scholarly journals Perceived stress factors and coping mechanisms among mothers of children with sickle cell disease in western Nigeria

1997 ◽  
Vol 12 (2) ◽  
pp. 161-170 ◽  
Author(s):  
L. B. Olley ◽  
W. R. Brieger ◽  
B. O. Olley
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Perceived Stress ◽  
Coping Mechanisms ◽  
Stress Factors ◽  
Cell Disease ◽  
And Coping

Psychological Distress and Coping in Sickle Cell Disease: Comparison of British and Jamaican Attitudes

2001 ◽  
Vol 6 (2) ◽  
pp. 129-136 ◽  
Author(s):  
Veronica J. Thomas ◽  
Ian Hambleton ◽  
Graham Serjeant
Keyword(s):  
Psychological Distress ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Cell Disease ◽  
And Coping

scholarly journals Impact of a paediatric-adult care transition programme on the health status of patients with sickle cell disease: study protocol for a randomised controlled trial (the DREPADO trial)

2019 ◽  
Author(s):  
Delphine Hoegy ◽  
Nathalie Bleyzac ◽  
Alexandra Gauthier-Vasserot ◽  
Giovanna Cannas ◽  
Angélique Denis ◽  
...  
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Coping Skills ◽  
Morbidity And Mortality ◽  
Care Transition ◽  
Cell Disease ◽  
Adult Care ◽  
Biopsychosocial Approach ◽  
Adult Transition ◽  
And Coping

Abstract Background: Thanks to the advancements in medical care, a majority of sickle cell disease patients worldwide live beyond 18 years of age, and therefore patients initially followed in paediatric departments are then transferred to adult departments. This paediatric-adult care transition is a period with an increased risk of discontinuity of care and so morbidity and mortality. During this period, the patient will have to manage new interlocutors and places of care, and personal issues related to the period of adolescence. To take into consideration all these aspects, an interesting approach is to refer to the patient as a whole system as presented in biopsychosocial approach. The aim of this trial is to evaluate the impact of the proposed biopsychosocial paediatric-adult transition programme. Methods: The DREPADO study is a multicentre randomised control trial comparing a control group ( Arm A ) versus an interventional group with paediatric-adult transition programme based on a biopsychosocial approach ( Arm B ). To be included, patients should suffer of SS, SC or Sβ-form of sickle cell disease and aged between 16 and 17 years. The randomisation in a 1:1 ratio assigns the Arm A or B . The primary outcome is the number of hospital admissions and emergency in the index hospital for complications, in the 2-years after the first consultation in the adult department of care. Secondary outcomes consider the quality of life, but also included coping skills such as self-efficacy feeling and disease knowledge. To provide patient and parent knowledge and coping skills, the transition program is composed of 3 axis : educational, psychological and social, conducted in individual and group.Discussion: By providing self-care knowledge and coping skills related to SCD and therapeutics, helping patient's empowerment related to pain management and emotions and facilitating the relationship to oneself, others and care in the Arm B of DREPADO study, we believe that the morbidity and mortality of patients with SCD may be reduced after the proposed paediatric-adult transition programme. Trial registration: ClinicalTrials.gov, ID: NCT03786549; registered on 17 th December 2018; https://clinicaltrials.gov/.

Sickle Cell Disease Pain in Children and Adolescents: Change in Pain Frequency and Coping Strategies Over Time

1993 ◽  
Vol 18 (5) ◽  
pp. 621-637 ◽  
Author(s):  
Karen M. Gil ◽  
Robert J. Thompson ◽  
Barbara R. Keith ◽  
Mary Tota-Faucette ◽  
Stephanie Noll ◽  
...  
Keyword(s):  
Sickle Cell Disease ◽  
Coping Strategies ◽  
Children And Adolescents ◽  
Sickle Cell ◽  
Cell Disease ◽  
Pain Frequency ◽  
And Coping ◽  
Over Time

Psychological Adjustment of Children With Sickle Cell Disease: Family Functioning and Coping.

2004 ◽  
Vol 49 (3) ◽  
pp. 224-232 ◽  
Author(s):  
Meredith J. Lutz ◽  
Lamia P. Barakat ◽  
Kim Smith-Whitley ◽  
Kwaku Ohene-Frempong
Keyword(s):  
Sickle Cell Disease ◽  
Family Functioning ◽  
Psychological Adjustment ◽  
Sickle Cell ◽  
Cell Disease ◽  
And Coping ◽  
Disease Family

scholarly journals Pain, quality of life, and coping in sickle cell disease.

1996 ◽  
Vol 75 (3) ◽  
pp. 199-203 ◽  
Author(s):  
P Fuggle ◽  
P A Shand ◽  
L J Gill ◽  
S C Davies
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Cell Disease ◽  
And Coping

Effects of STARBRIGHT World on Knowledge, Social Support, and Coping in Hospitalized Children With Sickle Cell Disease and Asthma

2002 ◽  
Vol 31 (1) ◽  
pp. 69-86 ◽  
Author(s):  
Ann Hazzard ◽  
Marianne Celano ◽  
Marietta Collins ◽  
Yana Markov
Keyword(s):  
Social Support ◽  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Hospitalized Children ◽  
Cell Disease ◽  
And Coping

Adjustment and Coping in Adolescents with Sickle Cell Disease

1989 ◽  
Vol 565 (1 Sickle Cell D) ◽  
pp. 172-182 ◽  
Author(s):  
ANITA LANDAU HURTIG ◽  
KWANG B. PARK
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Cell Disease ◽  
And Coping

scholarly journals Sickle Cell Disease Patients With and Without Extremely High Hospital Use: Pain, Opioids, and Coping

2015 ◽  
Vol 49 (3) ◽  
pp. 539-547 ◽  
Author(s):  
Shan-Estelle Brown ◽  
Daniel F. Weisberg ◽  
Gabriela Balf-Soran ◽  
William H. Sledge
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Cell Disease ◽  
And Coping ◽  
Hospital Use
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