Adapting the ADS Plus Program and Study for a Spanish Speaking Population

Abstract While Hispanic/Latinos are at increased risk for Alzheimer’s Disease, they are often cited as a “difficult-to-reach population” to engage in community-based research or clinical trials. One reason may be that many community-based supportive interventions for dementia caregivers are not adapted for Spanish-speaking populations. The purpose of this presentation is to describe the process of adapting the Adult Day Services Plus (ADS Plus) program for this population. In addition to translating ADS Plus into Spanish, staff, familiar with the program from four sites, which serve a predominantly Hispanic population, participated in a set of three focus groups that reviewed recruitment and intervention materials. Emerging themes included, Hispanic caregivers do not refer to themselves as caregivers but as the familial relationship (e.g. daughter, son, wife), and Hispanics often view research as a waste of resources. Future studies should consider these cultural elements towards caregiving in developing programs for Spanish-speaking dementia caregivers.

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Evaluating Community-Based Programs for Dementia Caregivers: The Cost Implications of Adult Day Services

Journal of Applied Gerontology ◽

10.1177/0733464802250049 ◽

2003 ◽

Vol 22 (1) ◽

pp. 118-133 ◽

Cited By ~ 22

Author(s):

Joseph E. Gaugler ◽

Steven H. Zarit ◽

Aloen Townsend ◽

Mary-Ann Parris Stephens ◽

Rick Greene

Keyword(s):

Community Based ◽

Dementia Caregivers ◽

Adult Day Services ◽

Community Based Programs ◽

Day Services ◽

Cost Implications ◽

The Cost

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Adult Day Service Use Decreases Likelihood of Depressive Symptoms Among Black Dementia Caregivers

Innovation in Aging ◽

10.1093/geroni/igaa057.2102 ◽

2020 ◽

Vol 4 (Supplement_1) ◽

pp. 618-618

Author(s):

Lauren Parker ◽

Laura Gitlin

Keyword(s):

Depressive Symptoms ◽

Service Use ◽

Demographic Variables ◽

Caregiver Training ◽

Dementia Caregivers ◽

Adult Day Services ◽

Black Caregivers ◽

Health Promoting ◽

Day Services ◽

Intervention Trials

Abstract Black Americans are more likely than others to age with Alzheimer’s Disease (AD) in the community and rely on family members for support. Despite reported positive aspects of caregiving, Black caregivers report greater need for daytime respite and caregiving support. Little is known regarding the health-promoting benefits of daytime respite, like adult day services (ADS), among Black caregivers. Using a sample of 190 Philadelphia-area Black caregivers for community-living persons with dementia, pooled from two behavioral intervention trials: Advancing Caregiver Training and Care of Persons with Dementia in their Environments, the study examined the association between ADS use and depressive symptoms. About 36% of the caregivers used adult day services for their family member with AD. Controlling for demographic variables, social support, self-rated health, religious coping, caregiver burden, and number of years caregiving Black caregivers who utilized ADS had lower depressive symptoms (β= -1.60, p<.05) relative not using ADS.

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Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve

American Journal of Alzheimer s Disease & Other Dementias® ◽

10.1177/15333175211050152 ◽

2021 ◽

Vol 36 ◽

pp. 153331752110501

Author(s):

Lauren J. Parker ◽

Katherine Marx ◽

Joseph E. Gaugler ◽

Laura N. Gitlin

Keyword(s):

Controlled Trial ◽

Service Innovation ◽

Telephone Support ◽

Community Based ◽

Considerable Potential ◽

State Mandate ◽

Randomized Controlled ◽

Adult Day Services ◽

Day Services ◽

Community Based Services

The COVID-19 pandemic forced adult day services (ADS) to close and abruptly end in-person services to clients. To understand the effect of the pandemic on ADS, a 20-item survey was used to examine services provided, staffing, finances, and plans to reopen. Data came from 22 sites participating in the Adult Day Service Plus a national randomized controlled trial. Of the 22 ADS sites responding to the survey, most (86.4%, n = 19) closed due to COVID-19 with nearly half closing due to a state mandate (52.6%, n = 10). Most sites reported the need to furlough or terminate staff (63.6%, n = 14). Services that sites continued to provide included telephone support (n = 22, 100%), delivery of food (n = 8, 36.4%), medical check-ins (n = 9, 40.1%), and activity via Zoom or YouTube (n = 14, 63.6%). Most of these services were provided without reimbursement. Adult day services have considerable potential as a platform for service innovation in community-based services.

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Beyond Respite: The Role of Adult Day Services in Supporting Dementia Caregivers

Home Health Care Services Quarterly ◽

10.1080/01621424.2015.1040939 ◽

2015 ◽

Vol 34 (2) ◽

pp. 101-112 ◽

Cited By ~ 5

Author(s):

Keith A. Anderson ◽

Holly I. Dabelko-Schoeny ◽

Noelle L. Fields ◽

James R. Carter

Keyword(s):

Dementia Caregivers ◽

Adult Day Services ◽

Day Services

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A COMMUNITY-BASED INTERVENTION TO IMPROVE COGNITIVE FUNCTION IN RURAL APPALACHIAN OLDER ADULTS

Innovation in Aging ◽

10.1093/geroni/igz038.2039 ◽

2019 ◽

Vol 3 (Supplement_1) ◽

pp. S553-S553

Author(s):

Benjamin Katz

Keyword(s):

Older Adults ◽

Cognitive Function ◽

Lifestyle Changes ◽

Community Dwelling ◽

Long Term Memory ◽

Community Based ◽

Cognitive Components ◽

Adult Day Services ◽

Adult Participants ◽

Day Services

Abstract Research suggests that social isolation in Appalachian older adults may be associated with reduced cognitive function. Despite this, few interventions for these individuals incorporate both social and cognitive components in a community-based setting. The “Memory Masterclass” program was developed to address this care challenge, and implemented through an Adult Day Services Center. With 29 community-dwelling older adult participants from western Virginia, the six-week pilot program focused on strategies and practices associated with improving long-term memory or executive function. In addition to the lifestyle-focused curricula, the course included group activities focused on connecting participants to community networks of resources that might enable them to successfully implement lifestyle changes. Findings support the feasibility of implementation with a wider group of rural Appalachian older adults and suggest that individual differences in self-reported memory may be closely tied to improvements following the program.

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Respite for Dementia Caregivers: The Effects of Adult Day Service Use on Caregiving Hours and Care Demands

International Psychogeriatrics ◽

10.1017/s1041610203008743 ◽

2003 ◽

Vol 15 (1) ◽

pp. 37-58 ◽

Cited By ~ 67

Author(s):

Joseph E. Gaugler ◽

Shannon E. Jarrott ◽

Steven H. Zarit ◽

Mary-Ann Parris Stephens ◽

Aloen Townsend ◽

...

Keyword(s):

Behavior Problems ◽

Activities Of Daily Living ◽

Daily Living ◽

Service Use ◽

Collaborative Study ◽

Care Recipient ◽

Service Users ◽

Dementia Caregivers ◽

Adult Day Services ◽

Day Services

The objective of this study was to determine whether adult day service use was related to decreases in primary caregiving hours (i.e., the time caregivers spent on activities of daily living/instrumental activities of daily living and behavior problems for care recipients) and care recipient function for these domains. Three-month longitudinal data from the Adult Day Care Collaborative Study (N = 400) were used. Adult day service users reported greater decreases in hours spent on behavior problems when compared to nonusers, even after controlling for baseline differences between the two groups. In addition, adult day service users reported decreased frequency of behavior problems in their relatives who attended adult day programs. The findings suggest that adult day services, if used over time, are effective in restructuring caregiving time and may offer potential benefits not only to family caregivers but to community-residing older adults who have dementia as well.

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Teaching Program Development and Evaluation Through a Service Learning Project in Community-Based Adult Day Services

Occupational Therapy In Health Care ◽

10.3109/07380570903329644 ◽

2009 ◽

Vol 24 (1) ◽

pp. 107-117 ◽

Cited By ~ 4

Author(s):

Patricia Schaber

Keyword(s):

Service Learning ◽

Program Development ◽

Teaching Program ◽

Community Based ◽

Adult Day Services ◽

Day Services

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Adult Day Services as an Essential Service and Support

Innovation in Aging ◽

10.1093/geroni/igab046.424 ◽

2021 ◽

Vol 5 (Supplement_1) ◽

pp. 111-112

Author(s):

Joseph Gaugler ◽

Katherine Marx ◽

Holly Dabelko-Schoeny ◽

Lauren Parker ◽

Keith Anderson ◽

...

Keyword(s):

Older Persons ◽

Care Providers ◽

Community Based ◽

Term Care ◽

Adult Day Services ◽

Community Based Programs ◽

Day Services ◽

Essential Service

Abstract Throughout the COVID-19 pandemic, the significant challenges and gaps related to the care of older people in the U.S. were made distressingly apparent. This summary presentation will consider the effects of COVID-19 and associated shutdowns on older persons who use ADS programs, their family caregivers, and programs/staff themselves. Among recommendations to consider are the classification of adult day services and similar community-based long-term care providers as essential (and clarifying their difference from senior centers). In addition, considering new financing approaches and utilizing ADS or similar community-based programs as incubators of evidence-based innovation are options to consider to better align ADS with optimal dementia care.

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Using Community-Based Research Strategies in Age-Friendly Communities to Solve Mobility Challenges

Innovation in Aging ◽

10.1093/geroni/igaa057.2462 ◽

2020 ◽

Vol 4 (Supplement_1) ◽

pp. 701-701

Author(s):

Holly Dabelko-Schoeny ◽

Noelle Fields ◽

Katie White ◽

Marisa Sheldon ◽

Sarah Robinson ◽

...

Keyword(s):

Community Based Participatory Research ◽

Interdisciplinary Teams ◽

Training Data ◽

Research Strategies ◽

Community Based ◽

Major Life ◽

Community Based Research ◽

Alternative Transportation ◽

Metropolitan County ◽

Increased Risk

Abstract Aging is linked to an increased risk of disability. Disabilities that limit major life activities such as seeing, walking, and motor skills impact a person’s ability to drive a car. Low utilization of alternative transportation by older adults may put them at risk for social isolation. The purpose of this paper is to illustrate how community-based participatory research (CBPR) was used to engage older residents in the development of alternative transportation options in a metropolitan county in the Midwestern U.S. Older residents worked as co-investigators to develop, use and evaluate alternative transportation options including walking, biking, fixed route busing, senior circulator, ride sharing, and transit training. Data were collected through mapping the built environment, an electronic daily transportation diary app called “MyAmble” on tablets, walk audits and focus groups. CBPR approaches led by interdisciplinary teams resulted in community engagement and more equitable strategies for transportation planning and utilization.

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