Navigating being a young adult with cerebral palsy: a qualitative study

2020 ◽  
Vol 0 (0) ◽  
Author(s):  
Gitte Normann ◽  
Kirsten Arntz Boisen ◽  
Peter Uldall ◽  
Anne Brødsgaard
Keyword(s):  
Young Adults ◽  
Cerebral Palsy ◽  
Young Adult ◽  
Qualitative Study ◽  
Healthcare System ◽  
Young Adulthood ◽  
Educational Background ◽  
Pediatric Care ◽  
Healthcare Needs ◽  
New Challenges

AbstractObjectivesYoung adults with cerebral palsy (CP) face potential challenges. The transition to young adulthood is characterized by significant changes in roles and responsibilities. Furthermore, young adults with chronic conditions face a transfer from pediatric care to adult healthcare. This study explores how living with CP affects young adults in general, and specifically which psychosocial, medical and healthcare needs are particularly important during this phase of life.MethodsA qualitative study with data from individual, semi-structured, in-depth interviews with six young adults with CP (ages 21–31 years) were transcribed verbatim and analyzed. The participants were selected to provide a maximum variation in age, gender, Gross Motor Function Classification System score and educational background. A descriptive thematic analysis was used to explore patterns and identify themes.ResultsThree themes were identified: “Being a Young Adult”, “Development in Physical Disability and New Challenges in Adulthood” and “Navigating the Healthcare System”. The three themes emerged from 15 sub-themes. Our findings emphasized that young adults with CP faced psychosocial challenges in social relationships, participation in education and work settings and striving towards independence. The transition to young adulthood led to a series of new challenges that the young adults were not prepared for. Medical challenges included managing CP-related physical and cognitive symptoms and navigating adult health care services, where new physicians with insufficient knowledge regarding CP were encountered.ConclusionThe young adults with CP were not prepared for the challenges and changes they faced during their transition into adulthood. They felt that they had been abandoned by the healthcare system and lacked a medical home. Better transitional care is urgently needed to prepare them for the challenges in young adulthood.

Adolescent and Young Adult Cancer Survivors' Experiences of the Healthcare System: A Qualitative Study

2018 ◽  
Vol 7 (1) ◽  
pp. 88-96 ◽  
Author(s):  
Elizabeth A. May ◽  
Brittany C. McGill ◽  
Eden G. Robertson ◽  
Antoinette Anazodo ◽  
Claire E. Wakefield ◽  
...  
Keyword(s):  
Young Adult ◽  
Qualitative Study ◽  
Cancer Survivors ◽  
Healthcare System ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
System A ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer

scholarly journals Childhood Depressive Symptoms Predict Psychiatric Problems in Young Adults

2000 ◽  
Vol 45 (5) ◽  
pp. 465-470 ◽  
Author(s):  
Eeva T Aronen ◽  
Mika Soininen
Keyword(s):  
Young Adults ◽  
Depressive Symptoms ◽  
Young Adult ◽  
Young Adulthood ◽  
Screening Tool ◽  
Adaptive Functioning ◽  
Psychiatric Symptoms ◽  
Self Esteem ◽  
Self Report ◽  
Psychiatric Problems

Objective: To evaluate the predictive value of childhood depressive symptoms for psychiatric symptoms, adaptive functioning, and self-performance in young adults. Method: The study sample consisted of 111 young adults born during 1975–1976 in the Helsinki region. The young adults were assessed in childhood (10 to 11 years of age) using the Children's Depression Inventory (CDI) and at the age of 20 to 21 years using Achenbach's Young Adult Self Report (YASR), the Beck Depression Inventory (BDI), and the Wallston Self-Performance Survey. Results: Self-reported depressive symptoms in childhood predicted psychiatric symptoms (especially aggression), poor adaptive functioning, and low self-esteem in young adulthood. Conclusions: Depressive symptoms in children should be addressed to prevent later psychiatric problems. The CDI may be a measure of nonspecific psychopathology rather than of pure depression—thus, it may be a good screening tool for child populations.

Abstract MP21: Achieving Cardiovascular Health in Young Adulthood - Do Adolescent Factors Matter?

Circulation ◽  
2015 ◽  
Vol 131 (suppl_1) ◽  
Author(s):  
Holly C Gooding ◽  
Carly Milliren ◽  
Christina M Shay ◽  
Tracy K Richmond ◽  
Alison E Field ◽  
...  
Keyword(s):  
Physical Activity ◽  
Blood Pressure ◽  
Young Adults ◽  
Blood Glucose ◽  
Young Adult ◽  
Young Adulthood ◽  
Cardiovascular Health ◽  
Fasting Blood Glucose ◽  
Healthy Weight ◽  
Diet And Physical Activity

Introduction: Adults who reach middle age with optimal levels of three physiologic factors – blood pressure, cholesterol, and blood glucose – have lower rates of CVD mortality compared to those with one or more of these risk factors in the non-optimal range. The American Heart Association has identified four healthy lifestyle components – BMI, smoking, diet, and physical activity – important for preserving optimal cardiovascular health as people age. However, which lifestyle components in adolescence are most strongly associated with physiologic markers of cardiovascular health in adulthood is unclear. The purpose of this study was to quantify associations between lifestyle components measured in adolescence and optimal physiologic cardiovascular health in young adulthood. Methods: Analyses included 9,697 young adults, age 24-32 years in 2007-2008, who participated in Wave IV of the National Longitudinal Study of Adolescent Health. We defined optimal physiologic cardiovascular heath as untreated blood pressure <120/80 mmHg, untreated fasting blood glucose <100 mg/dL and hemoglobin A1C < 5.7%, untreated total cholesterol in the bottom 7 (women) or 6 (men) deciles for the study population, and absence of diabetes or CVD as measured at Wave IV. We used logistic regression models to estimate the odds of having optimal physiologic cardiovascular health in young adulthood according to BMI category, smoking status, and physical activity patterns measured during Waves I and II when participants were ages 11-20 years. Dietary data were not available. Models were adjusted for age, sex, race, educational attainment, and income in young adulthood. Results: Few young adults (16%, 1,592 of 9,697) had optimal physiologic cardiovascular health. Young adults who had been normal-weighted in adolescence were more likely to have optimal physiologic cardiovascular health (18.4%, 1,382 of 7,206) compared to those who had been overweight (9.4%, 142 of 1,429) or obese (6.9%, 68 of 1,062). In models adjusted for young adult sociodemographic factors, participants who had been overweight or obese as adolescents were less than half as likely as those who had been normal-weighted to have optimal physiologic cardiovascular health in young adulthood (overweight odds ratio (OR) 0.43, 95% confidence interval (CI) 0.35-0.61; obese OR 0.40, 95% CI 0.28-0.57). Adolescent tobacco smoking and physical activity were not associated with young adult cardiovascular health. Conclusions: Maintaining a healthy weight in adolescence may be the most important lifestyle factor for reaching young adulthood with optimal physiologic cardiovascular health. Overweight and obese adolescents should be encouraged to achieve a healthy weight through adherence to diet and physical activity goals.

A Qualitative Study of Young Adult Experiences in the Bariatric Healthcare System: Psychosocial Challenges and Developmental Difficulties

2017 ◽  
Vol 41 (4) ◽  
pp. 344-350 ◽  
Author(s):  
Marlene Taube-Schiff ◽  
Shira Yufe ◽  
Patti Kastanias ◽  
Mary Weiland ◽  
Sanjeev Sockalingam
Keyword(s):  
Young Adult ◽  
Qualitative Study ◽  
Healthcare System ◽  
Psychosocial Challenges

Association of BMI Changes Between Adolescence and Young Adulthood With Smoking Cessation

2018 ◽  
Vol 33 (3) ◽  
pp. 358-362
Author(s):  
Jerome F. Walker ◽  
Paul D. Loprinzi
Keyword(s):  
High School ◽  
Smoking Cessation ◽  
Young Adults ◽  
Weight Gain ◽  
Young Adult ◽  
Young Adulthood ◽  
Smoking Status ◽  
High School Education ◽  
Quit Smoking ◽  
Bmi Trajectories

Purpose: Weight gain frequently accompanies smoking cessation. This study examined if increasing body mass index (BMI) during the early years of smoking influences quitting by young adulthood. Design: Longitudinal, observational study using in-home interview data. Setting: National Longitudinal Study of Adolescent and Adult Health (Add Health) 1994 to 2008. Subjects: Nine hundred forty-nine adolescent smokers (12-19 years) followed into young adulthood (20-32 years) through 4 waves of in-home interviews. Measures: Outcome variable: Young adult smoking status (yes or no) reported at in-home interviews. Factors: Gender and 4 longitudinal adolescent/young adult BMI trajectories—normal/normal, normal/overweight, normal/obese, and overweight/obese. Covariates: Race-ethnicity, education, household income, and recent quit attempt in adolescence. Analysis: Binary logistic regression analysis. Results: Overall, the rate at which young adults quit smoking was not significantly different based on gender. However, longitudinal changes in BMI trajectory and gender interact to influence young adult smoking status. Women having normal/overweight and normal/obese BMI trajectories were less likely to quit smoking than men. Odds that young adults having some college or post-high school education quit smoking were greater than those with high school education or less. Conclusion: At a minimum, providing direct information regarding anticipated weight changes after quitting is indicated in smoking cessation intervention, in addition to strategies to mitigate postcessation weight gain. Faced with weight gain, younger smokers, particularly women, may be more resistant to quitting smoking.

scholarly journals Understanding the relationship transitions and associated end of life clinical needs of young adults with life-limiting illnesses: A triangulated longitudinal qualitative study

2016 ◽  
Vol 4 ◽  
pp. 205031211666642 ◽  
Author(s):  
Bridget Johnston ◽  
Divya Jindal-Snape ◽  
Jan Pringle ◽  
Libby Gold ◽  
Jayne Grant ◽  
...  
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Qualitative Study ◽  
End Of Life ◽  
Thematic Analysis ◽  
Significant Others ◽  
Evidence Base ◽  
Clear Understanding ◽  
Structured Interviews ◽  
Relationship Transitions

Background: Care of young adults with life-limiting illnesses can often be complex due to the fact that they are growing and developing within the continuing presence of their illness. There is little research conducted nationally and internationally, which has examined the life issues of young adults or taken a longitudinal approach to understand such issues over a period of time. Aim: To gain clear understanding of one particular and pertinent life issue—relationship transition—occurring in the context of being a young adult with a life-limiting illness and the clinical needs arising from this. Design: This was a triangulated, longitudinal, qualitative study involving young adults with life-limiting illnesses and their significant others, namely, family members and healthcare professionals. Semi-structured interviews were conducted with participants and analysed using thematic analysis. Clinical case note reviews were also carried out. Setting/participants: A total of 12 young adults (aged between 17 and 23 years) from 2 hospices and 22 nominated significant others participated in a total of 58 interviews. Results: Thematic analysis revealed 4 main themes and 11 subthemes. The main themes were ‘Dependence dichotomy’, ‘In it together’, ‘Biographical uncertainty’, and ‘Conserving integrity’. These themes helped to establish the nature of relationship transitions that the young adult participants from the study experienced and additionally allowed insight into their possible needs at their end of life. Conclusion: This study has identified the nature of relationship transitions pertinent to young adults and has highlighted associated end of life clinical needs. This study can influence further research into the transitions and end of life needs of this particular patient group receiving palliative care, while informing the lacking evidence base which exists internationally.

scholarly journals You’re Still so Vain; Changes in Narcissism from Young Adulthood to Middle Age

2019 ◽  
Author(s):  
Eunike Wetzel ◽  
Emily Grijalva ◽  
Richard Robins ◽  
Brent Roberts
Keyword(s):  
Young Adults ◽  
Young Adult ◽  
Longitudinal Studies ◽  
Young Adulthood ◽  
Middle Age ◽  
Life Experiences ◽  
Rank Order ◽  
Continuity And Change

To date, there have been no long-term longitudinal studies of continuity and change in narcissism. This study investigated rank-order consistency and mean-level changes in overall narcissism and three of its facets (leadership, vanity, entitlement) over a 23-year period spanning young adulthood (Mage=18; N = 486) to midlife (Mage=41; N = 237). We also investigated whether life experiences predicted changes in narcissism from young adulthood to midlife, and whether young adult narcissism predicted life experiences assessed in midlife. Narcissism and its facets showed strong rank-order consistency from age 18 to 41, with latent correlations ranging from .61 to .85. We found mean-level decreases in overall narcissism (d = –0.79) and all three facets, namely leadership (d = –0.67), vanity (d = –0.46), and entitlement (d = –0.82). Participants who were in supervisory positions showed smaller decreases in leadership, and participants who experienced more unstable relationships and who were physically healthier showed smaller decreases in vanity from young adulthood to middle age. Analyses of the long-term correlates of narcissism showed that young adults with higher narcissism and leadership levels were more likely to be in supervisory positions in middle age. Young adults with higher vanity levels had fewer children and were more likely to divorce by middle age. Together, the findings suggest that people tend to become less narcissistic from young adulthood to middle age, and the magnitude of this decline is related to the particular career and family pathways a person pursues during this stage of life.

scholarly journals Physical Activity Levels for Girls and Young Adult Women versus Boys and Young Adult Men in Spain: A Gender Gap Analysis

2020 ◽  
Vol 12 (15) ◽  
pp. 6265
Author(s):  
Xian Mayo ◽  
Antonio Luque-Casado ◽  
Alfonso Jimenez ◽  
Fernando del Villar
Keyword(s):  
Physical Activity ◽  
Young Adults ◽  
Young Adult ◽  
Young Adulthood ◽  
Young Women ◽  
Physical Inactivity ◽  
Adolescents And Young Adults ◽  
Adult Men ◽  
Adolescence And Young Adulthood ◽  
Age Range

Despite that the health benefits of physical activity (PA) are clear, during the last years, a noticeable plateau or slight increase in physical inactivity levels in Spanish adolescents and young adults has been reported. In addition, there seems to be a progressive reduction of the total PA performed with age in both adolescent and young women as well as adult men. We aimed to analyze these changes with age in moderate-to-vigorous physical activity (MVPA) in a sample of Spanish adolescents and young adults within the age range of 15–24 years old (n = 7827), considering the gender and using the short form of the International Physical Activity Questionnaire. For that, we implemented a two-way analysis of variance (ANOVA) considering both the gender and the age group surveyed. Generally, our findings showed a reduction in the daily MVPA performed from adolescence to young adulthood in Spaniards. Within these reductions, girls reduce their PA levels at a different age and pace in adolescence and young adulthood in comparison to boys. Though girls were less active than boys in the 15–18 year age range, these differences were no longer significant at older ages. Our results point out the necessity of implementing different policy approaches based on gender (i.e., for girls and young women), since reductions in the MVPA performed occur at particular ages and paces in comparison to boys and young men. This difference indicates that the traditional approach during adolescence and young adulthood is inadequate for tackling physical inactivity without considering the population’s gender.

Sign in / Sign up

Export Citation Format

Share Document