scholarly journals Direct-to-patient disclosure of results of mismatch repair screening for Lynch syndrome via electronic personal health record: a feasibility study

2014 ◽  
Vol 16 (11) ◽  
pp. 854-861 ◽  
Author(s):  
Michael J. Hall ◽  
Meagan M. Herda ◽  
Elizabeth A. Handorf ◽  
Christina C. Rybak ◽  
Cindy A. Keleher ◽  
...  
Keyword(s):  
Lynch Syndrome ◽  
Mismatch Repair ◽  
Feasibility Study ◽  
Personal Health Record ◽  
Personal Health ◽  
Health Record ◽  
Electronic Personal Health Record ◽  
Disclosure Of Results ◽  
Patient Disclosure

scholarly journals Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Esmaeel Toni ◽  
Habibollah Pirnejad ◽  
Khadijeh Makhdoomi ◽  
Azam Mivefroshan ◽  
Zahra Niazkhani
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Personal Health Record ◽  
Self Management ◽  
Personal Health ◽  
Health Record ◽  
User Centered Design ◽  
Electronic Personal Health Record

Abstract Background To improve chronic disease outcomes, self-management is an effective strategy. An electronic personal health record (ePHR) is a promising tool with the potential to support chronic patient’s education, counseling, and self-management. Fitting ePHRs within the daily practices of chronic care providers and chronic patients requires user-centered design approaches. We aimed to understand users’ needs and requirements in chronic kidney disease (CKD) care to consider in the design of an ePHR to facilitate its implementation, adoption, and use. Methods A qualitative study was conducted in a major Iranian nephrology center including inpatient and outpatient settings in 2019. We conducted 28 semi-structured interviews with CKD patients, nurses, and adult nephrologists. To confirm or modify the requirements extracted from the interviews, a focus group was also held. Data were analyzed to extract especially those requirements that can facilitate implementation, adoption, and sustained use based on the PHR adoption model and the unified theory of acceptance and use of technology. Results Participants requested an ePHR that provides access to up to date patient information, facilitates patient-provider communication, and increases awareness about patient individualized conditions. Participants expected a system that is able to cater to low patient e-health literacy and high provider workload. They requested the ePHR to include purposeful documentation of medical history, diagnostic and therapeutic procedures, tailored educational content, and scheduled care reminders. Messaging function, tailored educational content to individual patients’ conditions, and controlled access to information were highly valued in order to facilitate its implementation, adoption, and use. Conclusions We focused on the ePHR’s content and functionalities in the face of facilitators and/or barriers envisioned for its adoption in nephrology care. Designers and implementers should value CKD patients’ needs and requirements for self-management such as providing personalized education and counseling (on the basis of their condition and risk factors), health literacy, and disease progression levels. The socio-technical aspects of care also need further attention to facilitate ePHR’s adoption.

scholarly journals The Usability of Electronic Personal Health Record Systems for an Underserved Adult Population

2014 ◽  
Vol 57 (3) ◽  
pp. 491-506 ◽  
Author(s):  
Sara J. Czaja ◽  
Christina Zarcadoolas ◽  
Wendy L. Vaughon ◽  
Chin Chin Lee ◽  
Maxine L. Rockoff ◽  
...  
Keyword(s):  
Adult Population ◽  
Personal Health Record ◽  
Personal Health ◽  
Health Record ◽  
Electronic Personal Health Record

scholarly journals User-centered design and enhancement of an electronic personal health record to support survivors of pediatric cancers

2019 ◽  
Vol 28 (8) ◽  
pp. 3905-3914 ◽  
Author(s):  
Jordan Gilleland Marchak ◽  
Brooke Cherven ◽  
Rebecca Williamson Lewis ◽  
Paula Edwards ◽  
Lillian R. Meacham ◽  
...  
Keyword(s):  
Personal Health Record ◽  
Personal Health ◽  
Health Record ◽  
User Centered Design ◽  
Electronic Personal Health Record ◽  
Pediatric Cancers ◽  
User Centered

Impact of a Personal Health Record Intervention upon Surveillance Among Colorectal Cancer Survivors: Feasibility Study (Preprint)

2021 ◽  
Author(s):  
Eric Vachon ◽  
Bruce W. Robb ◽  
David A. Haggstrom
Keyword(s):  
Colorectal Cancer ◽  
Feasibility Study ◽  
Self Efficacy ◽  
Personal Health Record ◽  
Personal Health ◽  
Health Record ◽  
Post Intervention ◽  
Patient Centered ◽  
Patient Beliefs

BACKGROUND There are currently an estimated 1.5 million individuals living in the United States (US) with colorectal cancer (CRC), and although the five-year survival rate has increased, survivors are at risk for recurrence, particularly within the first 2-3 post-treatment. National guidelines recommend continued surveillance post-resection, in order to identify recurrence early on. Adherence among survivors ranges from 49%-94%. Novel interventions are needed to increase CRC survivors’ knowledge and confidence in managing their cancer and thus increase adherence to follow-up surveillance. OBJECTIVE The objective of this study was to develop and test the feasibility and efficacy of a web-based personal health record (PHR) to increase surveillance adherence among CRC survivors, with patient beliefs about surveillance as secondary outcomes. METHODS A pre- and post-intervention feasibility trial was conducted testing the efficacy of the Colorectal Cancer Survivor (CRCS)-PHR, which had been previously developed using an iterative, user-centered design approach. The CRCS-PHR includes surveillance guidelines, treatment tracking, potential treatment toxicities, as well as a journaling tab and communities to interact with other CRC survivors. A total of 28 stage I-III CRC survivors (9 colon, 18 rectal, 1 unknown) were recruited from an academic medical center in the Midwest US. At enrollment, patient demographics and cancer characteristics were gathered via medical record audit. Following enrollment, patients completed surveys at baseline and 6 months post-intervention asking about adherence to colonoscopy, computed tomography (CT) scan, and carcinoembryonic antigen (CEA) and beliefs about surveillance (barriers, benefits, self-efficacy, and knowledge). Paired t-test analyses were used to compare pre- and post-intervention ratings for each of the four patient beliefs categories and surveillance adherence. RESULTS The average age of the sample was 58 years old, with 57% males and the majority being married and employed full time. We observed a significant increase in adherence to colonoscopy (pre: 52% vs. post: 86%, p<.01) and CEA (67% vs. 95%, p=.01), as well as a slight increase in CT scans (67% vs. 84%, p=.1). The only significant impact on secondary outcome (patient beliefs) was benefits of CEA test (p=.04), as most of the beliefs were high at baseline. CONCLUSIONS This feasibility study lays the groundwork for continued development of the CRCS-PHR to increase CRC surveillance. Patient-centered technologies, such as the CRCS-PHR, represent an important potential approach to improving the receipt of guideline-concordant care and follow-up surveillance, not just for CRC survivors. Researchers should continue to develop patient-centered health technologies with clinician implementation in mind to increase patient self-efficacy and surveillance adherence.

Application of the Relationship-Based Care Model to Improve Health Outcomes via the Electronic Personal Health Record

2012 ◽  
Vol 18 (1) ◽  
pp. 30-33 ◽  
Author(s):  
Toni Hebda ◽  
Carol Patton
Keyword(s):  
Health Care ◽  
Health Care Delivery ◽  
Interprofessional Collaboration ◽  
Care Delivery ◽  
Personal Health Record ◽  
Personal Health ◽  
Health Record ◽  
Electronic Personal Health Record ◽  
Relationship Based Care ◽  
The Relationship

This article examines the metaparadigm of the relationship-based care (RBC) model in health care delivery, delineates selected characteristics of the electronic personal health record (ePHR), provides an example of how RBC applies to integration of the ePHR in the health care delivery setting, discusses the utility of RBC for interprofessional collaboration using the ePHR, and examines how application of RBC in conjunction with the ePHR has the potential to significantly improve patient outcomes.

Sign in / Sign up

Export Citation Format

Share Document