Communication and swallowing management in childhood brain tumour or leukaemia: A survey of health professionals and consumers

Abstract Aims Every year, the Queen Elizabeth Hospital Birmingham (QEHB) neuro-oncology team review over 2000 individuals with brain tumour. Patient and public involvement (PPI) has been fragmented to date. Initially we invited two patient advocates and a core group of allied health professionals to meet virtually to discuss development of a local PPI group, its aims, specific goals, and timescales to maintain momentum. In March 2021 we launched “BERTI: Brain tumour Education and Research paTient and public Involvement group, West Midlands”. Our inaugural meeting will be virtual in April 2021 and will be followed by three meetings per year. Method We developed information leaflets to promote the BERTI initiative. A membership form has been developed to record baseline information (non-clinical) e.g. contact details, which tumour type the individual is interested in, which aspect of BERTI they are interested in (Education, Research or Clinical service development). Patient advocates have reviewed all patient and public facing forms. All forms have been checked by Information Governance at QEHB to ensure General Data Protection Regulation compliant. Contact details and non-clinical data will be stored in a password protected database on a NHS computer network. Information to ensure members can unsubscribe from this group is easy to find and will be done immediately. A BERTI email account has been set up with a core group of professionals having access who are all fully trained in data protection and have GDPR certification. We will produce an annual BERTI newsletter. Results BERTI is a group for people affected by brain tumours in any way. We include patients, friends and family, health professionals and researchers who are committed to improving the care of people with a brain tumour. It is run between the QEHB and University of Birmingham (UoB). BERTI provides a forum to meet other people affected by brain tumours and - Share experiences; - Understand the condition better; - Work with clinical staff and researchers to improve clinical care and facilitate research for people living with brain tumours. We will meet three times per year, virtually at the moment but face to face once Covid restrictions ease. We will have a formal talks explaining certain aspects of brain tumour or research initiatives. Throughout, there will be dedicated time set aside for group discussions to promote a genuine two-way dialogue between health-care/research professionals and individuals affected by brain tumour. Conclusion The PPI group will be allowed to evolve rather than start out too prescriptive. It will capitalise on its strengths and skills of its composite members. There are no set models rather principles that will provide the foundations for a group which is supported to fulfil their specific purpose. The views of the PPI group will be presented at the quarterly Neuro-Oncology Multi-disciplinary team business meetings to provide a forum to discuss issues. We aim to foster a PPI friendly environment, deliver real engagement and involvement across the group.

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BREATHE: A Pilot Study of a One-Day Retreat to Reduce Burnout Among Mental Health Professionals

Yearbook of Psychiatry and Applied Mental Health ◽

10.1016/j.ypsy.2011.07.092 ◽

2012 ◽

Vol 2012 ◽

pp. 356-357

Author(s):

J.C. Ballenger

Keyword(s):

Mental Health ◽

Pilot Study ◽

Mental Health Professionals ◽

Health Professionals

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Ictus emeticus in a prolonged frontotemporal seizure secondary to a brain tumour

Developmental Medicine & Child Neurology ◽

10.1017/s0012162205220406 ◽

2005 ◽

Vol 47 (3) ◽

pp. 213-214

Author(s):

JL Fernández-Torre ◽

B Otero

Keyword(s):

Brain Tumour

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Arbeitsengagement und Belastungserleben von Health Professionals in Zeiten der Corona-Pandemie

Pflege ◽

10.1024/1012-5302/a000759 ◽

2020 ◽

Vol 33 (5) ◽

pp. 299-307

Author(s):

Domenika Wildgruber ◽

Jana Frey ◽

Max Seer ◽

Kristina Pinther ◽

Clemens Koob ◽

...

Keyword(s):

Health Professionals ◽

Soziale Medien

Zusammenfassung. Hintergrund: Die Corona-Pandemie führte zu einer starken Beanspruchung von Health Professionals, deren allgemeine berufliche Situation mit einem hohem Belastungserleben verbunden ist. Quantitative Daten zum Belastungserleben der im Gesundheitswesen Tätigen in der Corona-Pandemie und mögliche Auswirkungen auf das Arbeitsengagement fehlen bis dato für Deutschland. Methode: Mittels einer Querschnittsbefragung wurden das Stresserleben, die Sorge um die Gesundheit und das Arbeitsengagement von Health Professionals deutschlandweit erhoben. Das „snapshot survey“ nutzte neben selbst entwickelten Fragen Items eines validierten Instrumentes zur Erfassung des Arbeitsengagements. Über soziale Medien wurden in Form einer Gelegenheitsstichprobe Health Professionals zur Teilnahme eingeladen. Es konnten 1168 gültige Fälle ausgewertet werden. Die Teilnehmenden waren mehrheitlich Pflegende (80 %, n = 855). Ergebnisse: Es zeigt sich, dass Health Professionals mit Direktkontakt zu COVID-19-Erkrankten im Gegensatz zu Befragten ohne Kontakt ein höheres Stresslevel angeben (MW = 3,81, SD = 1,09 vs. MW = 3,44, SD = 1,12, t(1062) = 5,40, p < 0,001; ε = 0,33), sich am meisten Sorgen um die Gesundheit ihrer Angehörigen sowie von Freundinnen und Freunden machen und dass diese Sorgen größer als bei Health Professionals ohne Kontakt sind (MW = 4,45, SD = 0,84 vs. MW = 4,19, SD = 0,94, t(1062) = 4,74, p < 0,001; ε = 0,29). Die Korrelationsanalysen (r = –0,182, p < 0,001) und die multiple Regressionsanalyse (β = –0,182, p < 0,001) ergaben, dass das Arbeitsengagement mit steigendem, pandemiebedingtem Stress abnimmt. Diskussion: Es zeigen sich theoriekonforme Zusammenhänge zwischen Anforderungen, Stresserleben und Arbeitsengagement. Im Vergleich zu früheren Studien ist das Arbeitsengagement in der Stichprobe gering. Zur Reduktion psychischer Belastungsfaktoren in einer Pandemie liegen vielfältige Empfehlungen vor, die nun auch in der Breite für Deutschland zur Anwendung kommen sollten. Hierzu zählen beispielsweise pandemiespezifische Präventionspläne oder die Schaffung eines sanktionsfreien Arbeitsumfeldes.

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Stakeholder Perspectives on the Stigma of Suicide Attempt Survivors

Crisis ◽

10.1027/0227-5910/a000413 ◽

2017 ◽

Vol 38 (2) ◽

pp. 73-81 ◽

Cited By ~ 31

Author(s):

Lindsay L. Sheehan ◽

Patrick W. Corrigan ◽

Maya A. Al-Khouja ◽

Keyword(s):

Suicide Attempt ◽

Health Professionals ◽

Attempted Suicide ◽

Community Based Participatory Research ◽

Public Stigma ◽

Suicide Method ◽

Community Based ◽

Stakeholder Perspectives ◽

Personal Experiences ◽

Prejudice And Discrimination

Abstract. Background: Past scholarly efforts to describe and measure the stigma surrounding suicide have largely viewed suicide stigma from the perspective of the general public. Aims: In the spirit of community-based participatory research (CBPR), the current study brought together a diverse stakeholder team to qualitatively investigate the suicide stigma as experienced by those most intimately affected by suicide. Method: Seven focus groups (n = 62) were conducted with suicide attempt survivors, family members of those who died by suicide, and suicide loss therapists. Results: Themes were derived for stereotypes (n = 30), prejudice (n = 3), and discrimination (n = 4). People who attempted suicide were seen as attention-seeking, selfish, incompetent, emotionally weak, and immoral. Participants described personal experiences of prejudice and discrimination, including those with health professionals. Conclusion: Participants experienced public stigma, self-stigma, and label avoidance. Analyses reveal that the stigma of suicide shares similarities with stereotypes of mental illness, but also includes some important differences. Attempt survivors may be subject to double stigma, which impedes recovery and access to care.

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Facing a Patient Who Seeks Help After a Suicide Attempt

Crisis ◽

10.1027/0227-5910/a000242 ◽

2014 ◽

Vol 35 (2) ◽

pp. 110-122 ◽

Cited By ~ 15

Author(s):

Inês Areal Rothes ◽

Margarida Rangel Henriques ◽

Joana Barreiros Leal ◽

Marina Serra Lemos

Keyword(s):

Health Professionals ◽

Suicide Attempts ◽

Self Report ◽

Suicidal Patient ◽

Emotional Difficulties ◽

Specific Training ◽

Patient Suicide ◽

Professional Groups ◽

Professional Characteristics ◽

Suicidal Patients

Background: Although intervention with suicidal patients is one of the hardest tasks in clinical practice, little is known about health professionals’ perceptions about the difficulties of working with suicidal patients. Aims: The aims of this study were to: (1) describe the difficulties of professionals facing a suicidal patient; (2) analyze the differences in difficulties according to the sociodemographic and professional characteristics of the health professionals; and (3) identify the health professionals’ perceived skills and thoughts on the need for training in suicide. Method: A self-report questionnaire developed for this purpose was filled out by 196 health professionals. Exploratory principal components analyses were used. Results: Four factors were found: technical difficulties; emotional difficulties; relational and communicational difficulties; and family-approaching and logistic difficulties. Differences were found between professionals who had or did not have training in suicide, between professional groups, and between the number of patient suicide attempts. Sixty percent of the participants reported a personal need for training and 85% thought it was fundamental to implement training plans targeted at health professionals. Conclusion: Specific training is fundamental. Experiential and active methodologies should be used and technical, relational, and emotional questions must be included in the training syllabus.

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