scholarly journals Perceived value of support for older adults coping with multi-morbidity: patient, informal care-giver and family physician perspectives

2015 ◽  
Vol 36 (9) ◽  
pp. 1891-1914 ◽  
Author(s):  
GAYATHRI NAGANATHAN ◽  
KERRY KULUSKI ◽  
ASHLINDER GILL ◽  
LIISA JAAKKIMAINEN ◽  
ROSS UPSHUR ◽  
...  
Keyword(s):  
Older Adults ◽  
Informal Care ◽  
Health And Safety ◽  
Perceived Value ◽  
Family Health ◽  
Family Physicians ◽  
Care Giver ◽  
Structured Interviews ◽  
Supportive Services ◽  
Care Givers

ABSTRACTThis study investigated the perceived value of informal and formal supports for older adults with multi-morbidity from the perspectives of patients, care-givers and family physicians. Semi-structured interviews were conducted with 27 patients, their informal care-givers and their family physicians in an urban academic family health team in Ontario. Analysis was conducted using a General Inductive Approach to facilitate identification of main themes and build a framework of perceived value of supports. Participant views converged on supports that facilitate patient independence and ease care-giver burden. However, important differences in participant perceptions arose regarding these priorities. Physicians and care-givers valued supports that facilitate health and safety while patients prioritised supports that enable self-efficacy and independence. While formal supports which eased care-giver burden were viewed positively by all members of the triad, many patients also rejected formal supports, citing that informal support from their care-giver was available. Such conflicts between patient, care-giver and physician-perceived value of supports may have important implications for consumer and care-giver willingness to accept formal supports when supports are available. These findings contribute to the broader literature on community-based care by incorporating the perspectives of patients, informal care-givers and family physicians to understand better the barriers and facilitators of uptake of supportive services that contribute to successful ageing at home.

Intention to use respite services among informal care-givers of frail older adults in China: the role of care needs change

2020 ◽  
Vol 41 (1) ◽  
pp. 101-120 ◽  
Author(s):  
Qian Sun ◽  
Nan Lu ◽  
Nan Jiang ◽  
Vivian W. Q. Lou
Keyword(s):  
Older Adults ◽  
Elderly People ◽  
Informal Care ◽  
Respite Care ◽  
Intention To Use ◽  
Care Giver ◽  
Care Needs ◽  
Frail Older Adults ◽  
Care Givers ◽  
Time Invariant

AbstractPopulation ageing in China calls for evidence-based solutions, especially in terms of fulfilling long-term care needs among frail older adults. Respite services are identified as effective resources for alleviating care-giver burden and promoting the wellbeing of both older adults and their family care-givers. However, respite care is often under-used in China. This research aimed to examine factors associated with intention to use respite services among informal care-givers in Shanghai, mainland China. This study was part of the Longitudinal Study on Family Caregivers for Frail Older Adults in Shanghai. Pairs of older adults and their care-givers (N = 583) who successfully completed the 2013 and 2016 waves were included in the data analysis. Two logistic regression models were conducted, one with time-invariant and one with time-variant factors. The model with time-variant factors had greater explanatory power than the original Andersen model with time-invariant factors influencing intention to use respite services among care-givers. Care-givers had higher odds of intending to use respite services if they had higher care-giving burden, were caring elderly people who experienced care-giver transitions, or were caring for elderly people with increased function of ambulation or decreased function of feeding. The findings imply that change in functional health was a significant determinant of intention to use respite care. Relevant policy and service implications will be discussed.

scholarly journals Qualitative exploration of the experiences of informal care-givers for dependent older adults in Mexico City

2018 ◽  
Vol 39 (11) ◽  
pp. 2377-2396 ◽  
Author(s):  
Liliana Giraldo-Rodríguez ◽  
Nathalia Guevara-Jaramillo ◽  
Marcela Agudelo-Botero ◽  
Dolores Mino-León ◽  
Mariana López-Ortega
Keyword(s):  
Older Adults ◽  
Mexico City ◽  
Informal Care ◽  
Family Care ◽  
Structured Interviews ◽  
Care Needs ◽  
Cross Sectional ◽  
Term Care ◽  
Care Givers ◽  
Care Giving

AbstractPopulation ageing and increasing prevalence of chronic diseases and their consequences, changes in family structure and a decrease in the potential pool of family care, increase the need for formal long-term care for older adults in Mexico, and the need to understand the experiences of informal care-givers and how this impacts their social, family and personal conditions. This study investigates the experience of informal care-givers of dependent older adults using a cross-sectional qualitative study with an ethnographic focus. Thematic analysis was performed. The study comprised 48 semi-structured interviews with care-givers of dependent older adults who are beneficiaries of an in-home medical programme in Mexico City. The average age of care-givers was 54.7 years (standard deviation = 13.1, range = 24–86) and 75 per cent (36) were women. Results show care-giving experiences are diverse and complex, and profoundly affect the care-giver's life in terms of emotional burden, health deterioration and adverse life conditions due to economic deprivation. They also revealed key aspects such as the need to improve communication between care-givers and health-care personnel, the need for training about specific care needs and opportunity costs incurred. This information can serve as a basis for generating support strategies that may be integrated into the in-home programme. It is essential to promote actions that consider the ‘dependent older adult–informal care-giver’ dyad, and that aim to reduce the care-giving burden.

scholarly journals Linkages between informal and formal care-givers in home-care networks of frail older adults

2015 ◽  
Vol 36 (8) ◽  
pp. 1604-1624 ◽  
Author(s):  
MARIANNE JACOBS ◽  
THEO VAN TILBURG ◽  
PETER GROENEWEGEN ◽  
MARJOLEIN BROESE VAN GROENOU
Keyword(s):  
Older Adults ◽  
Home Care ◽  
Informal Care ◽  
Community Dwelling ◽  
Care Recipient ◽  
Formal Care ◽  
Care Giver ◽  
Care Network ◽  
Care Givers ◽  
Care Recipients

ABSTRACTIn ageing societies, policy makers aim for more contact between informal and formal care-givers as it may enhance the quality of care. So far, the linkage between formal and informal care-givers is generally studied from a one-sided or a single dyadic perspective, without taking into account that care networks of community-dwelling older adults often exist of multiple informal and formal care-givers. The current study examines discussion of care between all potential informal–formal care-giver dyads in a care network, and relates this to characteristics of the older care recipient, the care network and the care-givers. Seventy-four Dutch older care recipients provided information on all care-givers who helped with five different types of tasks; 410 care-givers reported on the contact between all care-givers identified. Multi-level logistic regression was conducted in 2,150 informal–formal care-giver dyads and revealed that in 26 per cent of all these dyads discussion on care occurred. This was more likely when both care-givers performed multiple types of tasks, the informal care-giver was residing with the care recipient, and contact within the formal and the informal sub-network was higher. To enhance discussion of care between informal and formal care-givers in care networks where no discussion occurs at all, home-care organisations may need to allocate formal care-givers who form a bridge with an extra-residential care-giver of care recipients living alone.

scholarly journals The role of transportation in older adult social activity participation: a qualitative study in Mississauga, Ontario

2021 ◽  
Author(s):  
Sonia Suet Yi Tam
Keyword(s):  
Older Adults ◽  
Land Use ◽  
Older Adult ◽  
Social Activity ◽  
Health And Safety ◽  
Structured Interviews ◽  
Suburban Communities ◽  
Transportation Modes ◽  
Travel Diaries ◽  
Land Use Policies

The purpose of this research was to explore accessibility and how older adults in suburban communities are participating in social activities outside their home. Twenty older adults in Mississauga, Ontario took part in this study. A combination of activity-based travel diaries and semi-structured interviews were used to collect data. Findings suggest that understandings of accessibility vary between users of different transportation modes. Further, travel time rather than distance travelled may be a more significant indicator of participation. Land use mix also attracts participation, while conditions that risk the health and safety of older adults are deterrents. This research contributes to the limited literature on older adult social participation as related to transportation. Results from this study highlight potential problems for older adult accessibility in a suburban context. Research may inform the development of accessibility interventions, municipal land use policies, and public transit strategies to build healthier, more inclusive age-friendly communities.

Examining the role of ageing-in-place organisations in building older adults’ disaster resilience

2020 ◽  
pp. 1-26
Author(s):  
Claire Pendergrast ◽  
Basia Belza ◽  
Ann Bostrom ◽  
Nicole Errett
Keyword(s):  
Older Adults ◽  
Social Services ◽  
Health And Safety ◽  
The United States ◽  
Local Context ◽  
Disaster Resilience ◽  
Structured Interviews ◽  
Ageing In Place ◽  
Building Activities

Abstract Older adults are more susceptible to adverse health outcomes during and after a disaster compared with their younger counterparts. Ageing-in-place organisations such as senior centres and Villages provide social services and programming for older adults and may support older adults’ resilience to disasters. This study examines the role of ageing-in-place organisations in building disaster resilience for older adults. Semi-structured interviews were conducted with a purposive sample of 14 ageing-in-place organisation leaders in King County, Washington in the United States of America. The sample included representatives of five government-run senior centres, seven non-profit senior centres and two Villages. Interviews were audio-recorded and professionally transcribed. We used a combined inductive and deductive approach to code and thematically analyse the data. Ageing-in-place organisation leadership recognise disasters as a threat to older adults’ health and safety, and they see opportunities to provide disaster-related support for older adults, though the type and extent of participation in resilience-building activities reflected each organisation's unique local context. Organisations participate in a variety of disaster-related activities, though respondents emphasised the importance of collaborative and communication-focused efforts. Findings suggest that ageing-in-place organisations may be best equipped to support older adults’ disaster resilience by serving as a trusted source of disaster-related information and providing input on the appropriateness of disaster plans and messages for the unique needs of older adults ageing-in-place.

scholarly journals Increasing autonomy through improved care: effects of a professional care-giver training programme on the functional status of older adults

2021 ◽  
pp. 1-18
Author(s):  
Elena Navarro ◽  
Miriam Sanjuán ◽  
M. Dolores Calero
Keyword(s):  
Older Adults ◽  
Treatment Group ◽  
Barthel Index ◽  
Training Programme ◽  
Cognitive Stimulation ◽  
Initial Assessment ◽  
Care Giver ◽  
Care Givers ◽  
Professional Care

Abstract The aim of the present research was to evaluate the effectiveness of a care-giver training programme that trains professional care-givers in cognitive stimulation strategies for functional maintenance in care-dependent older adults. The sample contained 69 older adults (37 in the treatment group, 32 control group) assessed with the Barthel Index, the Mini-Mental State Examination and the Clifton Assessment Procedure for the Elderly (Cognitive Scale). Participants in the treatment group were treated by professional care-givers who were trained with the programme CUIDA-2 in communication and cognitive stimulation strategies. The results from the Barthel Index showed significant differences in the post-intervention assessment and in the follow-up assessment, where the treatment group obtained higher scores, and there were significant differences within the treatment group between the initial assessment and the post-treatment assessment, as well as between the initial assessment and the follow-up. The data obtained reflect that a training programme to train professional care-givers produced functional benefits in the older adults, and these improvements persisted over time. Moreover, the care-givers saw themselves as more competent and more satisfied with their work.

scholarly journals Disruption, control and coping: responses of and to the person with dementia in hospital

2013 ◽  
Vol 35 (1) ◽  
pp. 37-63 ◽  
Author(s):  
DAVINA POROCK ◽  
PHILIP CLISSETT ◽  
ROWAN H. HARWOOD ◽  
JOHN R. F. GLADMAN
Keyword(s):  
Participant Observation ◽  
Family Care ◽  
Sense Of Control ◽  
Care Giver ◽  
Structured Interviews ◽  
Coping Responses ◽  
Care Givers ◽  
Sharing Space ◽  
Person With Dementia ◽  
Constant Comparative Analysis

ABSTRACTThis qualitative study aimed to gain insight into the experience of hospitalisation from the perspectives of the older person with dementia, their family care-giver and other patients sharing the ward (co-patients). Non-participant observation of care on 11 acute hospital wards was supplemented by 39 semi-structured interviews with 35 family care-givers and four co-patients following discharge. Constant comparative analysis produced the core problem facing all those involved: disruption from normal routine meaning that the experience of hospitalisation was disrupted by the presence and behaviour of the person with dementia. Disruption adversely affected the person with dementia, triggering constructive, disengaged, distressed and neutral behaviours. Using Kitwood's model of person-centred care, these behaviours were interpreted as attempts by the person with dementia at gaining a sense of control over the unfamiliar environment and experience. Family care-givers' lives and experiences both inside and outside the hospital were disrupted by the hospitalisation. They too attempted to gain a sense of control over the experience and to give a sense of control to the patient, co-patients and staff. Co-patients experienced disruption from sharing space with the person with dementia and were left feeling vulnerable and sometimes afraid. They too attempted to gain a sense of control over their situation and give some control by helping the person with dementia, the family care-giver and the staff.

scholarly journals The role of transportation in older adult social activity participation: a qualitative study in Mississauga, Ontario

2021 ◽  
Author(s):  
Sonia Suet Yi Tam
Keyword(s):  
Older Adults ◽  
Land Use ◽  
Older Adult ◽  
Social Activity ◽  
Health And Safety ◽  
Structured Interviews ◽  
Suburban Communities ◽  
Transportation Modes ◽  
Travel Diaries ◽  
Land Use Policies

The purpose of this research was to explore accessibility and how older adults in suburban communities are participating in social activities outside their home. Twenty older adults in Mississauga, Ontario took part in this study. A combination of activity-based travel diaries and semi-structured interviews were used to collect data. Findings suggest that understandings of accessibility vary between users of different transportation modes. Further, travel time rather than distance travelled may be a more significant indicator of participation. Land use mix also attracts participation, while conditions that risk the health and safety of older adults are deterrents. This research contributes to the limited literature on older adult social participation as related to transportation. Results from this study highlight potential problems for older adult accessibility in a suburban context. Research may inform the development of accessibility interventions, municipal land use policies, and public transit strategies to build healthier, more inclusive age-friendly communities.

scholarly journals Do Family Caregivers of Dementia Patients Feel Competent in Pain Management?

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 943-943
Author(s):  
Hui Zhao ◽  
Pamela Kulbok ◽  
Ishan Williams ◽  
Carol Manning ◽  
Rafael Romo
Keyword(s):  
Older Adults ◽  
Pain Management ◽  
Family Caregivers ◽  
Deep Understanding ◽  
Perceived Competence ◽  
Structured Interviews ◽  
Loved One ◽  
Care Givers ◽  
Dementia Patients ◽  
Constant Comparative Analysis

Abstract Older adults with dementia rely on others to recognize and treat their pain and will ultimately become dependent. Family caregivers (FCGs) play a crucial role in pain management, yet limited data is available regarding the factors that impact their abilities. This qualitative descriptive study sought a deep understanding of FCGs perception of their abilities to manage pain for a loved-one with dementia. A sample of 25 adult family caregivers of community-based older adults with dementia was recruited in central Virginia. Participants were 29 to 95 years old, predominantly white, married, female, and high school graduates. We conducted semi-structured interviews that were audio recorded and analyzed using constant comparative analysis. Participants’ who perceived greater competence with pain management reported less pain for their loved-one, and their level of confidence was influenced by 3 factors: progress and stage of dementia: this increases the complexity of care, affecting FCGs ability to manage pain and engendering a self-perception of incompetence; developing adaptive mechanisms: built self-efficacy and improved FCGs perceived competence;, and support from professionals: a greater degree of support alleviated FCGs concerns and instill new skills, Effective pain management depended on family caregivers’ belief in their own abilities, and perceived competence could be improved by learning new skills or making adaptations. Professional care givers need to routinely assess FCGs abilities and provide adequate interventions.

Service use barriers differentiating care-givers' service use patterns

2011 ◽  
Vol 31 (8) ◽  
pp. 1307-1329 ◽  
Author(s):  
SONG-IEE HONG ◽  
LESLIE HASCHE ◽  
MI JIN LEE
Keyword(s):  
Informal Care ◽  
Service Use ◽  
The United States ◽  
Service Users ◽  
Care Giver ◽  
Term Care ◽  
Data Set ◽  
Use Patterns ◽  
Care Givers ◽  
Service Barriers

ABSTRACTThis study describes what types of service use barriers older adults' informal care-givers perceive and examines how these barriers differentiate care-giver service use patterns. Analysing the 2004 National Long-Term Care Survey and Informal Care-giver Data Set (N=1908) in the United States of America, this study reports the prevalence of service barriers for each type of service as well as for overall service use. Service barriers are measured in terms of availability, awareness, affordability, staff quality, privacy violation, complex bureaucracy, language barriers, qualification of each programme and no thought of service. Andersen's health behaviour model guides determinants related to care-giver service use patterns. As a main outcome, care-giver service use patterns (light service users, selective in-home users, and multiple service users) are examined in relation to service use barriers when other predisposing, enabling and need variables are controlled. Of the ten service use barriers defined in this study, awareness and no thought of service are the most prevalent barriers. Care-givers reporting service barriers of availability, awareness and affordability are more likely to be light service users compared to multiple service users and selective in-home service users. These findings highlight the significance of enhancing awareness of care-giver supportive services as well as increasing availability and financial support for service use.

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