P-36 Structural monitoring patient reported outcome in palliative head and neck cancer care, what can we learn to improve patient centered care?

Oral Oncology ◽  
2021 ◽  
Vol 118 ◽  
pp. 1
Author(s):  
M.C. Dorr ◽  
A. Sewnaik ◽  
D. Berzenji ◽  
K.S. van Hof ◽  
T. Grevelink ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
Head And Neck ◽  
Neck Cancer ◽  
Cancer Care ◽  
Patient Reported Outcome ◽  
Structural Monitoring ◽  
Patient Centered ◽  
Patient Reported ◽  
Centered Care ◽  
Improve Patient

scholarly journals Obtaining Patient-Reported Outcomes Electronically With “OncoFunction” in Head and Neck Cancer Patients During Aftercare

2020 ◽  
Vol 10 ◽  
Author(s):  
Veit Zebralla ◽  
Juliane Müller ◽  
Theresa Wald ◽  
Andreas Boehm ◽  
Gunnar Wichmann ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
Head And Neck ◽  
Neck Cancer ◽  
Patient Reported Outcomes ◽  
Psychosocial Problems ◽  
Patient Reported Outcome ◽  
International Classification Of Functioning ◽  
Patient Reported ◽  
Related Quality ◽  
Time Required

The disease and treatment of patients with head and neck cancer can lead to multiple late and long-term sequelae. Especially pain, psychosocial problems, and voice issues can have a high impact on patients’ health-related quality of life. The aim was to show the feasibility of implementing an electronic Patient-Reported Outcome Measure (PROM) in patients with head and neck cancer (HNC). Driven by our department’s intention to assess Patient-Reported Outcomes (PRO) based on the International Classification of Functioning during tumor aftercare, the program “OncoFunction” has been implemented and continuously refined in everyday practice. The new version of “OncoFunction” was evaluated by 20 head and neck surgeons and radiation oncologists in an interview. From 7/2013 until 7/2017, 846 patients completed the PROM during 2,833 of 3,610 total visits (78.5%). The latest software version implemented newly developed add-ins and increased the already high approval ratings in the evaluation as the number of errors and the time required decreased (6 vs. 0 errors, 1.35 vs. 0.95 min; p<0.01). Notably, patients had different requests using PRO in homecare use. An additional examination shows that only 59% of HNC patients use the world wide web. Using OncoFunction for online-recording and interpretation of PROM improved data acquisition in daily HNC patients’ follow-up. An accessory timeline grants access to former consultations and their visualization supported and simplified structured examinations. This provides an easy-to-use representation of the patient’s functional outcome supporting comprehensive aftercare, considering all aspects of the patient’s life.

scholarly journals Systematic use of patient reported outcome during radiotherapy for head and neck cancer: study protocol for the national DAHANCA 38 trial

2020 ◽  
Vol 59 (5) ◽  
pp. 603-607 ◽  
Author(s):  
Cecilie Holländer-Mieritz ◽  
Jørgen Johansen ◽  
Gry A. Taarnhøj ◽  
Christoffer Johansen ◽  
Ivan R. Vogelius ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
Head And Neck ◽  
Neck Cancer ◽  
Study Protocol ◽  
Patient Reported Outcome ◽  
Cancer Study ◽  
Patient Reported

scholarly journals Identifying Patient-Reported Outcome Measures (PROMs) for Routine Surveillance of Physical and Emotional Symptoms in Head and Neck Cancer Populations: A Systematic Review

2021 ◽  
Vol 10 (18) ◽  
pp. 4162
Author(s):  
Sheilla de Oliveira Faria ◽  
Gillian Hurwitz ◽  
Jaemin Kim ◽  
Jacqueline Liberty ◽  
Kimberly Orchard ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
Head And Neck ◽  
Outcome Measures ◽  
Neck Cancer ◽  
Reliability And Validity ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Emotional Symptoms ◽  
Specific Patient ◽  
Patient Reported

The aims of this review were to identify symptoms experienced by head and neck cancer (HNC) patients and their prevalence, as well as to compare symptom coverage identified in HNC specific patient-reported outcome measures (PROMs). Searches of Ovid Medline, Embase, PsychInfo, and CINAHL were conducted to identify studies. The search revealed 4569 unique articles and identified 115 eligible studies. The prevalence of reported symptoms was highly variable among included studies. Variability in sample size, timing of the assessments, and the use of different measures was noted across studies. Content mapping of commonly used PROMs showed variability and poor capture of prevalent symptoms, even though validation studies confirmed satisfactory reliability and validity. This suggests limitations of some of the tools in providing an accurate and comprehensive picture of the patient’s symptoms and problems.

Preliminary testing of a patient-reported outcome measure for recurrent or metastatic head and neck cancer.

2014 ◽  
Vol 32 (15_suppl) ◽  
pp. 6050-6050 ◽  
Author(s):  
Leanne Kolnick Jackson ◽  
Jie Deng ◽  
Sheila H. Ridner ◽  
Mary S. Dietrich ◽  
Barbara A. Murphy
Keyword(s):  
Head And Neck Cancer ◽  
Head And Neck ◽  
Neck Cancer ◽  
Outcome Measure ◽  
Patient Reported Outcome ◽  
Preliminary Testing ◽  
Patient Reported Outcome Measure ◽  
Patient Reported

PROeverywhere: Bridging the implementation gap of patient-reported outcomes with a mobile app.

2018 ◽  
Vol 36 (30_suppl) ◽  
pp. 203-203
Author(s):  
Kin Wai (Tony) Hung ◽  
Natasha Banerjee ◽  
Jeffrey M. Miller
Keyword(s):  
Cancer Care ◽  
Patient Reported Outcome ◽  
Mobile App ◽  
Patient Centered ◽  
Development Environment ◽  
Implementation Challenges ◽  
Memory Problems ◽  
Longitudinal Tracking ◽  
Patient Reported ◽  
Centered Care

203 Background: Patient reported outcome (PRO) data are critical for informing patient-centered care and have been shown to enhance our ability to communicate with patients, to control their symptoms, and to impact their survival. However, PRO data are not commonly collected in routine cancer care due to implementation challenges such as cost, technological rigidity of existing electronic health records, and misalignment of stakeholders’ incentives. Methods: In an effort to bridge the unmet needs of PRO collection and integration into routine cancer care, we aim to develop an effective, scalable, and sustainable symptom monitoring and management system that can be accessible worldwide. The system was developed using Xcode, the integrative development environment of Apple Inc., with the Swift programing language. Results: On Nov 28th, 2017, we launched a free, mobile PRO application on the Apple App Store – PROeverywhere. PROeverywhere is designed for reporting twelve common symptoms from the National Cancer Institute’s Common Terminology Criteria for Adverse Events. These symptoms include pain, fatigue, nausea/vomiting, appetite loss, diarrhea, constipation, shortness of breath, depression, anxiety, insomnia, memory problems, and neuropathy. Symptoms are reported in a 5-point scale – no symptom, mild, moderate, severe, and disabling. PROeverywhere has the functions to record symptoms, summarize the reporting in printout, and automatically store and analyze the input into graphical interpretations. Updates to PROeverywhere will be released in July 2018, with additional features that include longitudinal tracking dashboard, emoji scale, Spanish questionnaire, and “social networking” capability to connect users with potential to allow remote, real-time, reporting and monitoring. PROeverywhere is downloadable worldwide and securely powered by Google Firebase. Conclusions: PROeverywhere is developed to enable PRO data to be shared more easily and regularly in routine cancer care. Implementation of this free mobile application would allow for consistency in collection of PRO data with the potential to impact patient outcomes globally.

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