Quality of life in adult survivors after paediatric heart transplantation in Australia

AbstractBackground:Paediatric heart transplantation in Australia is centralised at The Royal Children’s Hospital, Melbourne. Survival to adulthood is improving but the ongoing need for complex medical therapy, surveillance, and potential for late complications continues to impact on quality of life. Quality of life in adults who underwent heart transplantation in childhood in Australia has not been assessed.Methods:Cross-sectional quality of life data were collected from paediatric heart transplant survivors >18 years of age using Rand 36-Item Health Survey. Self-reported raw scores were transformed to a 0–100 scale with higher scores indicating better quality of life. Mean scores were compared to National Health Survey Short Form-36 Population Norms data using the independent sample t-test.Results:A total of 64 patients (64/151) who underwent transplantation at The Royal Children’s Hospital between 1988 and 2016 survived to adulthood. In total 51 patients (51/64, 80%) were alive at the time of the study and 27 (53%) responded with a mean age of 25 ± 6 years, being a median of 11 years (interquartile range 7–19) post-transplantation. Most self-reported quality of life subscale scores were not significantly different from the Australian normative population data. However, self-reported ‘General Health’ was significantly worse than normative data (p = 0.02). Overall, 93% (25/27) reported their general health as being the same or better compared to 1-year ago.Conclusion:Adult survivors after paediatric heart transplantation in Australia report good quality of life in multiple domains and demonstrate independence in activities of daily living and employment. However, lifelong medical treatment may affect perceptions of general health.

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The Mos Short-Form General Health Survey: Single Item vs Multiple Measures of Health-Related Quality of Life: Some Nuances

Psychological Reports ◽

10.2466/pr0.1992.70.2.608 ◽

1992 ◽

Vol 70 (2) ◽

pp. 608-610 ◽

Cited By ~ 29

Author(s):

G. I. J. M. Kempen

Keyword(s):

Quality Of Life ◽

Health Survey ◽

General Health ◽

Short Form ◽

Health Related Quality ◽

Single Item ◽

General Health Survey ◽

Related Quality ◽

Health Related

Researchers concluded that Item 2 of the Short-form General Health Survey of the Medical Outcomes Study can be used as a single-item measure of health-related quality of life. This conclusion is tested again on a random sample of elderly people in the Netherlands. Although it can be concluded that the psychometric properties of the short form are satisfactory, the use of the single item as a measure of health-related quality of life is discussed.

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The Profile and Determinant Factors of Quality of Life in Patients with Diabetic Neuropathy

Kesmas National Public Health Journal ◽

10.21109/kesmas.v12i1.1252 ◽

2017 ◽

Vol 12 (1) ◽

Author(s):

Marta Lisnawati Zalukhu ◽

Rizaldy Taslim Pinzon ◽

Kadek Sinthia Grahita Adnyana

Keyword(s):

Quality Of Life ◽

Diabetic Neuropathy ◽

Health Survey ◽

General Health ◽

Social Role ◽

Short Form ◽

Bodily Pain ◽

Role Functioning ◽

Diabetes Melitus

AbstractNeuropathy is one of the most common complications in patients with diabetes mellitus (DM). Neuropathy has contributed to some impacts of quality of life (QOL), general health status, and socio-economy level. Therefore, it is important to understand more about this issue, so appropriate treatment could be taken to improve QOL of patients with diabetic neuropathy. This study aimed to measure the profile of a patient’s life quality in DM with neuropathy. This study was a observational study using Short Form 8 (SF-8) Health Survey Standard Indonesia to measure the QOL in patients with diabetic neuropathy that were treated consecutively from March to August 2016 in the Department of Neurology in Bethesda Hospital, Yogyakarta. Fifty seven patients with diabetic neuropathy were enrolled as subjects in this study. Most of them were women (52,6%). The mean age of subjects was 57.3 ± 5.85 years. The lowest QOL score in patients with diabetic neuropathy were observed in general health perceptions category (45.26%), followed by bodily pain (57.19%), vitality or energy (69.12%), physical functioning (69.82%), social role functioning (74.03%), mental health (78.59%), physical role functioning (80.70%), and emotional role functioning (81.05%). Patients with diabetic neuropathy have poor QOL. Sex and age were not significantly related to the QOL in patients with diabetic neuropathy. AbstractNeuropati merupakan salah satu komplikasi tersering pada diabetes melitus (DM). Neuropati dapat memengaruhi kualitas hidup, derajat kesehatan, maupun tingkat ekonomi. Oleh karena itu, penting untuk mengetahui kualitas hidup pasien DM dengan neuropati beserta dampak yang ditimbulkannya terlebih dahulu agar mendapatkan penanganan yang tepat demi meningkatkan kualitas hidup pasien. Penelitian ini bertujuan untuk mengetahui profil kualitas hidup pasien DM dengan neuropati. Penelitian ini merupakan studi observasional menggunakan Short Form 8 (SF-8) Health Survey Standard Indonesia terhadap pasien diabetes melitus dengan neuropati yang diambil secara konsekutif pada bulan Maret hingga Agustus 2016 di Poli Saraf Rumah Sakit Bethesda, Yogyakarta. Terdapat 57 subjek yang dimasukkan dalam penelitian ini. Sebanyak 52,6 % di antaranya adalah perempuan dengan rerata usia 57,3 ±5,85 tahun. Skor kualitas hidup pasien neuropati DM yang paling rendah terdapat pada kategori kesehatan umum (45,26%) disusul nyeri pada tubuh (57,19%), vitalitas atau energi (69,12%), fungsi fisik (69,82%), fungsi sosial (74,03%), kesehatan mental (78,59%), kemampuan peran dengan masalah kesehatan fisik (80,70%), dan kemampuan peran dengan masalah emosi (81,05%). Jenis kelamin dan usia tidak berhubungan secara signifikan terhadap kualitas hidup pasien DM dengan neuropati.

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Quality of life in children with West's syndrome in south children's hospital in Santiago de Cuba

Clinical Neurophysiology ◽

10.1016/s1388-2457(08)60597-0 ◽

2008 ◽

Vol 119 ◽

pp. S162

Author(s):

G. Naranjo Pelayo

Keyword(s):

Quality Of Life ◽

Children's Hospital ◽

Children’S Hospital ◽

Santiago De Cuba

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Health-Related Quality of Life of Older Adults in Costa Rica as Measured by the Short-Form-36 Health Survey

Gerontology and Geriatric Medicine ◽

10.1177/2333721418782812 ◽

2018 ◽

Vol 4 ◽

pp. 233372141878281 ◽

Cited By ~ 1

Author(s):

Esmeralda Valdivieso-Mora ◽

Mirjana Ivanisevic ◽

Leslie A. Shaw ◽

Mauricio Garnier-Villarreal ◽

Zachary D. Green ◽

...

Keyword(s):

Quality Of Life ◽

Older Adults ◽

Costa Rica ◽

Health Survey ◽

Short Form ◽

Health Related Quality ◽

Short Form 36 ◽

Related Quality ◽

Health Related

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Health-related quality of life in Marfan syndrome: a 10-year follow-up

Health and Quality of Life Outcomes ◽

10.1186/s12955-020-01633-4 ◽

2020 ◽

Vol 18 (1) ◽

Author(s):

Thy Thy Vanem ◽

Svend Rand-Hendriksen ◽

Cathrine Brunborg ◽

Odd Ragnar Geiran ◽

Cecilie Røe

Keyword(s):

Quality Of Life ◽

Marfan Syndrome ◽

Health Survey ◽

Short Form ◽

Physical Domain ◽

Health Related Quality ◽

Related Quality ◽

Health Related

Abstract Background Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic are needed. The aim of this study was to assess changes in health-related quality of life after 10 years in a Norwegian Marfan syndrome cohort. Methods Forty-seven Marfan syndrome patients ≥ 18 years were investigated for all organ manifestations in the 1996 Ghent nosology and completed the self-reported questionnaire, Short-Form-36 Health Survey, at baseline in 2003–2004 and at follow-up in 2014–2015. Paired sample t tests were performed to compare means and multiple regression analyses were performed with age, sex, new cardiovascular and new non-cardiovascular pathology as predictors. Results At 10-year follow-up: a significant decline was found in the physical domain. The mental domain was unchanged. Older age predicted a larger decline in physical health-related quality of life. None of the chosen Marfan-related variables predicted changes in any of the subscales of the Short-Form 36 Health Survey or in the physical or the mental domain. Conclusion Knowledge of decline in the physical domain, not related to organ affections, may be important in the follow-up of Marfan syndrome patients.

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A comparison of quality of life in adolescents with epilepsy or asthma using the Short-Form Health Survey (SF-36)

Epilepsy Research ◽

10.1016/j.eplepsyres.2012.03.017 ◽

2012 ◽

Vol 101 (1-2) ◽

pp. 157-165 ◽

Cited By ~ 25

Author(s):

Ji Wang ◽

Yi Wang ◽

Li Bo Wang ◽

Hui Xu ◽

Xiao-lei Zhang

Keyword(s):

Quality Of Life ◽

Health Survey ◽

Short Form ◽

Short Form Health Survey ◽

Form Health ◽

Sf 36 ◽

Short Form Health

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Quality of Life and Mental Health in Brazilian Women Treated for Invasive Carcinoma of the Cervix

International Journal of Gynecological Cancer ◽

10.1097/igc.0000000000000106 ◽

2014 ◽

Vol 24 (4) ◽

pp. 794-799

Author(s):

Gabriela A. Caixeta ◽

Emma E. C. Castro ◽

Agnaldo L. Silva-Filho ◽

Fernando M. Reis ◽

José R. Cunha-Melo ◽

...

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Life Events ◽

General Health ◽

Invasive Carcinoma ◽

Short Form ◽

General Health Questionnaire ◽

Control Group ◽

History Of

ObjectiveThe objective of this study was to compare the quality of life (QOL) and mental health (MH) of women surviving at least 2 years after treatment for invasive carcinoma of the cervix by radical hysterectomy (RH), chemotherapy and/or radiotherapy, or by surgery followed by adjuvant therapy (RH + chemotherapy and/or radiotherapy). The QOL/MH of a control group of women with no history of malignancy was also assessed for comparison with the treated groups.MethodsThe levels of QOL and MH were assessed in 114 Brazilian women (57 patients with an average of 4 years since treatment completion and 57 control subjects). The 36-item Medical Outcomes Study Short-Form Health Survey, the State-Trait Anxiety Inventory, the 12-item General Health Questionnaire, the Life Events Inventory, and a general survey for the assessment of sociodemographic data were applied to each participant of the study.ResultsNo differences were noted among the 3 treatment groups or between these and the control group concerning the levels of QOL (either physical or MH aspects), anxiety, general health, or life events. However, lower levels of anxiety were detected in cancer survivors when compared with the control group (P = 0.035).ConclusionsAfter at least 2 years, the QOL and the MH of Brazilian women treated for invasive carcinoma of the cervix were similar to those of women without malignancy and were not affected by the modality of treatment.

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