study ◽  
European Countries ◽  
Care Practices

Growth and psychomotor development of patients with Duchenne Muscular Dystrophy

2012 ◽  
Vol 43 (02) ◽  
Author(s):  
E Sarrazin ◽  
M von der Hagen ◽  
U Schara ◽  
K von Au ◽  
A Kaindl
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Psychomotor Development

Current care practice in Duchenne muscular dystrophy in Europe - results of the CARE-NMD cross-sectional survey

2013 ◽  
Vol 44 (02) ◽  
Author(s):  
J Vry ◽  
K Gramsch ◽  
K Bushby ◽  
H Lochmüller ◽  
S Rodger ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Care Practice ◽  
Cross Sectional Survey ◽  
Cross Sectional
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