Recruitment and Retention of Adolescent Participants in HIV Research: Findings From the REACH (Reaching for Excellence in Adolescent Care and Health) Project

This paper is written in the context of researching children generally, and in the context of researching vulnerable children, namely children who are HIV +. Research carries with it various notions of power and ethics, often manifested in terms of a researcher’s positionality (ie: Insider/Outsider), the intended use of the research findings and accessing the field of enquiry. In the context of the research experiences being reported in this paper, researcher positionality was of only limited consequence. However, the intended use of the research’s output was crucial to gaining access to the field (namely children who are HIV +), since paramount to ‘gate keepers’ (namely state officials and partners) were such issues as safeguarding children and the protection of their right to privacy and confidentiality.

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Barriers and opportunities for enhancing patient recruitment and retention in clinical research: findings from an interview study in an NHS academic health science centre

Health Research Policy and Systems ◽

10.1186/1478-4505-13-8 ◽

2015 ◽

Vol 13 (1) ◽

Cited By ~ 31

Author(s):

Mary Adams ◽

Louise Caffrey ◽

Christopher McKevitt

Keyword(s):

Clinical Research ◽

Interview Study ◽

Health Science ◽

Patient Recruitment ◽

Academic Health ◽

Recruitment And Retention ◽

Science Centre ◽

Academic Health Science Centre ◽

Research Findings ◽

Barriers And Opportunities

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HIV and me: The perceptions of children aged 10–12 living with HIV, and their expectations for adulthood

Koers - Bulletin for Christian Scholarship ◽

10.19108/koers.85.1.2467 ◽

2020 ◽

Vol 85 (1) ◽

Author(s):

Hettie van der Merwe ◽

Alva van der Merwe

Keyword(s):

Key Words ◽

Adult Life ◽

Well Being ◽

Hiv Status ◽

Physical Pain ◽

Hiv Research ◽

Research Findings ◽

Psychosocial Challenges ◽

Living With Hiv ◽

Physical Challenges

Abstract This article explores the understanding that children living with HIV have of their condition, and the physical and psychosocial challenges they face in pursuit of their ideals for adulthood. Analysis of the interview data, preceded by drawing-and-telling, confirmed literature findings on the importance of communication for complete disclosure and the need for repetitive discussions about HIV-related burdens to supplement medicine and treatment in pursuit of holistic well-being for children living with HIV. Research findings revealed children’s limited cognition of their HIV condition and their challenges with physical pain (attributable to their medicines and treatment) and psychosocial pain (stemming from family fragmentation and stigma). The children exhibited an intense desire for respect for their existence and for the realisation of their right to participate actively in communication regarding their HIV status. Their ideals for adult life pertained to being of benefit to others. The findings contribute to the discourse on effecting holistic wellbeing for children living with HIV. Key words: complete disclosure, draw-and-tell technique, family fragmentation, living with HIV, physical challenges, psychosocial challenges, stigma VIGS en ek: Die beskouinge van kinders in die ouderdomsgroep 10–12 wat met VIGS lewe, en hul verwagtinge vir volwassenheid Opsomming Hierdie artikel ondersoek die begrip wat kinders wat met VIGS lewe van hul toestand het, asook hul fisiese en psigososiale uitdagings in die nastreef van hul ideale vir volwassenheid. ’n Analise van die onderhouddata, voorafgegaan deur teken-en-vertel, bevestig literatuurbevindings oor die belangrikheid van kommunikasie vir volledige bekendmaking. Hierdie bekendmaking moet gevolg word deur herhaalde besprekings van VIGS-verwante struikelblokke om medikasie en behandeling te rugsteun in die strewe na holistiese welstand vir kinders wat met VIGS lewe. Navorsingsbevindinge het kinders se beperkte kennis van hul VIGS-toestand belig, asook hul uitdagings met fisiese pyn (vanweë medikasie en behandeling) en psigososiale pyn (vanweë gesinsfragmentasie en stigma). Kinders het ’n intense behoefte aan respek vir hul menswees, en aan die reg om aktief deel te neem aan kommunikasie oor hul VIGS-status. Hul ideale vir die volwasse lewe is daarop gemik om diensbaar te wees vir hul medemens. Die bevindinge dra by tot diskoers oor die holistiese welstand van kinders wat met VIGS lewe. Kernbegrippe: fisiese uitdagings, gesinsfragmentasie, lewe met VIGS, psigososiale uitdagings, stigma, teken-en-vertel tegniek, volledige bekendmaking

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Systematic Review: Evidence of the Value of Continuing Professional Development to Enhance Recruitment and Retention of Occupational Therapists in Mental Health

British Journal of Occupational Therapy ◽

10.1177/030802260206500504 ◽

2002 ◽

Vol 65 (5) ◽

pp. 207-215 ◽

Cited By ~ 17

Author(s):

Elaine Hunter ◽

Margaret Nicol

Keyword(s):

Mental Health ◽

Professional Development ◽

Continuing Professional Development ◽

Occupational Therapists ◽

Recruitment And Retention ◽

Health Project ◽

The Relationship ◽

Published Research ◽

Staff Recruitment ◽

Staff Recruitment And Retention

Occupational therapy in mental health is changing as a result of service developments. The College of Occupational Therapists reported these changes and their impact for occupational therapists in the Mental Health Project (Craik et al 1998b). This report suggested that there were problems in recruitment and retention in the field of mental health. Background reading for this article highlighted that a variety of factors is influential for an occupational therapist to enter, remain in or leave a post. One factor identified to assist recruitment and retention was the influence of continuing professional development. A comprehensive literature search was carried out to identify the evidence regarding the influence of continuing professional development in enhancing recruitment and retention. A protocol was developed to search for published research and evaluations specific to state-registered occupational therapists from a range of clinical specialties. Thirteen articles were cited and these are systematically reviewed with key findings documented. The review identified that there was little evidence for the influence of continuing professional development on staff recruitment and retention and that no study had set out to explore the relationship between the two in isolation. What evidence was available suggests that recruitment and retention are influenced by a combination of personal and professional factors. In concluding, the findings outline the implications for research and practice.

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HIV research in Australia: linking basic research findings with clinical and public health outcomes

Retrovirology ◽

10.1186/1742-4690-3-86 ◽

2006 ◽

Vol 3 (1) ◽

Author(s):

Sharon R Lewin ◽

John M Kaldor ◽

David A Cooper

Keyword(s):

Public Health ◽

Health Outcomes ◽

Basic Research ◽

Hiv Research ◽

Research Findings

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Optimizing recruitment and retention of adolescents in ED research: Findings from concussion biomarker pilot study

The American Journal of Emergency Medicine ◽

10.1016/j.ajem.2017.09.014 ◽

2018 ◽

Vol 36 (5) ◽

pp. 884-887 ◽

Cited By ~ 1

Author(s):

Sean N. Mbachu ◽

Vincent A. Pieribone ◽

Kirsten A. Bechtel ◽

Madeline L. McCarthy ◽

Edward R. Melnick

Keyword(s):

Pilot Study ◽

Recruitment And Retention ◽

Research Findings

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Documenting HIV research-utilization activities, outputs and outcomes: examples and lessons learned from Project SOAR

Archives of Public Health ◽

10.1186/s13690-021-00628-x ◽

2021 ◽

Vol 79 (1) ◽

Author(s):

Samuel Kalibala ◽

Irit Sinai ◽

Tara Nutley

Keyword(s):

Implementation Research ◽

Research Utilization ◽

Lessons Learned ◽

Logic Model ◽

What Works ◽

Hiv Research ◽

Research Findings ◽

Funded Project ◽

Hiv Aids ◽

Program Decisions

AbstractThe importance of using research findings to inform policy and program decisions is well recognized, but the literature on measuring research utilization activities is scarce. As funding to support some areas of research wanes or remains stagnant, the need to document the value of investing in research by its’ effect on improved programs and policies becomes increasingly necessary. We present the experience of Project SOAR, a six-year USAID-funded project focusing on HIV/AIDS-related implementation research, to demonstrate measurement of research utilization. We follow the project’s research-utilization logic model, including inputs, activities, outputs, and outcomes. We present tools the project developed and examples from project studies and discuss what works, remaining challenges and how to overcome them, and lessons learned. We then make recommendations for incorporating research-utilization activities and measurement in implementation-research studies.

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What Does Evidence-Based Practice Mean to You? A Follow-Up Study Examining School-Based Speech-Language Pathologists' Perspectives on Evidence-Based Practice

American Journal of Speech-Language Pathology ◽

10.1044/2019_ajslp-19-00171 ◽

2020 ◽

Vol 29 (2) ◽

pp. 688-704

Author(s):

Katrina Fulcher-Rood ◽

Anny Castilla-Earls ◽

Jeff Higginbotham

Keyword(s):

Clinical Practice ◽

Research Evidence ◽

Evidence Based Practice ◽

Evidence Based ◽

Clinical Expertise ◽

Speech Language Pathologists ◽

School Based ◽

Research Findings ◽

Ebp Implementation

Purpose The current investigation is a follow-up from a previous study examining child language diagnostic decision making in school-based speech-language pathologists (SLPs). The purpose of this study was to examine the SLPs' perspectives regarding the use of evidence-based practice (EBP) in their clinical work. Method Semistructured phone interviews were conducted with 25 school-based SLPs who previously participated in an earlier study by Fulcher-Rood et al. 2018). SLPs were asked questions regarding their definition of EBP, the value of research evidence, contexts in which they implement scientific literature in clinical practice, and the barriers to implementing EBP. Results SLPs' definitions of EBP differed from current definitions, in that SLPs only included the use of research findings. SLPs seem to discuss EBP as it relates to treatment and not assessment. Reported barriers to EBP implementation were insufficient time, limited funding, and restrictions from their employment setting. SLPs found it difficult to translate research findings to clinical practice. SLPs implemented external research evidence when they did not have enough clinical expertise regarding a specific client or when they needed scientific evidence to support a strategy they used. Conclusions SLPs appear to use EBP for specific reasons and not for every clinical decision they make. In addition, SLPs rely on EBP for treatment decisions and not for assessment decisions. Educational systems potentially present other challenges that need to be considered for EBP implementation. Considerations for implementation science and the research-to-practice gap are discussed.

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