Parent and child outcomes of JumpStart™, an education and training program for parents of children with autism spectrum disorder

2018 ◽  
Vol 56 ◽  
pp. 21-35 ◽  
Author(s):  
Nicole L. Matthews ◽  
Beatriz C. Orr ◽  
Brittani Harris ◽  
Rachel McIntosh ◽  
Daniel Openden ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Training Program ◽  
Child Outcomes ◽  
Children With Autism ◽  
Education And Training ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
And Training

Children with Autism and Congregations: Leader’s Assessments of Knowledge, Programming, and Potentialities

2019 ◽  
Vol 46 (4) ◽  
pp. 39-66
Author(s):  
Jeffrey Dale Thompson
Keyword(s):  
Autism Spectrum Disorder ◽  
Mixed Methods ◽  
Children With Autism ◽  
Education And Training ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Mixed Methods Approach ◽  
Congregational Leaders ◽  
And Training ◽  
Case Basis

The purpose of this study was to explore congregational responses to children with Autism Spectrum Disorder (ASD). The limited research around ASD and congregations reveals a lack of engagement with, and integration of, persons with ASD. In the current study, a mixed methods approach focused on congregational leaders’ knowledge, perceptions, and interests regarding ASD and related education and programming.  A quantitative element assessed leaders of congregations by means of a survey (N=121), while a qualitative element offered participants an opportunity to comment on the survey (n=51) and participate in an interview (n=12). An analysis of the data suggests that leaders’ knowledge of ASD was higher than anticipated but that formal programming was lacking in smaller churches. Responses in smaller churches were less formal, occurred on a case-by-case basis, and were led by professionals and parents native to those churches. Leaders reported an interest in more education and training regarding .                

Revisiting an RCT study of a parent education program for Latinx parents in the United States: Are treatment effects maintained over time?

Autism ◽  
2021 ◽  
pp. 136236132110331
Author(s):  
Weiwen Zeng ◽  
Sandy Magaña ◽  
Kristina Lopez ◽  
Yue Xu ◽  
J Marisol Marroquín
Keyword(s):  
Autism Spectrum Disorder ◽  
Parent Education ◽  
Education Program ◽  
Child Outcomes ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Evidence Based ◽  
Communication Impairments ◽  
Parent Education Program

This study examined maintenance of treatment effects in a culturally tailored parent education program for Latinx families of children with autism spectrum disorder using a behavior maintenance framework. In a two-site randomized waitlist-control study, we compared differences in parent and child outcomes across three timepoints using linear mixed models to determine whether outcomes observed at 4 months after baseline (Time 2) were maintained for an additional 4-month period (Time 3). Parent outcomes included family empowerment, self-reported confidence in, and frequency of using evidence-based strategies. Child outcomes included parent-reported challenging behaviors, social communication impairments, and the number of services received. Participants were 109 Latina mothers (intervention = 54, control = 55) of children with autism spectrum disorder. Results showed that at Time 3, mothers in the intervention groups reported significantly greater confidence in and frequency of using evidence-based strategies, and that their child received significantly more services. Site-specific treatment differences were found in outcomes such as parent-reported empowerment and child social communication impairments. Findings suggest that the intervention for Latinx parents of children with autism spectrum disorder was efficacious and could be maintained, and that site-specific policy and service differences may need to be examined in future research to inform dissemination and implementation. Lay abstract Background: We conducted a follow-up investigation of a two-site randomized controlled trial in the United States. We examined whether the treatment effects in a culturally tailored parent education program for Latinx families of children with autism spectrum disorder were maintained over time. Methods: Using linear mixed models, we compared differences in parent and child outcomes across three timepoints: baseline, 4 months after baseline (Time 2), and 8 months after baseline (T3). Parent outcomes included family empowerment, self-reported confidence in, and frequency of using evidence-based strategies. Child outcomes included parent-reported challenging behaviors, social communication impairments, and the number of services received. Participants were 109 Latina mothers (intervention = 54, control = 55) of children with autism spectrum disorder. Results: After intervention at both Time 2 and Time 3 in both sites, mothers in the intervention groups reported significantly greater confidence in and frequency of using evidence-based strategies, and that their child received significantly more services. We also found that there were treatment differences across the two study sites in several outcomes. Implications: The intervention for Latinx parents of children with autism spectrum disorder was efficacious and could be maintained, and that site-specific policy and service differences may need to be examined in future research to inform dissemination and implementation.

A comparative feasibility study of two parent education and training programmes for autism spectrum disorder in a low-resource South African setting

Autism ◽  
2020 ◽  
Vol 24 (8) ◽  
pp. 2269-2284
Author(s):  
John-Joe Dawson-Squibb ◽  
Petrus J de Vries
Keyword(s):  
Autism Spectrum Disorder ◽  
Parent Education ◽  
Education And Training ◽  
Evidence Base ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Low Resource ◽  
Multi Stakeholder ◽  
Training Programmes ◽  
And Training

Despite the clear need for post-diagnostic parent/carer education and training in autism spectrum disorder, the evidence base is small, particularly in low-resource settings. Furthermore, few studies have examined the feasibility of intervention implementation. Here, we performed a comparative feasibility study of two Parent Education and Training programmes in a low-resource South African setting. EarlyBird/EarlyBird Plus, a UK-developed programme was compared to Autism Cares, a locally developed programme. The aims were to (1) examine acceptability, adaptation and perform limited efficacy testing and (2) use a multi-stakeholder panel and new autism spectrum disorder Parent Education and Training evaluation framework checklist to compare the programmes. A mixed-method, quasi-experimental design collected pre, post and 3-month follow-up data. Measures included standardised and custom-designed quantitative and qualitative data. In total, 18 parents participated in the EarlyBird/EarlyBird Plus programmes and 11 in Autism Cares. Strong parental acceptability for both programmes was found and adaptation suggestions were provided. Limited efficacy testing showed positive changes for parental stress, knowledge of autism spectrum disorder and child changes. The multi-stakeholder panel rated EarlyBird/EarlyBird Plus superior for next-step research based on implementation feasibility. Our findings contribute to the limited evidence base for autism spectrum disorder Parent Education and Training in low-resource environments and underline the need for evidence base of programmes to include not only intervention outcomes but also procedural and implementation outcomes. Lay Abstract After a diagnosis of autism, it is an important first step to give families information about autism and skills to help them support their child. These interventions are called Parent Education and Training programmes. Little is known about these programmes or if they can make a difference to families, particularly in countries with few autism resources. In this study, we compared two Parent Education and Training programmes in South Africa. EarlyBird/EarlyBird Plus was developed in the United Kingdom, and Autism Cares in South Africa. We wanted to know if parents found the programmes useful, and if any changes were required. We collected information from parents through questionnaires and interviews before and after the group. We also asked a panel of experts (including parents) to compare the programmes. In total, 18 parents attended the EarlyBird/EarlyBird Plus group and 11 attended the Autism Cares group. Parents found both programmes helpful and made suggestions for improvements. Parents showed less stress, more knowledge of autism, and saw improvements in their children. The expert panel rated EarlyBird/EarlyBird Plus as better because it was more supportive of parents and was seen as easier to run in the country. Our study showed that Parent Education and Training programmes are important, but that researchers must study not only the outcomes but also the implementation needs of these programmes.

scholarly journals Long-Term Treatment Outcomes of PEERS® for Preschoolers: A Parent-Mediated Social Skills Training Program for Children with Autism Spectrum Disorder

2021 ◽  
Author(s):  
Isita Tripathi ◽  
Jasper A. Estabillo ◽  
Christine T. Moody ◽  
Elizabeth A. Laugeson
Keyword(s):  
Autism Spectrum Disorder ◽  
Social Skills ◽  
Training Program ◽  
Social Skills Training ◽  
Children With Autism ◽  
Skills Training ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Social Challenges

AbstractAlthough parent-assisted social skills interventions may reduce early social challenges in preschool-aged children with autism spectrum disorder (ASD), limited research has explored whether intervention gains maintain several years after treatment. This study examined the durability of PEERS® for Preschoolers, a parent-mediated social skills training program for preschool-aged children with ASD and other social challenges. Twenty-nine parents reported on child and family outcomes 1–5 years following treatment. Results demonstrated maintenance of treatment gains on measures of ASD-related social impairments including social communication, social responsiveness, social motivation, and peer engagement. Post-treatment improvements in problem behaviors and parenting stress were not maintained at long-term follow-up. Implications of these results are discussed.

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