scholarly journals Practical implementation issues and challenges for biobanks in the return of individual research results

2012 ◽  
Vol 14 (4) ◽  
pp. 478-483 ◽  
Author(s):  
Marianna J. Bledsoe ◽  
William E. Grizzle ◽  
Brian J. Clark ◽  
Nikolajs Zeps
Keyword(s):  
Practical Implementation ◽  
Research Results ◽  
Individual Research Results

scholarly journals Return of Individual Research Results

2020 ◽  
Vol 190 (5) ◽  
pp. 918-933
Author(s):  
Mark E. Sobel ◽  
Jennifer C. Dreyfus ◽  
Kelsey Dillehay McKillip ◽  
Christi Kolarcik ◽  
William A. Muller ◽  
...  
Keyword(s):  
Research Results ◽  
Individual Research Results

scholarly journals Returning Individual Research Results: Development of a Cancer Genetics Education and Risk Communication Protocol

2010 ◽  
Vol 5 (3) ◽  
pp. 17-30 ◽  
Author(s):  
J. Scott Roberts ◽  
David I. Shalowitz ◽  
Kurt D. Christensen ◽  
Jessica N. Everett ◽  
Scott Y. H. Kim ◽  
...  
Keyword(s):  
Risk Communication ◽  
Communication Protocol ◽  
Cancer Genetics ◽  
Genetics Education ◽  
Research Results ◽  
Individual Research Results

scholarly journals An implementation framework for the feedback of individual research results and incidental findings in research

2014 ◽  
Vol 15 (1) ◽  
Author(s):  
Adrian Thorogood ◽  
Yann Joly ◽  
Bartha Maria Knoppers ◽  
Tommy Nilsson ◽  
Peter Metrakos ◽  
...  
Keyword(s):  
Incidental Findings ◽  
Implementation Framework ◽  
Research Results ◽  
Individual Research Results

scholarly journals Understanding Incidental Findings in the Context of Genetics and Genomics

2008 ◽  
Vol 36 (2) ◽  
pp. 280-285 ◽  
Author(s):  
Mildred K. Cho
Keyword(s):  
Incidental Findings ◽  
Human Subjects ◽  
Association Studies ◽  
Human Migration ◽  
Genomic Research ◽  
Human Subjects Research ◽  
Research Results ◽  
Yield Information ◽  
Individual Research Results ◽  
Genetics And Genomics

Human genetic and genomic research can yield information that may be of clinical relevance to the individuals who participate as subjects of the research. However, no consensus exists as yet on the responsibilities of researchers to disclose individual research results to participants in human subjects research. “Genetic and genomic research” on humans varies widely, including association studies, examination of allele frequencies, and studies of natural selection, human migration, and genetic variation. For the purposes of this article, it is defined broadly to include analysis of DNA collected from humans that has implications for human health (even if the purpose of the study is not medical). This paper addresses both research results of individual research participants that may be an intended product of the research, as well as unanticipated, “incidental” findings.

Pediatric Research and the Return of Individual Research Results

2011 ◽  
Vol 39 (4) ◽  
pp. 593-604 ◽  
Author(s):  
Denise Avard ◽  
Karine Sénécal ◽  
Parvaz Madadi ◽  
Daniel Sinnett
Keyword(s):  
Conflict Of Interest ◽  
Ethical Issues ◽  
Critical Role ◽  
Pediatric Research ◽  
Best Interest ◽  
Vulnerable Group ◽  
Potential Conflict ◽  
Research Results ◽  
Ethical Duty ◽  
Individual Research Results

As a matter of respect for the person, it is considered an ethical duty to offer to return research results to participants where appropriate. Nevertheless, the return of individual research results to participants raises many socio-ethical issues and greater challenges when the participant is a child. This discrepancy arises partly because the return of individual pediatric research results entails a tripartite relationship between researcher, child, and parent(s) and is embroiled in numerous considerations (e.g., acting in the best interest of the child, respect for the person, and respect for the autonomy of the parents/child).Extra caution is required in the pediatric research context because children cannot generally decide (consent) whether they want to be informed of their own research results or whether the results should be disclosed to parents. Children have long been considered a special and vulnerable group, and their parents, as guardians, play a critical role in the consent process. However, with regards to the return of individual research results, this might pose a potential conflict of interest between the current or future desires of the child and those of the parents.

P4-080: DISCLOSURE OF INDIVIDUAL RESEARCH RESULTS TO COGNITIVELY NORMAL RESEARCH PARTICIPANTS

2014 ◽  
Vol 10 ◽  
pp. P812-P812 ◽  
Author(s):  
Jonathan Gooblar ◽  
Catherine M. Roe ◽  
Natalie J. Selsor ◽  
Matthew Gabel ◽  
John Morris
Keyword(s):  
Cognitively Normal ◽  
Research Results ◽  
Research Participants ◽  
Individual Research Results

scholarly journals Pedagógusminősítés a gyakorló minősítési szakértő szemével

2019 ◽  
Vol 6 (3) ◽  
Author(s):  
Ilona Hafner
Keyword(s):  
Public Education ◽  
Education System ◽  
Practical Implementation ◽  
Quality Factors ◽  
Research Results ◽  
The People ◽  
Career Model ◽  
Life Career

2013. szeptember elsején bevezetésre kerülő Pedagógus Életpályamodell jelentős változásokat hozott a köznevelésben. A bemutatott kutatás a minősítési rendszer gyakorlatban történő megvalósulására, ennek a változásnak az elemzésére irányul, a leginkább érintettek véleménye alapján. A szakértői munka során szerzett tapasztalatokat, kiegészíti a kutatás során kapott adatokkal. Feltárásra kerülnek azon tényezők is, amelyek a minősítő vizsgák és minősítési eljárások során még hatékonyabbá tehetik a folyamatot.  A vizsgálati eredmények és szakértőként szerzett tapasztalatok alapján megállapítható, a bevezetett oktatási változások kiemelten kezelik a pedagógus hivatás megerősítését, általa erősítve az oktatási rendszer valamennyi minőségi tényezőjét.The Teachers’ Life Career Model, which was introduced on September 1st 2013, brought about considerable changes in public education. The research introduced here was aimed at the practical implementation of the system and the analyzation of the changes, building on the opinions of the people most concerned. My experiences gained during expert work were completed with the data gained during the research. The paper reveals the factors that might make the process even more effective in terms of the qualification exams and the qualification processes. According to the research results and the experiences gained as an expert, I can state that the changes introduced in public education represent outstanding endeavours to strengthen teachers’ vocation, improving by this all the quality factors of the education system.    

Return of individual research results: Policies and experiences of cancer genomic researchers.

2014 ◽  
Vol 32 (15_suppl) ◽  
pp. 11025-11025
Author(s):  
Lynn G. Dressler ◽  
Nikolajs Zeps ◽  
Allison Mary Deal ◽  
Janell Markey ◽  
Bartha Knoppers
Keyword(s):  
Research Results ◽  
Individual Research Results
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