Family-Centered Care of the Critically Ill Neurologic Patient

1990 ◽  
Vol 2 (1) ◽  
pp. 41-50 ◽  
Author(s):  
Luzia Pimentel Bernstein
1970 ◽  
Vol 5 (2) ◽  
Author(s):  
Sri Hendrawati ◽  
Sari Fatimah ◽  
Siti Yuyun Rahayu Fitri ◽  
Ikeu Nurhidayah

Sistem perawatan bayi di NICU memberikan dampak negatif bagi bayi dan orang tua. Upaya yang dapat dikembangkan untuk meminimalkan dampak tersebut yaitu dengan mengaplikasikan family centered care (FCC). Langkah pertama upaya tersebut adalah mengidentifikasi kebutuhan orang tua. Dalam penelitian sebelumnya, kebutuhan orang tua sangat bervariasi. Penelitian bertujuan mengidentifikasi kebutuhan FCC dalam perawatan bayi sakit kritis di NICU. Metode penelitian menggunakan mixed method dengan strategi eksplanatoris sekuensial. Penelitian kuantitatif dilakukan terhadap 45 responden dan menggunakan kuesioner NICU Family Need Inventory. Analisis data dilakukan dengan mean. Penelitian kualitatif dilakukan terhadap 7 partisipan dengan menggunakan pedoman wawancara. Analisis data menerapkan teknik content analysis. Penelitian dilaksanakan di NICU Rumah Sakit Pemerintah Wilayah Bandung Raya. Orang tua memiliki urutan prioritas kebutuhan terhadap kepastian (M = 3,90), informasi (M = 3,82), kedekatan (M = 3,76), dukungan (M = 3,49), dan kenyamanan (M = 3,37). Pada penelitian kualitatif didapatkan, orang tua lebih membutuhkan kepastian terkait jaminan bayinya mendapatkan perawatan terbaik; kebutuhan terhadap informasi jujur, jelas, dan rutin mengenai kondisi, perkembangan, dan tindakan yang dilakukan terhadap bayi; dan kebutuhan terhadap kedekatan untuk selalu dekat dan melakukan kontak dengan bayi. Kebutuhan orang tua lebih berfokus pada kesejahteraan bayi. Dalam melakukan asuhan keperawatan, selain meningkatkan pelayanan terhadap bayi, perawat harus memerhatikan kebutuhan orang tua terkait jaminan kepastian bayinya mendapatkan perawatan terbaik, penyampaian informasi dengan komunikasi terbuka, dan menjalin kontak dengan bayi. Dengan mengidentifikasi kebutuhan orang tua, dapat menuntun perawat mengintegrasikan kebutuhan orang tua kedalam FCC sehingga orang tua dapat memenuhi kebutuhannya, mendapatkan kepuasan, dan meningkatkan kualitas hidup bayi.Kata kunci: Bayi sakit kritis, kebutuhan orang tua, perawatan berpusat pada keluarga. Study of Family Centered Care Needs in Critically Ill Infants Care in the Neonatal Intensive Care UnitAbstractInfants hospitalization in the NICU adversely affect for infants and parents. Efforts can be developed to minimize this impact is by applying family centered care (FCC). The first step is identify needs of parents. In previous study examined the differences needs of parents. This study aimed to identify the FCC needs in critically ill infants care in the NICU. The research method was mixed method design with sequential explanatory strategy. The samples in quantitative research were 45 respondents and using questionnaires NICU Family Need Inventory. Data analysis was done by mean. Qualitative research using 7 participants and using interview guidelines. Data analysis used analysis content technique. This research has been carried out in the NICU Government Hospital of Bandung Raya. The quantitative result indicated that parents with critically ill infants in the NICU need assurance most (M = 3.90), followed by information (M = 3.82), proximity (M = 3.76), support (M = 3.49), and comfort (M = 3.37). The main themes from qualitative analysis demonstrated needs of parents in assurance associated with assured the best care possible is being given to infants; information is honest, clear, and routine regarding condition, prognosis, and procedures that performed to infants; and proximity to always close and make contact with the infants. Needs of parents are focused on the wellbeing of their infants. In doing nursing care, beside improving care to the infants, the nurses should pay attention to needs of parents related the assurance their infants get the best care, open communication, and close contact with their infants. By identifying the needs of parents in the NICU, it can allow nurses to integrate the needs of parents into FCC so that parents can meet these needs, get satisfaction, and can improve the quality of life infants.Keywords: Critically ill infants, family centered care, needs of parents.


Author(s):  
Sri Hendrawati ◽  
Fanny Adistie ◽  
Nenden Nur Asriyani Maryam

Infants’ hospitalization in the neonatal intensive care unit (NICU) adversely affect infants and parents. Many activities have been developed to minimize the negative impact of infants’ hospitalization, one of them is applying the family centered care method. The first step of the method is to identify parent’ needs. This literature review is aimed to identify the needs of parents with critically ill infants in the neonatal intensive care unit. Articles were collected from several databases including Medline, CINAHL, EBSCOhost, Google Scholar, PubMed, and Proquest. The keywords were critically ill infants, family centered care, the needs of parents, and neonatal intensive care unit, qualitative, and quantitative studies. The articles reviewed were only articles with full text, written in English, and published during period 2004 to 2017. The study was criticized by the author using the Critical Appraisal Tool from JBI (Joanna Briggs Institute). 10 articles that related specifically to parental needs were discovered. Needs of parents with critically ill infants, including the needs to (1) have a positive acceptance and caring attitude of nurses towards infant and parents; (2) get an accurate information, effective communication, and parents’ involvement in decision making regarding to the condition of the infant; (3) have confident and believe that infant get the best care; (4) have an adequate contact with infant; (5) have opportunity in caring for the infant with the guidance and supervision of nurses; and (6) obtain comfortable neonatal intensive care unit environment. Each parent has a different priority of their needs. This needs identification would help nurses in integrating parents' need for the family centered care approach.  As a result, parents would meet their needs, feel satisfied, and improved the infants’ quality of life.Keywords: Neonatal Intensive Care Unit, Parental Needs


2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.


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