Pain profiles in a community dwelling population following spinal cord injury: a national survey

Poor sleep contributes to adverse health outcomes making it important to understand sleep in medically vulnerable populations, including those with spinal cord injury (SCI). However, little attention has been paid to circumstances specific to SCI that may negatively affect sleep, or to consequences of poor sleep in this population. The objective of this study was to examine the experience of sleep among individuals with SCI. Secondary analysis using thematic coding of qualitative data from an ethnographic study of community-dwelling adults with SCI was conducted. Sleep-related data were found in transcripts for 90% of the sample. Participants described diminished sleep duration and irregular sleep patterns. Several factors contributing to poor sleep were identified, including SCI-related circumstances and sleep environment. Participants also discussed how poor sleep affected occupational engagement. This study highlights the extent of sleep disturbance experienced after SCI and the subsequent impact on occupational performance, and provides direction for clinical practice.

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Assessing physical activity and health-related quality of life in individuals with spinal cord injury: a national survey in Thailand

Disability and Rehabilitation ◽

10.1080/09638288.2021.1979665 ◽

2021 ◽

pp. 1-11

Author(s):

Aitthanatt Chachris Eitivipart ◽

Mohit Arora ◽

Camila Quel de Oliveira ◽

Robert Heard ◽

James W. Middleton ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Spinal Cord ◽

Spinal Cord Injury ◽

National Survey ◽

Health Related Quality ◽

Cord Injury ◽

Related Quality ◽

Health Related

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Determinants of quality of life among community-dwelling persons with spinal cord injury: A path analysis

Nigerian Journal of Clinical Practice ◽

10.4103/1119-3077.187328 ◽

2017 ◽

Vol 20 (2) ◽

pp. 163 ◽

Cited By ~ 1

Author(s):

END Ekechukwu ◽

JO Ikrechero ◽

AO Ezeukwu ◽

AV Egwuonwu ◽

L Umar ◽

...

Keyword(s):

Quality Of Life ◽

Spinal Cord ◽

Spinal Cord Injury ◽

Path Analysis ◽

Community Dwelling ◽

Cord Injury

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Cardiometabolic Risk in Community-Dwelling Persons With Chronic Spinal Cord Injury

Journal of Cardiopulmonary Rehabilitation and Prevention ◽

10.1097/hcr.0b013e3181f68aba ◽

2011 ◽

Vol 31 (2) ◽

pp. 73-80 ◽

Cited By ~ 49

Author(s):

Suzanne L. Groah ◽

Mark S. Nash ◽

Emily A. Ward ◽

Alexander Libin ◽

Armando J. Mendez ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Cardiometabolic Risk ◽

Community Dwelling ◽

Chronic Spinal Cord Injury ◽

Cord Injury

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Remote monitoring of sitting behaviors for community-dwelling manual wheelchair users with spinal cord injury

Spinal Cord ◽

10.1038/sc.2008.72 ◽

2008 ◽

Vol 47 (1) ◽

pp. 67-71 ◽

Cited By ~ 21

Author(s):

Y-S Yang ◽

G-L Chang ◽

M-J Hsu ◽

J-J Chang

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Remote Monitoring ◽

Community Dwelling ◽

Wheelchair Users ◽

Manual Wheelchair ◽

Cord Injury

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Physical Activity Level and Adiposity in Community-dwelling People with Spinal Cord Injury

Medicine & Science in Sports & Exercise ◽

10.1249/01.mss.0000402926.37380.b7 ◽

2011 ◽

Vol 43 (Suppl 1) ◽

pp. 84

Author(s):

Ricardo A. Tanhoffer ◽

Aldre I. P. Tanhoffer ◽

Jacqueline Raymond ◽

Andrew P. Hills ◽

Glen M. Davis

Keyword(s):

Physical Activity ◽

Spinal Cord ◽

Spinal Cord Injury ◽

Physical Activity Level ◽

Community Dwelling ◽

Activity Level ◽

Cord Injury

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Client Perspectives on Reclaiming Participation After a Traumatic Spinal Cord Injury in South Africa

Physical Therapy ◽

10.2522/ptj.20150258 ◽

2016 ◽

Vol 96 (9) ◽

pp. 1372-1380 ◽

Cited By ~ 3

Author(s):

Conran Joseph ◽

Kerstin Wahman ◽

Julie Phillips ◽

Lena Nilsson Wikmar

Keyword(s):

South Africa ◽

Spinal Cord ◽

Spinal Cord Injury ◽

Physical Therapists ◽

Community Dwelling ◽

Traumatic Spinal Cord Injury ◽

Cord Injury ◽

Semistructured Interviews ◽

Insight Into ◽

The Continuum

AbstractBackgroundThe development of rehabilitation services promoting participation in people living with a traumatic spinal cord injury (TSCI) is of major concern for physical therapists. What the client sees as effective participation, barriers, and facilitators might be different due to their particular context. This study was conducted to gain insight into the experiences of attaining an important outcome in a developing context.ObjectiveThe aim of this study was to explore the experiences of reclaiming participation in community-dwelling people with TSCI in South Africa.DesignThis was an explorative, qualitative study with inductive content analysis.MethodsIndividual semistructured interviews were conducted with 17 adults living with a TSCI in order to explore their experience of participation. The verbatim transcripts were analyzed, and the end result was an overall theme that included 4 emerging categories.ResultsThe theme “participation possibility” denotes the eventual involvement in life situations. Within this theme, there were 4 categories that emerged as a representation of essential aspects along the continuum of reclaiming participation: (1) dealing with the new self, (2) a journey dominated by obstacles, (3) the catalyst of participation, and (4) becoming an agent. Dealing with and recognizing these intervening conditions seem critical for clients to reconstruct the meaning that is necessary for a broader conception of participation.LimitationsThe transferability of these findings to dissimilar contexts may be limited.ConclusionClient perspectives on reclaiming participation after injury affirm the notion of eventual participation, with each person finding strategies to succeed. In order to help clients reclaim participation, health professionals should develop contextually sensitive programs that include peer mentoring and reduce the influence of hindering factors.

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Attrition from specialised rehabilitation associated with an elevated mortality risk: results from a vital status tracing study in Swiss spinal cord injured patients

BMJ Open ◽

10.1136/bmjopen-2019-035752 ◽

2020 ◽

Vol 10 (7) ◽

pp. e035752

Author(s):

Jonviea D Chamberlain ◽

Inge E Eriks-Hoogland ◽

Kerstin Hug ◽

Xavier Jordan ◽

Martin Schubert ◽

...

Keyword(s):

Spinal Cord ◽

Spinal Cord Injury ◽

Cohort Study ◽

Community Dwelling ◽

Term Care ◽

Term Survival ◽

Vital Status ◽

Risk Of Mortality ◽

Cord Injury

IntroductionStudy drop-out and attrition from treating clinics is common among persons with chronic health conditions. However, if attrition is associated with adverse health outcomes, it may bias or mislead inferences for health policy and resource allocation.MethodsThis retrospective cohort study uses data attained through the Swiss Spinal Cord Injury (SwiSCI) cohort study on persons with spinal cord injury (SCI). Vital status (VS) was ascertained either through clinic medical records (MRs) or through municipalities in a secondary tracing effort. Flexible parametric survival models were used to investigate risk factors for going lost to clinic (LTC) and the association of LTC with subsequent risk of mortality.Results1924 individuals were included in the tracing study; for 1608 of these cases, contemporary VS was initially checked in the MRs. VS was ascertained for 704 cases of the 1608 cases initially checked in MRs; of the remaining cases (n=904), nearly 90% were identified in municipalities (n=804). LTC was associated with a nearly fourfold higher risk of mortality (HR=3.62; 95% CI 2.18 to 6.02) among persons with traumatic SCI. Extended driving time (ie, less than 30 min compared with 30 min and longer to reach the nearest specialised rehabilitation facility) was associated with an increased risk of mortality (HR=1.51, 95% CI 1.02 to 2.22) for individuals with non-traumatic SCI.ConclusionThe differential risk of LTC according to sociodemographic and SCI lesion characteristics underscores the importance of accounting for attrition in cohort studies on chronic disease populations requiring long-term care. In addition, given the associated risk of mortality, LTC is an issue of concern to clinicians and policy makers aiming to optimise the long-term survival of community-dwelling individuals with traumatic SCI. Future studies are necessary to verify whether it is possible to improve survival prospects of individuals LTC through more persistent outreach and targeted care.

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