scholarly journals 58210 Perspectives and Guidance for Mobile Health Self-Management Intervention Developers from Adolescents and Young Adults with Chronic Illnesses: A Qualitative Study

2021 ◽  
pp. 1-2
Author(s):  
Caitlin S. Sayegh ◽  
Ellen Iverson ◽  
Clarissa Newman ◽  
Diane Tanaka ◽  
Ellen F. Olshansky ◽  
...  
Keyword(s):  
Young Adults ◽  
Qualitative Study ◽  
Mobile Health ◽  
Chronic Illnesses ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Management Intervention

Designing an mHealth Roadmap for the Journey to Self-Management: A Qualitative Study with Adolescents and Young Adults Living with Chronic Illness

2021 ◽  
pp. 174239532110674
Author(s):  
Caitlin S. Sayegh ◽  
Ellen Iverson ◽  
Clarissa Newman ◽  
Diane Tanaka ◽  
Ellen F. Olshansky ◽  
...  
Keyword(s):  
Young Adults ◽  
Chronic Illness ◽  
Los Angeles ◽  
Chronic Illnesses ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Management Skills ◽  
Structured Interviews ◽  
Mhealth Intervention ◽  
The Right

Objectives Adolescents and young adults (AYA) with chronic illnesses often struggle with illness self-management. The objective of this study is to understand how AYA with various chronic illnesses develop self-management skills and which mobile health (mHealth) strategies they believe could be helpful. Methods Semi-structured interviews were conducted with patients, between 16 to 20 years old, living with at least one chronic illness (N = 19), between 2018 and 2019 in Los Angeles, CA. Three coders completed thematic coding to understand how AYA develop and maintain self-management skills, to inform the development of mHealth interventions appropriate across a variety of chronic conditions. Results Results suggest that AYA develop self-management skills through several strategies, including (1) getting organized, (2) making it work for me and (3) keeping the right mentality. AYA described developing these strategies through: (1) receiving social support, (2) accessing helpful tools and technologies, and (3) going through a maturation process. They provided recommendations for mHealth intervention developers. Discussion The results suggest that an appealing mHealth intervention could support AYA patients in proactively acquiring self-management skills and prevent having to rely on trial and error or uneven access to guidance and support. Interventions should be responsive to individual technology preferences and practices.

scholarly journals Young adults’ perceptions of living with atopic dermatitis in relation to the concept of self-management: a qualitative study

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e044777
Author(s):  
Susanne Lundin ◽  
Marina Jonsson ◽  
Carl-Fredrik Wahlgren ◽  
Emma Johansson ◽  
Anna Bergstrom ◽  
...  
Keyword(s):  
Young Adults ◽  
Atopic Dermatitis ◽  
Qualitative Study ◽  
Healthcare Providers ◽  
Transition Process ◽  
Population Based ◽  
Self Management ◽  
School Age ◽  
Perceived Availability ◽  
Semistructured Interviews

ObjectivesLearning to take control of one’s health is an important part of the transition from adolescence to adulthood. This study aimed to explore young adults’ perceptions of living with atopic dermatitis (AD) in relation to the concept of self-management.DesignA qualitative study with an inductive approach was performed through semistructured interviews (n=15). The interviews were recorded, transcribed verbatim and analysed with systematic text condensation.ParticipantsYoung adults (mean age 23,4 years) with persistent AD in a longitudinal population-based birth cohort. To capture experience of living with persistent AD (preschool/school-age onset) of different severity (mild to severe/very severe), a purposive selection was performed. In total, 15 young adults were included. Persistent AD (preschool/school-age onset) was defined as dry skin in combination with itchy rash of typical localisation in the 12 months preceding the 16-year and the 24-year follow-ups. Severity was self-assessed using the Patient Oriented Eczema Measure.ResultsDespite having experience of AD since childhood, the respondents expressed uncertainty about treatment and how it affected their bodies. Their uncertainties and feelings affected how they used topical corticosteroids. The respondents emphasised that they perceived availability of healthcare and knowledge about treatment of AD among healthcare providers to be limited. The participants did not state any experiences of support to self-management from healthcare, which affect young adults’ possibilities to take full control of their AD care.ConclusionsYoung adults with preschool/school-age onset of AD are unsure how to treat and manage the disease. One explanation may be insufficient transition process.

Evaluation of an Internet Diabetes Self-Management Training Program for Adolescents and Young Adults

2007 ◽  
Vol 9 (1) ◽  
pp. 60-67 ◽  
Author(s):  
Ben S. Gerber ◽  
Marla C. Solomon ◽  
Tracie L. Shaffer ◽  
Michael T. Quinn ◽  
Rebecca B. Lipton
Keyword(s):  
Young Adults ◽  
Training Program ◽  
Management Training ◽  
Adolescents And Young Adults ◽  
Self Management

scholarly journals Participants and developers experiences with a chronic pain self-management intervention under development: A qualitative study

2018 ◽  
Vol 6 ◽  
pp. 205031211881742 ◽  
Author(s):  
Kjersti Grønning ◽  
Torunn Hatlen Nøst ◽  
Toril Rannestad ◽  
Ola Bratås
Keyword(s):  
Chronic Pain ◽  
Qualitative Study ◽  
Behavioural Change ◽  
User Involvement ◽  
Social Needs ◽  
Self Management ◽  
Pharmacological Interventions ◽  
Healthy Life ◽  
Management Intervention ◽  
Cognitive Techniques

Background: Non-pharmacological interventions aim to promote health and self-management for people with chronic pain. Objective: The aim of this study was to explore if the participants’ experiences with a self-management intervention under development were aligned with the developers’ rationale and desired outcome of the intervention. Methods: This was a qualitative study interviewing both participants and developers of a chronic pain self-management intervention. Seven participants, six females and one male in the age from early thirties to mid-seventies attended the chronic pain self-management intervention developed by the staff at a Healthy Life Centre. The data were analysed by the systematic text condensation method. Results: The analyses showed that the participants evaluated the intervention as valuable. They described using coping techniques to manage their chronic pain better, and the developers stated that the aim with the intervention was to provide the participants with coping techniques. The intervention was built upon the developers’ professional knowledge and experience in cognitive techniques, health theories, models for behavioural change, and service user involvement. Conclusion: This study found that the chronic pain self-management intervention was in concordance with theory of health promotion and empowerment. The participants experienced the intervention as targeting their resources, capacities, and fulfilling social needs, which aligned with the developers aim with the intervention. The participants found the intervention evocative; they learned new ways to manage their pain through theory/education, movement exercises, homework, and sharing their experiences with each other.

Using a Heuristic App to Improve Symptom Self-Management in Adolescents and Young Adults with Cancer

2019 ◽  
Vol 8 (2) ◽  
pp. 131-141 ◽  
Author(s):  
Jeanne M. Erickson ◽  
Suzanne Ameringer ◽  
Lauri Linder ◽  
Catherine Fiona Macpherson ◽  
R.K. Elswick ◽  
...  
Keyword(s):  
Young Adults ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Improve Symptom
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