scholarly journals Person-Centered Care for Family Caregivers: Co-Designing an Education Program for the Healthcare Workforce

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 327-327
Author(s):  
Jasneet Parmar ◽  
Sharon Anderson ◽  
Cheryl Pollard ◽  
Lesley Charles ◽  
Bonnie Dobbs ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Health Workforce ◽  
Education Program ◽  
Healthcare Providers ◽  
Care Education ◽  
Competency Based Education ◽  
Person Centered Care ◽  
Healthcare Workforce ◽  
Centered Care ◽  
Competency Based

Abstract Background Research recommends the healthcare workforce receive competency-based education to support family-caregivers [FCGs}. typically, education has been directed at FCG’s to increase their care skills rather that at healthcare providers to provide person-centered care to FCGs. Objectives: We present the co-design process used to create a competency-based education program for the healthcare workforce that ensures a person-centered focus on FCGs and introduce our Health Workforce Caregiver-Centered Care Education. Approach: Co-design is the act of creating with stakeholders to ensure useable results that meet stakeholder’s needs. We began by coining the concept “caregiver-centered care,” defined as a collaborative working relationship between families and healthcare providers aimed at supporting FCGs in their caregiving role, decisions about care management, and advocacy. From this definition we co-designed, then validated the Caregiver-Centered Care Competency Framework in a Delphi Process. Stakeholders (n= 101) including FCGs, providers, policy makers, community organizations, researchers, and educational designers then used effective practices for health workforce education to co-design the ‘foundational’ level of a Caregiver Centered Care education. Results Teaching and learning resources include six competency-aligned educational modules with videos and interactive exercises that encourage reflection. With the COVID-19 pandemic, we moved the education online (caregivercare.ca). In the first four months online, 815healthcare providers completed the education. We continue to use mixed methods to evaluate the Caregiver-Centered Care Education, for acceptability and effectiveness, in five care contexts (primary, acute, home, supportive living, long-term care). Conclusion We expect that our education will support caregiver-centered care in all healthcare settings.

scholarly journals Person-Centered Care for Family Caregivers: Evaluating an Education Program for the Healthcare Workforce

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 490-490
Author(s):  
Sharon Anderson ◽  
Jasneet Parmar ◽  
Cheryl Pollard ◽  
Bonnie Dobbs ◽  
Myles Leslie ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Family Caregivers ◽  
Education Program ◽  
Healthcare Providers ◽  
Evaluation Framework ◽  
Care Education ◽  
Mixed Methods Evaluation ◽  
Person Centered Care ◽  
Healthcare Workforce ◽  
Centered Care

Abstract Background While family caregivers [FCGs] provide 75-90% of care for people living in the community, most healthcare providers are not trained to provide person-centered care to FCGs. We followed research recommendations that the healthcare workforce receive competency-based education to identify, assess, support and partner with FCGs. Objective Mixed methods evaluation healthcare workforce education program. Approach: We began by coining the concept “caregiver-centered care,” defining it as a collaborative working relationship between families and healthcare providers aimed at person-centered support for FCGs. From this definition, interdisciplinary stakeholders including FCGs (n=101) co-designed the Foundational Caregiver-Centered Care education. Learning resources included six competency-aligned educational modules with videos and interactive exercises that encourage reflection. Kirkpatrick Barr’s healthcare training evaluation framework underpinned our mixed methods evaluation. We measured participant’s reaction to the education (Level 1) and changes in learner’s knowledge and confidence to work with FCGs (Level 2). Results 352 healthcare providers completed the education online (caregivercare.ca). Learners were satisfied with quality of education (Mean 4.75/5; SD=.5) and the education increased their motivation to learn more about caregiver-centered care (Mean 4.75/5; SD .5). Student’s paired samples T-test indicates pre-post education changes in knowledge and confidence to work with FCGs were significant [Pre (M=37.8, Sd=7.6) to post (M=47.2, SD=3.5) t (125) = -14.39, p<.0005 (two-tailed)]. Qualitative results derived from open responses mirrored the quantitative results. Conclusion The Caregiver-Centered Care education provides a foundation for educating healthcare providers working with FCGs to provide care to FCGs to maintain their wellbeing and sustain care.

scholarly journals Co-Designing Caregiver-Centered Care: Training the Health Workforce to Support Family Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 15-16
Author(s):  
Jasneet Parmar ◽  
Lisa Poole ◽  
Sharon Anderson ◽  
Pollard Cheryl ◽  
Wendy Duggleby ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Health Workforce ◽  
Family Caregiving ◽  
Core Competencies ◽  
Healthcare Providers ◽  
Term Care ◽  
Care Education ◽  
People With Dementia ◽  
Centered Care ◽  
Care Health

Abstract Family caregivers [FCGs] provide over 80% of the care for people with dementia, chronic illness and impairments. Despite evidence of their contributions and consequences of caregiving, support for FCGs has not been a health system priority. Our innovative solution, to reduce caregiver distress and support caregivers’ wellbeing, is to educate the health workforce in a meaningful manner based on evidence. We validated Caregiver-Centered Care Core Competencies required to address the gap between what FCGs report they need and preparation of healthcare providers to meet those needs. This competency-based education will prepare healthcare providers to effectively identify, engage, assess, and support FCGs, and address the inconsistent system of supports for FCGs. We co-designed our Caregiver Centered Care Education using effective practices for dementia education for health workforce and co-design. We engaged over 60 multi-level, interdisciplinary stakeholders with expertise in health workforce education, frontline healthcare, dementia care, health policy, and family caregiving. We ensured that we included FCGs of people living with dementia. The teaching/learning resources include competency-aligned educational modules, multimedia resources, and facilitators guide. As the hallmark of effective education is content relevant to learners’ needs and contexts, our education is designed flexibly, to be tailored to settings and learners. We are pilot testing the Caregiver-Centered Care Education, for acceptability and effectiveness, in five contexts: primary care, acute care, homecare, supportive living, and long-term care. Our education will support Caregiver-Centered Care in all settings providing dementia-related care. Health workforce support will be essential to maintain FCG wellbeing and sustain family caregiving.

scholarly journals Person‐centered care for family caregivers of people living with dementia: Co‐designing an education program for the healthcare workforce

2021 ◽  
Vol 17 (S8) ◽  
Author(s):  
Jasneet Parmar ◽  
Sharon Dorothy Anderson ◽  
Cheryl Pollard ◽  
Wendy Duggleby ◽  
Lesley Charles ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Education Program ◽  
Person Centered Care ◽  
Healthcare Workforce ◽  
Centered Care

scholarly journals Person-Centered Care in Persons Living with Dementia: A Systematic Review and Meta-Analysis

2020 ◽  
Author(s):  
Kyung Hee Lee ◽  
Ji Yeon Lee ◽  
Bora Kim
Keyword(s):  
Systematic Review ◽  
Cognitive Function ◽  
Effect Size ◽  
Psychological Symptoms ◽  
Meta Analysis ◽  
Healthcare Providers ◽  
Clinical Excellence ◽  
Dementia Care ◽  
Person Centered Care ◽  
Centered Care

Abstract Background and Objectives The concept of person-centered care has been utilized/adapted to various interventions to enhance health-related outcomes and ensure the quality of care delivered to persons living with dementia. A few systematic reviews have been conducted on the use of person-centered interventions in the context of dementia care, but to date, none have analyzed intervention effect by intervention type and target outcome. This study aimed to review person-centered interventions used in the context of dementia care and examine their effectiveness. Research Design and Methods A systematic review and meta-analysis were conducted. We searched through five databases for randomized controlled trials that utilized person-centered interventions in persons living with dementia from 1998 to 2019. Study quality was assessed using the National Institute for Health and Clinical Excellence. The outcomes of interest for the meta-analysis were behavioral and psychological symptoms in dementia (BPSD) and cognitive function assessed immediately after the baseline measurement. Results In total, 36 studies were systematically reviewed. Intervention types were: reminiscence, music, and cognitive therapies, and multisensory stimulation. Thirty studies were included in the meta-analysis. Results showed a moderate effect size for overall intervention, a small one for music therapy, and a moderate one for reminiscence therapy on BPSD and cognitive function. Discussion and Implications Generally speaking, person-centered interventions showed immediate intervention effects on reducing BPSD and improving cognitive function, although the effect size and significance of each outcome differed by intervention type. Thus, healthcare providers should consider person-centered interventions as a vital element in dementia care.

scholarly journals What is good communication for people living with dementia? A mixed-methods systematic review

2017 ◽  
Vol 29 (11) ◽  
pp. 1785-1800 ◽  
Author(s):  
Sarah Alsawy ◽  
Warren Mansell ◽  
Phil McEvoy ◽  
Sara Tai
Keyword(s):  
Systematic Review ◽  
Mixed Methods ◽  
Family Caregivers ◽  
Interpersonal Relationships ◽  
Healthcare Professionals ◽  
Eligibility Criteria ◽  
Good Communication ◽  
Person Centered Care ◽  
People With Dementia ◽  
Centered Care

ABSTRACTBackground:Many strategies have been recommended to support caregivers in communicating with people who live with dementia. However, less is known about what makes communication a good and meaningful experience from the perspective of people with dementia. Understanding this may enhance the person with dementia's sense of connectedness, strengthen their relationships, and facilitate person-centered care. The current review aimed to evaluate research that examined experiences of communication in people living with dementia. Studies that examined reports provided by people with dementia, healthcare professionals, and family caregivers were included.Methods:A mixed-methods systematic review was conducted using PsychINFO, MEDLINE, and EMBASE databases.Results:After applying the eligibility criteria, 15 studies were included. Although eight of these recruited people with dementia, only one focused on their perspectives of communication experiences and the remaining studies focused on the perspectives of family caregivers and healthcare professionals. These studies either explored experiences without suggestions of communication methods, “open exploration,” or through examining experiences of strategies, “exploration of strategies.” A significant theme was around communication difficulties that affected interpersonal relationships and activities of daily living. Conversely, personhood strategies and a strong underlying relationship were believed to facilitate communication. The one study that examined the perspectives of people with dementia emphasized the importance of retaining valued relationships and feeling respected during communication.Conclusions:The need to involve people with dementia in research, particularly around their experiences of communication, is evident. Such research would be imperative for facilitating person-centered care, strengthening social relationships, and informing training programs.

scholarly journals Usages of Computers and Smartphones to Develop Dementia Care Education Program for Asian American Family Caregivers

2017 ◽  
Vol 23 (4) ◽  
pp. 338 ◽  
Author(s):  
Jung-Ah Lee ◽  
Hannah Nguyen ◽  
Joan Park ◽  
Linh Tran ◽  
Trang Nguyen ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Asian American ◽  
Education Program ◽  
Dementia Care ◽  
American Family ◽  
Care Education
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