scholarly journals Improving breast cancer survivors’ knowledge using a patient-centered intervention

Surgery ◽  
2015 ◽  
Vol 158 (3) ◽  
pp. 669-675 ◽  
Author(s):  
Jesus G. Ulloa ◽  
Marian Hemmelgarn ◽  
Lori Viveros ◽  
Patience Odele ◽  
Nancy R. Feldman ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Patient Centered

scholarly journals Understanding Supportive Care Factors Among African American Breast Cancer Survivors

2016 ◽  
Vol 29 (1) ◽  
pp. 21-29 ◽  
Author(s):  
Claudia M. Davis ◽  
Adeline M. Nyamathi ◽  
Alham Abuatiq ◽  
Geraldine C. Fike ◽  
Anna M. Wilson
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
African American ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Health Care Team ◽  
Care Needs ◽  
Patient Centered ◽  
Qualitative Descriptive

Introduction: Comprehensive breast cancer care includes not only diagnosis, staging, and treatment of cancer but also assessment and management of the physical, psychological, social, and informational needs, collectively known as supportive care. Several studies have documented the importance of addressing supportive care factors among breast cancer survivors. However, there appears to be a paucity of research concerning African American breast cancer survivors (AABCS). Therefore, the purpose of this study was to describe and understand the patient-centered supportive care factors among self-identified AABCS. Method: Using a qualitative descriptive approach, an open-ended question explored supportive care factors that were used by N = 155 AABCS. Results: Four supportive care factors were identified: faith, supportive structures, optimism, and access to information. Discussion: An understanding of these factors might facilitate discussion between survivors and the health care team. The resultant effect could also inform and promote the delivery of culturally specific health care to address the supportive care needs among these women.

Analysis of Healthcare Team Communication Needs Among Younger vs Older Breast Cancer Survivors: A Web-based Survey (Preprint)

2021 ◽  
Author(s):  
Deborah Vollmer Dahlke ◽  
Aya Yoshikawa ◽  
Molly McAdams ◽  
Sharyn Malatok ◽  
Elaine D. Gonzales
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Older Women ◽  
Breast Cancer Survivors ◽  
Healthcare Providers ◽  
Post Treatment ◽  
Healthcare Team ◽  
Patient Centered ◽  
Younger Women

BACKGROUND Prior studies indicate that the age of onset of breast cancer is an important element in considering communication between patients and the healthcare team. Younger women ages 45 and under diagnosed with breast cancer are often at a higher risk of being more vulnerable to psychosocial issues as compared to older women. While doctor-patient communication is the primary way women with breast cancer learn about important elements of their cancer therapy and post-treatment survivorship, few studies have examined age differences in patient perceptions of treatment-related discussions and of communications during transition with their healthcare team. OBJECTIVE The aims of this survey were: 1) to better understand breast cancer survivors’ perspectives of healthcare providers communication during treatment and in transition to post-treatment, and 2) to determine the differences between younger women with breast cancer (<45 years of age) as compared to older women (>46 years of age and older). It was hypothesized that 1) breast cancer survivors’ psychosocial and finance-related communications with healthcare providers may lack effectiveness; 2) younger women experience greater needs in physician and healthcare providers’ patient-centered communication, especially around psychosocial care and transition to post-treatment; and 3) younger breast cancer patients (<45 years of age) need more information on survivorship and follow-up care. METHODS An online survey was conducted with 143 women in Central Texas with 35.% (n=50) age 45 or under and 65% (n=93) ages 46 and above. The participants were invited via email links from a number of Texas-based cancer and breast cancer advocacy groups. The Mann–Whitney U test was performed to assess differences in participants’ perceptions about communication with healthcare providers by age group: young (<45 years of age) and old (≥ 46 years of age). RESULTS Participants were asked to score question areas such as concerns during treatment and how much discussion occurred between patients and providers. Statistically significant results were in regard to rating healthcare team and patient discussions about the transition from treatment to post-treatment using a score of 0 as “no discussion” and 100 as “in-depth discussion.” For the questions about management of post treatment care the group mean score was 56.26; the younger group mean was 43.96; the older group mean was 61.96 (P=.022). For the question about the timing of follow-up appointments, the overall group mean was 64.29; the younger group mean was 54.44; the older group mean was 68.88 (P=.049). For the overall group, scores related to psychosocial and financial support discussions with healthcare providers during the transition to post treatment care were low, with a rollup average of only 30.02 out of 100, suggesting that this is an important area for improving patient-centered communications. CONCLUSIONS For all patients, transition from treatment to post-treatment require greater healthcare team engagement and communications. It appears that younger patients age <45 have needs for more in-depth and personalized messaging to better understand their post-treatment care requirements.

scholarly journals Patient-centered outcome evaluation of the Rural Breast Cancer Survivors Intervention

2015 ◽  
Vol 24 (4) ◽  
pp. 1841-1848 ◽  
Author(s):  
Yu-Mei Schoenberger ◽  
Rachel Benz ◽  
Patrick McNees ◽  
Karen Meneses
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Outcome Evaluation ◽  
Patient Centered

Patient-centered care and breast cancer survivors’ satisfaction with information

2005 ◽  
Vol 57 (3) ◽  
pp. 342-349 ◽  
Author(s):  
Julie B. Mallinger ◽  
Jennifer J. Griggs ◽  
Cleveland G. Shields
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Centered Care

Patient-centered medical homes may improve breast cancer surveillance among survivors.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 6029-6029
Author(s):  
Stephanie B. Wheeler ◽  
Racquel Elizabeth Kohler ◽  
Ravi K. Goyal ◽  
Katherine Elizabeth Reeder-Hayes ◽  
Kristen Hassmiller Lich ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Proportional Hazards ◽  
Cox Proportional Hazards ◽  
Cancer Surveillance ◽  
Patient Centered ◽  
Patient Centered Medical Homes ◽  
Medical Homes ◽  
Interaction Terms

6029 Background: Community Care of North Carolina (CCNC) initiated a medical home (MH) program in the early 1990s focused on improving care in Medicaid-insured populations. CCNC has been successful in improving asthma, diabetes, and cardiovascular disease outcomes, but has not been examined in the context of cancer care. We sought to determine whether CCNC enrollment was associated with improved cancer surveillance among breast cancer survivors. Methods: Using state cancer registry records linked to Medicaid claims, we identified women ages 18-64 diagnosed with stage 0, I, or II breast cancer from 2003-2007. We included only cases insured by Medicaid for at least 12 of 15 months following the index cancer diagnosis. Reflecting ASCO guidelines for breast cancer surveillance for survivors (2006), we defined outcomes as time to first surveillance mammogram post-diagnosis and overall receipt of mammogram by 15-months post-diagnosis. Our primary independent variable was enrollment in CCNC, categorized as never enrolled, enrolled up to 6 months, and enrolled 7 months or more. We used multivariate Cox proportional hazards stratified by receipt of radiation therapy (RT) and logistic regressions. Results: 840 women were included in our sample. Approximately half were enrolled in CCNC for at least some time during the study period, 38% for more than 7 months post-diagnosis. Among women who received RT, being in a MH for at least 7 months corresponded to earlier follow-up mammogram (Hazard Ratio: 1.34; p=0.028), controlling for all other factors. Enrollment in a MH for at least 7 months post-diagnosis also was associated with overall receipt of mammogram by 15 months (p<0.01). Interaction terms indicated that women enrolled in MHs and living in a rural area had a statistically significant higher likelihood of receiving mammography. Conclusions: Results suggest that MH enrollment is associated with improved cancer surveillance among breast cancer survivors insured by Medicaid. Given the growing population of cancer survivors and increased emphasis on MHs in the Affordable Care Act, more research is needed to explore how patient-centered medical homes can be enhanced to improve the transition from cancer patient to cancer survivor.

scholarly journals Study design and protocol for My Guide : An e-health intervention to improve patient-centered outcomes among Hispanic breast cancer survivors

2018 ◽  
Vol 65 ◽  
pp. 61-68 ◽  
Author(s):  
Betina R. Yanez ◽  
Diana Buitrago ◽  
Joanna Buscemi ◽  
Francisco Iacobelli ◽  
Rachel F. Adler ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Study Design ◽  
Breast Cancer Survivors ◽  
Health Intervention ◽  
Patient Centered ◽  
Improve Patient

Elucidating the endocrine therapy experience of South Carolina breast cancer survivors.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 186-186
Author(s):  
Julie Summey Bedi ◽  
Elizabeth Charron ◽  
Regina A. Franco ◽  
Matt Olinger ◽  
Lori Dickes ◽  
...  
Keyword(s):  
Breast Cancer ◽  
South Carolina ◽  
Cancer Survivors ◽  
Endocrine Therapy ◽  
Breast Cancer Survivors ◽  
Cost Benefit Analysis ◽  
Continuation Methods ◽  
Multidisciplinary Teams ◽  
Patient Centered ◽  
Nurse Navigator

186 Background: Literature consistently shows high discontinuation and non-adherence rates for patients taking endocrine therapy (ET) for breast cancer treatment. The aim of this study is to understand from the breast cancer survivor perspective which modifiable aspects have the greatest impact on the likelihood of ET continuation. Methods: Twenty-two hormone receptor-positive breast cancer survivors under age 64 who had been prescribed ET since 2000 were recruited for participation in focus groups conducted in four South Carolina locations. Qualitative data analysis was completed by a three-member team using an inductive narrative approach. Themes were examined by participant decision to continue or discontinue ET. Results: Participants’ conversations centered around a quality of life cost-benefit analysis that they felt was unique to the individual and could not be generalized by providers. Main themes included the significance of the patient/provider relationship, the desire for a more holistic approach to care, and the need for affirmation in the decision to take ET (i.e. through breast cancer social network, family, faith, research). There was clear support for the utility of multidisciplinary cancer care teams. The roles of nurse navigator and rural pharmacist were specifically highlighted. Participants expressed concerns regarding ET’s damage to their bodies, and participants discussed the dilemma of not having enough time to spend caring for self. Conclusions: The few studies that have addressed currently used interventions to improve adherence showed little to no improvement over usual care. It is imperative that research be conducted that employs a patient-centered perspective. Knowledge gained through further study exploring patient concerns, multidisciplinary teams, and holistic care are needed. There is also a need for novel patient-centered interventions in research to improve compliance and enhance the ET experience for breast cancer survivors.

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