Barriers to Psychosocial Support and Quality of Life for Patients With Inflammatory Bowel Disease: A Survey Study

Abstract Background Psychological comorbidities are common among people with inflammatory bowel disease (IBD) and are associated with worse disease outcomes. Evidence-based psychotherapy is an effective means to increase psychosocial support. This study aimed to identify the barriers to attending psychotherapy. Methods This electronic survey study included a demographic, quality of life, and barriers to psychotherapy questionnaire. Quality of life was assessed using the Short Inflammatory Bowel Disease Questionnaire (SIBDQ). Barriers were assessed using the Perceived Barriers to Psychological Treatments scale (PBPT). Linear regression was used to identify participant characteristics associated with higher PBPT scores. Results One hundred eighty-seven participants completed the study. Fifty-eight percent of participants had ≥1 significant barrier. Time (28%), knowledge about the availability of services (25%), and cost (19%) were the most common barriers. Least common were stigma (14%), lack of motivation (12%), and emotional concerns (7%). Lower SIBDQ scores, being male, not being full-time employed, having Crohn disease, and being in disease remission were associated with higher PBPT scores. Conclusions Knowledge about the availability of services, time constraints, and cost are the leading barriers to psychotherapy among people with IBD. Care providers should develop a network of psychotherapists available to those with IBD. Being male and not being full-time employed may be risk factors for greater barriers. Further research is needed on barriers among groups underrepresented in this study and on novel psychotherapy solutions, like telehealth and low-cost options.

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S0760 Barriers to Psychosocial Support and Quality of Life for Patients With Inflammatory Bowel Disease: A Survey Study

The American Journal of Gastroenterology ◽

10.14309/01.ajg.0000705088.43382.20 ◽

2020 ◽

Vol 115 (1) ◽

pp. S386-S386

Author(s):

Rebecca Lawrence ◽

Cuckoo Choudhary

Keyword(s):

Quality Of Life ◽

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Psychosocial Support ◽

Survey Study ◽

Inflammatory Bowel

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Parental knowledge of chronic inflammatory bowel diseases in a child

Sestrinski glasnik/Nursing Journal ◽

10.11608/sgnj.26.1.5 ◽

2021 ◽

Vol 26 (1) ◽

pp. 30-34

Author(s):

Leona Cilar ◽

Špela Polak ◽

Barbara Kegl

Keyword(s):

Quality Of Life ◽

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Chronic Inflammatory Bowel Disease ◽

Care Providers ◽

Inflammatory Bowel ◽

The Right ◽

The Impact ◽

Chronic Inflammatory Bowel

Introduction: Chronic inflammatory bowel disease is a chronic lifelong disease with various triggers, intermediate longer and shorter remissions. Parents need to know what kind of nutrition the child with chronic inflammatory bowel disease needs because they must be able to make the right decisions regarding the child‘s diet. The right choice of diet gives a child enough energy in their daily and enables the quality life. They must enjoy a healthy balanced diet so that they receive all the nutrients the body needs. In our work, we presented chronic inflammatory bowel disease in children and parents’ assessment of the child’s quality of life. Methods: We chose a quantitative methodology to establish the impact of diet on the quality of life of the child with chronic inflammatory bowel disease. To describe and define the problem, we used a descriptive method. A structured measurement instrument was based on a review of the relevant foreign and domestic literature. Statistical data analysis was performed using descriptive and inferential statistics. Data were collected by a non-random and occasional sampling survey. Results: We found that most children whose parents participated in this research have Crohn’s disease (n = 20; 50%) and ulcerative colitis (n = 16; 40%). The type of food that is harmful to the child is fatty food (n = 33; 83%), followed by spicy food (n = 32; 80%) and acidic food (n = 10; 25%). According to the parents’ assessment, children with chronic inflammatory bowel disease have good (n = 22; 55%) health. We found that physicians provide parents with the most necessary nutrition information. Through evaluation of the parents, we found that there is no statistically significant correlation between the general assessment of a child’s health and the type of chronic inflammatory bowel disease (X² (2) = 5.925, p = 0.052). Also, there is no statistically significant correlation between the eating pattern and parents ’assessment of their child’s quality of life (U = 38.00, p. = 1.00). Discussion: The health care providers have an important role to play in giving appropriate information to parents to ensure the quality of life of the child. She teaches parents and children about living with chronic inflammatory bowel disease and emphasizes the importance of nutrition, which greatly contributes to a better quality of life.

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