scholarly journals A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions

2007 ◽  
Vol 17 (2) ◽  
pp. 151-157 ◽  
Author(s):  
Lynne Kendall ◽  
Jonathan M. Parsons ◽  
Patricia Sloper ◽  
Robert J. P. Lewin
Keyword(s):  
Young People ◽  
Cardiac Disease ◽  
Screening Method ◽  
Significant Risk ◽  
Risk Behaviour ◽  
Children And Young People ◽  
Tertiary Centre ◽  
Level Of Activity ◽  
Congenital Cardiac Disease ◽  
Seeking Help

Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.

scholarly journals The development of a new measure of quality of life for children with congenital cardiac disease

2006 ◽  
Vol 16 (2) ◽  
pp. 165-172 ◽  
Author(s):  
Susan Macran ◽  
Yvonne Birks ◽  
Jonathan Parsons ◽  
Patricia Sloper ◽  
Geoff Hardman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young People ◽  
Cardiac Disease ◽  
Clinical Context ◽  
Children And Young People ◽  
The United Kingdom ◽  
Congenital Cardiac Disease ◽  
Reliable Instrument ◽  
Health Related

The purpose of the study was to develop a questionnaire measuring health-related R1 quality of life for children and adolescents with congenital heart disease, the ConQol, that would have both clinical and research applications. We describe here the process of construction of a questionnaire, the piloting and the development of a weighted scoring system, and data on the psychometric performance of the measure in a sample of 640 children and young people recruited via 6 regional centres for paediatric cardiology from across the United Kingdom. The ConQol has two versions, one designed for children aged from 8 to 11 years, and the other for young people aged from 12 to 16 years. Initial findings suggest that it is a valid and reliable instrument, is acceptable to respondents, and is simple to administer in both a research and clinical context.

scholarly journals The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease

2003 ◽  
Vol 13 (1) ◽  
pp. 20-27 ◽  
Author(s):  
Lynne Kendall ◽  
Patricia Sloper ◽  
Robert J. P. Lewin ◽  
Jonathan M. Parsons
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Cardiac Disease ◽  
Health Professionals ◽  
Medical Condition ◽  
Small Study ◽  
Structured Interviews ◽  
Congenital Cardiac Disease ◽  
Growing Body ◽  
Areas Of Concern

Background and purpose:Although much previous research has focused on the medical aspects of congenital cardiac disease, there is a growing body of research which suggests that families may need help and support with the wider issues associated with the medical condition. We have previously ascertained from young people with congenital cardiac disease their views on this subject. The purpose of this study was to obtain the views of their parents about the need for, and shape of, services for rehabilitation.Methods:This was a qualitative study using semi-structured interviews. We interviewed 17 parents in their own home. Interviews were tape-recorded and transcribed.Results:Parents would welcome more help and support from health professionals to enable them to manage more effectively the condition with their children. Particular areas of concern relate to the information they receive about the condition; communication between themselves and health professionals; establishing safe levels of activity; and managing the condition at school.Conclusions:This is a small study of the experiences and views of parents, which provides some important information on ways in which health professionals could address the current lack of services for rehabilitation.

The current state of infection with respiratory syncytial virus in the setting of congenital cardiac malformations

2006 ◽  
Vol 16 (S3) ◽  
pp. 136-143 ◽  
Author(s):  
Timothy F. Feltes ◽  
Richard L. Hodinka ◽  
Stephen M. Paridon ◽  
Gil Wernovsky ◽  
Henry M. Sondheimer
Keyword(s):  
Respiratory Syncytial Virus ◽  
Chronic Lung Disease ◽  
Cardiac Disease ◽  
Significant Risk ◽  
Current State ◽  
Congenital Cardiac Disease ◽  
Clinical Consequences ◽  
Syncytial Virus ◽  
A Current ◽  
Infants And Young Children

A long with prematurity and chronic lung disease, the presence of congenital cardiac disease in infants and young children is a significant risk for the clinical consequences of an illness produced by infection with the respiratory syncytial virus.1In this review, we present a current understanding of such illnesses, their prevention, and their treatment.

Mental Health Promotion in Schools

1997 ◽  
Vol 5 (4) ◽  
pp. 159-162 ◽  
Author(s):  
Rhonda Galbally ◽  
Chris Borthwick
Keyword(s):  
Mental Health ◽  
Health Promotion ◽  
Young People ◽  
Risk Behaviour ◽  
Poor Mental Health ◽  
Mental Health Promotion ◽  
Health Impacts ◽  
Children And Young People ◽  
Health Promotion In Schools

Mental health is a key element in every aspect of health. Poor mental health impacts both directly and indirectly on health, both through biopsychological effects and in its influence on risk behaviour. Health promotion must address these factors in the settings where people live and work. Schools – primary and post primary – are where children and young people spend the greater part of their days, and are thus a key setting.

Childhood constipation

2019 ◽  
Vol 12 (11) ◽  
pp. 626-634
Author(s):  
Syukri Rahim
Keyword(s):  
Young People ◽  
Clinical Outcomes ◽  
Healthcare Professionals ◽  
Delayed Diagnosis ◽  
Signs And Symptoms ◽  
Children And Young People ◽  
Medical Consultations ◽  
Life Threatening ◽  
Seeking Help ◽  
The Impact

Constipation is a common problem in childhood. It is often under-reported and families may delay seeking help due to fear of embarrassment and a negative response from healthcare professionals. Healthcare professionals may also underestimate the impact of constipation on the child and their family and this may subsequently contribute to poor clinical outcomes. Although it is rarely life-threatening, many children and young people experience psychological, social and educational consequences that require prolonged support. Signs and symptoms of childhood constipation are often poorly recognised. Delayed diagnosis, suboptimal therapy and lack of understanding of the condition often contribute to the ongoing symptoms and multiple medical consultations.

scholarly journals The views of young people with congenital cardiac disease on designing the services for their treatment

2003 ◽  
Vol 13 (1) ◽  
pp. 11-19 ◽  
Author(s):  
Lynne Kendall ◽  
Patricia Sloper ◽  
Robert J. P. Lewin ◽  
Jonathan M. Parsons
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Social Functioning ◽  
Cardiac Disease ◽  
Health Professionals ◽  
Small Study ◽  
Structured Interviews ◽  
Congenital Cardiac Disease

Background and purpose:There is little documented evidence of young people with congenital cardiac disease being consulted as to what help, if any, they really need in relation to their condition. Most research concentrates on the medical aspects of the condition. There are studies of psychological and social functioning, but few have directly sought the opinions of the young people. More recent research has indicated a need for health professionals to develop services to meet both psychosocial and physical needs of young people with congenital cardiac disease. The findings of the recent Kennedy Report support this need. The purpose of this study was to explore the views of young people with a range of congenital cardiac conditions, on what would help them better deal with their condition, and when and how help might be provided.Methods:This was a qualitative study using semi-structured interviews. We interviewed 16 young people in their own home. Interviews were tape-recorded and transcribed. Analysis was conducted using the “Framework” method.Results:Whilst most of the young people interviewed actively manage their condition, they think more support from others would be beneficial. Issues of activity and communication were cited most often as areas requiring more understanding from people they interact with, for example teachers and peers. The discussion focuses on how health professionals might change or develop their practice to help young people better cope with their condition.Conclusions:Most of the young people interviewed in this study had developed their own strategies for coping with their condition. Although this is a small study, the young people provided important suggestions as to how health professionals could better develop current services.

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