Online Health Communities and Chronic Disease Self-Management

2016 ◽  
Vol 32 (3) ◽  
pp. 269-278 ◽  
Author(s):  
Erin Willis ◽  
Marla B. Royne
2018 ◽  
Vol 28 (13) ◽  
pp. 2081-2093 ◽  
Author(s):  
Erin Willis

Many patients seek and share information online regarding health, especially those diagnosed with chronic disease. The social cognitive theory is used as the theoretical framework for analyzing how members learn within online health communities. This study conducted in-depth interviews with members from online health communities related to arthritis to understand their motivation for participating in the community and how the content exchanged therein is applied to managing their disease. Four themes were identified: processing disease diagnosis, collaborating to solve problem, recognizing personal limitations, and appreciating that health is variable. Topical communication within the online communities was often tailored to members’ situational needs with the ultimate goal being better self-management. The findings demonstrate the online health community is an environment that invites members who share common characteristics to engage with one another and with the shared content for the purpose of learning arthritis self-management strategies. Theoretical and practical implications are discussed.


2020 ◽  
Author(s):  
Jing Min

BACKGROUND Online health communities (OHCs), with a wealth of multi-source information exchange, have provided a convenient way for diabetes patients to actively involve in their self-management and been widely used. Information exchange assists patients with health-related decisions to actively engage in their care, and reduce the occurrence of potential complications of diabetes. However, there has been relatively little research on the information exchange behaviors and its effect on health on professional online medical platforms—OHCs. OBJECTIVE Using a social exchange theory, we focus on two sources of information (doctors and patients) to investigate information exchange behaviors and moderating effects of information price. METHODS The logistic and ordinal regression models are used to get our empirical results by collecting a rich dataset from the biggest OHC in China. RESULTS We found that first information sharing from doctors (β=0.014, p<0.001) and other patients (β=0.009, p<0.01) can promote the patient’s information sharing behavior. Second, the moderating effects of information price are heterogeneous and change with the exchange participants (β=-0.005, p<0.001; β=0.003, p<0.05). Third, rich information exchange supports patients’ self-management and improves their health status (β=0.009, p<0.001; β=0.018, p<0.003). CONCLUSIONS This study is among the first that tests the information exchange behavior and consequence for diabetes patients in OHCs and examines the moderating effects of information price. Our present study produces several insights, which have implications for social exchange, patient behavior, online health communities, and information technology in diabetes self-management literature. By understanding the online information exchange behaviors of doctor-patient and patient-patient, we are able to understand how to reach people to receive and deliver diabetes information through these professional OHCs.


Author(s):  
Zhihong Chen ◽  
Chaochuang Zhang ◽  
Guanhua Fan

Objective: The peer interaction–based online model has been influential in the recent development of diabetes management. This model “extends and innovates” the traditional mode of doctor–patient guidance, transforming it into a mode in which both doctor–patient guidance and patient–patient interaction coexist; this new mode has the added advantage of offering “extended continual intervention.” This study contributes to research on extending diabetes management models by investigating how patients with diabetes or prediabetes interact in online health communities, focusing on the interrelationship between self-efficacy characteristics and online participation during patient–patient interactions. Methods: In this cross-sectional study, participants with diabetes of various severities completed an electronic questionnaire, which was formulated with a revised classical scale. The questionnaire was disseminated through diabetes online health communities. Its content covered the respondent’s general condition, self-evaluation of their self-efficacy, and participation in online health communities, specifically with respect to factors such as the time spent in online information each day, the number of groups joined, and the extent of interaction in diabetes online health communities, etc. The main observation indicators were the participants’ self-efficacy, their extent of online participation, and the characteristics of online health communities. Descriptive statistics, chi-square test, linear trend estimation, and ordinal logistic regression were used to explore the relationship between the three indicators. Results: The self-efficacy scores ( x ¯ ± s) were 51.9 ± 9.12, and 59.1% of interviewed participants had self-efficacy scores greater than the mean. Overall, most participants (96%) considered online diabetes social platforms to be helpful. Groups differed with respect to interaction mode, which indicated that people with high self-efficacy tend to employ various modes of interaction. Participants with high self-efficacy were also more likely to live in cities (p < 0.05) and be married (p < 0.05) and tended to spend more time paying attention to group information (p < 0.05), spend more time viewing group information (p < 0.05), and have a greater degree of interaction with group members (p < 0.05). Information sources for the different grades of participants was primarily obtained from social media. Conclusion: Among people with diabetes, the frequency and intensity of online interaction might positively affect self-efficacy and, by implication, diabetes self-management. Diabetics with high self-efficacy also tend to have positive online interaction and adopt different ways of interaction. In addition, the diabetes information sources of the respondents mainly come from social networks, most of the respondents think that online social networking sites have a positive impact on diabetes self-management, which shows that social network plays an important role in diabetes information source of diabetics. However, the design of online health communities has room for improvement, specifically with respect to the provision of information that patients require. As an interesting side note, among people with diabetes or prediabetes, those who lived in urban area and were married, those who paid more attention to group information, and those who actively participated in interactions tended to have relatively high self-efficacy. The results suggest that people with diabetes have higher-quality self-care when they engage in online health community interactions; such benefits cannot be obtained from treatment in a hospital. In general, enhanced self-efficacy in people with diabetes enables them to more readily acquire diabetes-related knowledge. Online interaction with diabetics, who has the same experience, can not only get more information, but also have a sense of identity and belonging, which enhances self-efficacy and further urges them to actively participate in online interaction. Therefore, online health communities are an important supplement to the clinical treatment of diabetes mellitus and clinicians can take advantage of the educational function of online diabetes groups in their provision of tailored diabetes interventions and take into account the factors that affect the self-efficacy of diabetics (including the frequency and intensity of online interaction, age, marital status, residential area, etc.), to provide tailored diabetes interventions for diabetics. Such a use of online diabetes groups can strengthen diabetes self-management.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Jing Min ◽  
Yan Chen ◽  
Li Wang ◽  
Ting He ◽  
Sha Tang

Abstract Background Online health communities (OHCs), with a wealth of multi-source information exchange, have provided a convenient way for people with diabetes to actively participate in their self-management and have been widely used. Information exchange assists people with diabetes with health-related decisions to actively engage in their care, and reduce the occurrence of potential complications of diabetes. However, there has been relatively little research on the information exchange behaviors and their effect on health in professional online medical platforms—OHCs. Objective Using a social exchange theory, this study focuses on two sources of information (doctors and people with diabetes) to investigate information exchange behaviors and consequences. Moreover, we also examine moderating effects of information price as patients need to pay prices for consulting with doctors to obtain medical information on OHCs. Methods By using the Python program, a rich dataset contained 22,746 doctor-patient dialogues from December 2017 to December 2018 is collected from the biggest OHC in China. Then the logistic and ordinal regression models are used to get empirical results. Results We found that first information sharing from doctors and other people with diabetes can promote their information sharing behavior. Second, the moderating effects of information price are heterogeneous and change with the exchange participants. Third, rich information exchange supports self-management of people with diabetes and improves their health status. Conclusion This study is among the first that tests the information exchange behavior and consequence for diabetes in OHCs and examines the moderating effects of the information price. The present study produces several insights, which have implications for social exchange, patient behavior, online health communities, and information technology in diabetes self-management literature.


2020 ◽  
Author(s):  
Zhihong Chen ◽  
Chaochuang Zhang ◽  
Chaochuang Zhang

BACKGROUND - TBC OBJECTIVE The peer interaction–based online model has been influential in the recent development of diabetes management. This model “extends and innovates” the traditional mode of doctor–patient guidance, transforming it into a mode in which both doctor–patient guidance and patient–patient interaction coexist; this new mode has the added advantage of offering “extended continual intervention.” This study contributes to research on diabetes management models by investigating how patients with diabetes or prediabetes in China interact in online health communities, focusing on the interrelationship between self-efficacy characteristics and online participation during patient–patient interactions. METHODS In this cross-sectional study, participants with diabetes of all severities completed an electronic questionnaire, which was formulated with a revised classical scale. The questionnaire was disseminated through diabetes online health communities. Its content covered the respondent’s general condition, self-evaluation of their self-efficacy, and participation in online health communities, specifically with respect to factors such as the time spent each day consuming information online, the number of groups joined, and the extent of interaction in diabetes online health communities. The main observation indicators were the participants’ self-efficacy, their extent of online participation, and the characteristics of online health communities. Descriptive statistics, chi-square testing, linear trend estimation, and ordinal logistic regression were used to explore the relationship between the three indicators. RESULTS The self-efficacy scores (x̅ ± s) were 51.9 ± 9.12, and 59.1% of interviewed participants had self-efficacy scores greater than the mean. Overall, most participants (87.2%) considered online diabetes social platforms to be helpful. Groups differed with respect to interaction mode, which indicated that people with high self-efficacy tend to employ various modes of interaction. Participants with high self-efficacy were also more likely to be married (p < 0.05) and tended to spend more time paying attention to group information (p < 0.05), spend more time viewing group information (p < 0.05), and have a greater degree of interaction with group members (p < 0.05). Informationsources for the different grades of participants was primarily obtained from social media. CONCLUSIONS Among people with diabetes, the frequency and intensity of online interaction positively affect self-efficacy and, by implication, diabetes self-management. However, the design of online health communities has room for improvement, specifically with respect to the provision of information that patients require. As an interesting side note, among people with diabetes or prediabetes, those who were married, those who paid more attention to group information, and those who actively participated in interactions tended to have relatively high self-efficacy. The results suggest that people with diabetes have higher-quality self-care when they engage in online health community interactions; such benefits cannot be obtained from treatment in a hospital. In general, enhanced self-efficacy in people with diabetes enables them to more readily acquire diabetes-related knowledge. Therefore, online health communities are an important supplement to the clinical treatment of diabetes mellitus, and clinicians can take advantage of the educational function of online diabetes groups in their provision of tailored diabetes interventions. Such a use of online diabetes groups can strengthen diabetes self-management. CLINICALTRIAL none


Sign in / Sign up

Export Citation Format

Share Document