Steering towards collaborative assessment: a qualitative study of parents’ experiences of evidence-based assessment practices for their child with cerebral palsy

English language learning (ELL) children suspected of having specific-language impairment (SLI) should be assessed using the same methods as monolingual English-speaking children born and raised in the United States. In an effort to reduce over- and under-identification of ELL children as SLI, speech-language pathologists (SLP) must employ nonbiased assessment practices. This article presents several evidence-based, nonstandarized assessment practices SLPs can implement in place of standardized tools. As the number of ELL children SLPs come in contact with increases, the need for well-trained and knowledgeable SLPs grows. The goal of the authors is to present several well-establish, evidence-based assessment methods for assessing ELL children suspected of SLI.

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«Jeg forstår henne bedre nå» – En kvalitativ studie av foreldres opplevelse av relasjonen til egne barn etter emosjonsfokusert foreldreveiledning [“I understand her better now” – A qualitative study of parents’ experiences of their relationship to their children after Emotion-Focused Family Therapy (EFFT)]

Scandinavian Psychologist ◽

10.15714/scandpsychol.4.e11 ◽

2017 ◽

Vol 4 ◽

Cited By ~ 1

Author(s):

Hilde Bøyum ◽

◽

Signe Hjelen Stige ◽

Keyword(s):

Family Therapy ◽

Qualitative Study ◽

Parents Experiences

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Faculty Opinions recommendation of Undergraduate medical student perceptions and use of Evidence Based Medicine: a qualitative study.

Faculty Opinions – Post-Publication Peer Review of the Biomedical Literature ◽

10.3410/f.9113958.9697057 ◽

2011 ◽

Author(s):

Chad Whelan ◽

Elizabeth Schulwolf

Keyword(s):

Medical Student ◽

Qualitative Study ◽

Student Perceptions ◽

Evidence Based Medicine ◽

Undergraduate Medical Student ◽

Evidence Based ◽

Based Medicine

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O-156 The Experiences Of Mothers Who Have Children With Cerebral Palsy: A Qualitative Study: Abstract O-156 Table 1

Archives of Disease in Childhood ◽

10.1136/archdischild-2014-307384.223 ◽

2014 ◽

Vol 99 (Suppl 2) ◽

pp. A83.3-A84

Author(s):

M Kurtuncu ◽

L Utas Akhan ◽

H Yildiz ◽

B Demirbag

Keyword(s):

Cerebral Palsy ◽

Qualitative Study ◽

Children With Cerebral Palsy

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Navigating being a young adult with cerebral palsy: a qualitative study

International Journal of Adolescent Medicine and Health ◽

10.1515/ijamh-2020-0039 ◽

2020 ◽

Vol 0 (0) ◽

Author(s):

Gitte Normann ◽

Kirsten Arntz Boisen ◽

Peter Uldall ◽

Anne Brødsgaard

Keyword(s):

Young Adults ◽

Cerebral Palsy ◽

Young Adult ◽

Qualitative Study ◽

Healthcare System ◽

Young Adulthood ◽

Educational Background ◽

Pediatric Care ◽

Healthcare Needs ◽

New Challenges

AbstractObjectivesYoung adults with cerebral palsy (CP) face potential challenges. The transition to young adulthood is characterized by significant changes in roles and responsibilities. Furthermore, young adults with chronic conditions face a transfer from pediatric care to adult healthcare. This study explores how living with CP affects young adults in general, and specifically which psychosocial, medical and healthcare needs are particularly important during this phase of life.MethodsA qualitative study with data from individual, semi-structured, in-depth interviews with six young adults with CP (ages 21–31 years) were transcribed verbatim and analyzed. The participants were selected to provide a maximum variation in age, gender, Gross Motor Function Classification System score and educational background. A descriptive thematic analysis was used to explore patterns and identify themes.ResultsThree themes were identified: “Being a Young Adult”, “Development in Physical Disability and New Challenges in Adulthood” and “Navigating the Healthcare System”. The three themes emerged from 15 sub-themes. Our findings emphasized that young adults with CP faced psychosocial challenges in social relationships, participation in education and work settings and striving towards independence. The transition to young adulthood led to a series of new challenges that the young adults were not prepared for. Medical challenges included managing CP-related physical and cognitive symptoms and navigating adult health care services, where new physicians with insufficient knowledge regarding CP were encountered.ConclusionThe young adults with CP were not prepared for the challenges and changes they faced during their transition into adulthood. They felt that they had been abandoned by the healthcare system and lacked a medical home. Better transitional care is urgently needed to prepare them for the challenges in young adulthood.

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