scholarly journals Parents’ experiences from participating in an infant sibling study of autism spectrum disorder

2020 ◽  
Vol 69 ◽  
pp. 101454 ◽  
Author(s):  
Sheila Achermann ◽  
Sven Bölte ◽  
Terje Falck-Ytter
Children ◽  
2021 ◽  
Vol 8 (9) ◽  
pp. 763
Author(s):  
Sing Yee Ong ◽  
Samsilah Roslan ◽  
Nor Aniza Ahmad ◽  
Ahmad Fauzi Mohd Ayub ◽  
Lee Ping Chen ◽  
...  

Background: Children’s Friendship Training (CFT) is a parent-assisted intervention programme that introduces children to basic sets of social rules to help them understand social contexts with specific guidance from their parents. It has been reported in several empirical studies that the friendship skills of children with autism spectrum disorder were enhanced after participating in CFT. However, previous studies only focused on the effectiveness of the training without exploring it from the parent’s perspective. As such, the objective of this study is to highlight the parents’ experience in assisting in the implementation of CFT. Purpose: To explore the parents’ experiences with autism spectrum disorder (ASD) in CFT and examine the experiences using the CFT as a theoretical framework. Methodology: In this study, eight parents and their school-aged children with ASD participated in 12 CFT sessions. Upon completing the CFT, the parents participated in a focus group interview. The interview session was video recorded and transcribed with the parents’ consent. Thematic analysis was employed in analysing the collected data as outlined in six different phases. Results: The generated data revealed the similarities and differences in parents’ experiences in the CFT. The current study has identified four main themes: (1) fear and resistance; (2) awareness, learning, and adjustment; (3) change is hard; and (4) identifying support. Conclusions: The findings highlighted the processes that these parents experienced and encountered while attending the CFT programme, it is important to consider these processes based on how they might impact the effectiveness of the programme. The programme’s effectiveness is reliant on the ability to work closely with parents to understand their challenges and explore the type of support they need. This study has analysed the crucial factors that provide an overview of parents’ encounters in their participation in CFT.


2022 ◽  
Vol 12 (5) ◽  
pp. 55
Author(s):  
Constance McIntosh ◽  
Jayanthi Kandiah ◽  
Lesie J. Remache

This qualitative study used the nursing grounding theory to describe parents' experiences working with school nurses to elevate their child’s healthcare. Seventeen interviews were conducted with parents/primary caregivers (P/PCG) who had children with autism spectrum disorder (ASD; ages six to ten). Through centering parents’ voices, the investigators were able to identify gaps in P/CG understanding of their school nurses’ roles through thematic analyses. We found that P/CG lacked the understanding of school nurses' roles and how school nurses could aid their child’s healthcare. The oversight of school nurses contributed to miscommunication, which constrained the relationship between the parent and the school nurse. These findings provide insight into the importance of enhancing communication between the parents of children with ASD and school nurses and was the catalyst to why this article was written. When healthcare professionals provide clarity and expertise to parents as to their respective roles, incorporate perspective-taking, and tailor their approaches based on their concerns, it may enhance parents’ experiences with their school nurses. In addition, school nurses should consider various routes of engaging parents so they have a deeper understanding of their responsibilities in enhancing the healthcare of children with ASD.


2019 ◽  
Vol 50 (7) ◽  
pp. 2527-2539 ◽  
Author(s):  
Sarah Raza ◽  
Lori-Ann R. Sacrey ◽  
Lonnie Zwaigenbaum ◽  
Susan Bryson ◽  
Jessica Brian ◽  
...  

2019 ◽  
Vol 62 ◽  
pp. 18-25 ◽  
Author(s):  
Matthew J.F. Eggleston ◽  
Hiran Thabrew ◽  
Christopher M.A. Frampton ◽  
Katherine H.F. Eggleston ◽  
Shannon C. Hennig

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