The impact of diabetes on psychological well being and quality of life. The role of patient education

AbstractPhysical activity provides many benefits in patients with congenital bleeding disorders. Patients with hemophilia are encouraged to participate in exercise and sports, especially those patients receiving prophylaxis. Several publications and guidelines have explored this issue in hemophilia patients, evaluating in particular the impact of physical activity on patients' well-being and quality of life. The other rare congenital bleeding disorders are less studied; they are heterogeneous in terms of clinical bleeding phenotype, incidence of hemarthrosis, and arthropathy. Furthermore, prophylaxis in these patients is less common than in hemophilia patients, which must be considered when choosing the type of physical and sporting activity. In this review, the authors have analyzed the literature focusing their attention on those rare coagulation disorders that may be complicated by arthropathy and the role of exercise and sports in this context.

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Amyotrophic Lateral Sclerosis

10.1093/med/9780198757726.001.0001 ◽

2018 ◽

Cited By ~ 2

Keyword(s):

Quality Of Life ◽

Amyotrophic Lateral Sclerosis ◽

Health Care Professionals ◽

New Technologies ◽

Neurodegenerative Disorder ◽

Well Being ◽

Psychological Well Being ◽

The Impact ◽

Lateral Sclerosis

Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research. Specific elements of ALS, such as end-of-life concerns and bulbar dysfunction, are described through the lens of their psychological impact. There is extensive discussion of the development of new psychological treatments, as well as the impact and incorporation of new technologies, with the goal of fostering optimal quality of life and psychological well-being as key parts of a holistic approach to care for the patients and for those who are close to such individuals.

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The Impact of Infertility on the Psychological Well-Being, Marital Relationships, Sexual Relationships, and Quality of Life of Couples: A Systematic Review

Journal of Sex & Marital Therapy ◽

10.1080/0092623x.2014.958789 ◽

2014 ◽

Vol 41 (6) ◽

pp. 610-625 ◽

Cited By ~ 84

Author(s):

Bronya Hi-Kwan Luk ◽

Alice Yuen Loke

Keyword(s):

Quality Of Life ◽

Systematic Review ◽

Well Being ◽

Marital Relationships ◽

Sexual Relationships ◽

Psychological Well Being ◽

The Impact

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Psychological well-being of older Chinese immigrants living in Australia: a comparison with older Caucasians

International Psychogeriatrics ◽

10.1017/s1041610216001010 ◽

2016 ◽

Vol 28 (10) ◽

pp. 1671-1679 ◽

Cited By ~ 7

Author(s):

Xiaoping Lin ◽

Christina Bryant ◽

Jennifer Boldero ◽

Briony Dow

Keyword(s):

Quality Of Life ◽

Depression Scale ◽

Chinese Immigrants ◽

Well Being ◽

Community Dwelling ◽

Life Questionnaire ◽

Psychological Well Being ◽

Older Chinese ◽

The Impact

ABSTRACTBackground:Few current studies explore psychological well-being among older Chinese immigrants in Australia. The study addressed this gap and provided preliminary data on psychological well-being among this group. Four indicators, namely depression, anxiety, loneliness, and quality of life, were used to present a comprehensive picture of psychological well-being.Methods:Participants were two groups of community-dwelling older people, specifically 59 Chinese immigrants and 60 Australian-born people (median age=77 and 73, respectively). Data were collected through standardized interviews. The Geriatric Depression Scale, the Hospital Anxiety and Depression Scale, the de Jong Gierveld Loneliness Scale and the WHO Quality of Life questionnaire were used to measure depression, anxiety, loneliness, and quality of life, respectively.Results:Chinese participants’ median quality of life score was higher than the scale mid-point, indicating relatively high levels of quality of life. However, 10% exhibited symptoms of depression, 6% had symptoms of anxiety, and 49% felt lonely. Compared to Australian participants, Chinese participants reported poorer quality of life and higher levels of loneliness. Importantly, the difference in quality of life remained when the impact of socio-demographic factors was controlled for.Conclusions:This study was the first to use multiple indicators to explore psychological well-being among older Chinese immigrants in Australia. Its results suggest that their psychological well-being might be worse than that of Australian-born people when using loneliness and quality of life as indicators. In particular, loneliness is a common psychological problem among this group, and there is a need for public awareness of this problem.

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Mindfulness and mindlessness and ALS

10.1093/med/9780198757726.003.0004 ◽

2018 ◽

Author(s):

Francesco Pagnini ◽

Deborah Phillips ◽

Eleonora Volpato ◽

Paolo Banfi ◽

Ellen Langer

Keyword(s):

Quality Of Life ◽

Amyotrophic Lateral Sclerosis ◽

Well Being ◽

Psychological Resilience ◽

Psychological Well Being ◽

Psychological Constructs ◽

The Impact ◽

Lateral Sclerosis

Mindfulness and mindlessness are two relevant psychological constructs for the field of amyotrophic lateral sclerosis (ALS). When mindful, people are more open, flexible, and aware, and this attitude results in a higher psychological well-being. A mindful attitude is a source of psychological resilience for people with ALS and their caregivers. Conversely, a mindless view about the illness, reducing the whole person’s identify to the diagnosis, represents a threat to their quality of life. Furthermore, preliminary findings seem to suggest that mindfulness is associated with a slower course of the disease. In this chapter we discuss the impact that mindfulness can exert on both the quality and the quantity of life.

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