I Need a Refill

2020 ◽  
pp. 237-246
Author(s):  
Elissa G. Miller
Keyword(s):  
United States ◽  
Palliative Care ◽  
Pain Management ◽  
Standard Of Care ◽  
The United States ◽  
Opioid Therapy ◽  
Pediatric Palliative Care ◽  
Care Providers ◽  
Patient Risk ◽  
Standard Practices

Opioid misuse, abuse, and diversion are serious concerns due to the risk of addiction and death from overdose. Rising addiction and overdose rates in the United States have led providers to establish a set of standard practices by which they assess patient risk and monitor closely while the patient is receiving opioid therapy for pain management. Pediatric patients and their families are not immune to the risks of opioids, and they should therefore be monitored closely in accordance with the adult standard of care. This chapter discusses universal precautions for opioid prescribing and makes recommendations for pediatric palliative care providers.

A cross-sectional pilot study of compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care providers in the United States

2018 ◽  
Vol 17 (03) ◽  
pp. 269-275 ◽  
Author(s):  
Samuel M. Kase ◽  
Elisha D. Waldman ◽  
Andrea S. Weintraub
Keyword(s):  
United States ◽  
Palliative Care ◽  
Pilot Study ◽  
Compassion Fatigue ◽  
Compassion Satisfaction ◽  
Clinical Situation ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Care Providers ◽  
Cross Sectional

AbstractObjectiveCompassion fatigue (CF) is secondary traumatic distress experienced by providers from contact with patients' suffering. Burnout (BO) is job-related distress resulting from uncontrollable workplace factors that manifest in career dissatisfaction. Compassion satisfaction (CS) is emotional fulfillment derived from caring for others. The literature on BO in healthcare providers is extensive, whereas CF and CS have not been comprehensively studied. Because of ongoing exposure to patient and family distress, pediatric palliative care (PPC) providers may be at particular risk for CF. We conducted a cross-sectional pilot study of CF, BO, and CS among PPC providers across the United States.MethodThe Compassion Fatigue and Satisfaction Self-Test for Helpers and a questionnaire of professional and personal characteristics were distributed electronically and anonymously to PPC physicians and nurses. Logistic and linear regression models for CF, BO, and CS as a function of potential risk factors were constructed.ResultsThe survey response rate was 39%, primarily consisting of female, Caucasian providers. The prevalence of CF, BO, and CS was 18%, 12%, and 25%, respectively. Distress about a “clinical situation,” physical exhaustion, and personal loss were identified as significant determinants of CF. Distress about “coworkers,” emotional depletion, social isolation, and “recent involvement in a clinical situation in which life-prolonging activities were not introduced” were significant determinants of BO. Physical exhaustion, personal history of trauma, “recent involvement in a clinical situation in which life-prolonging activities were not introduced,” and not discussing distressing issues were significant predictors of lower CS scores.Significance of resultsCF and BO directly influence the well-being and professional performance of PPC providers. To provide effective compassionate care to patients, PPC providers must be attentive to predictors of these phenomena. Further work is needed to explore additional causes of CF, BO, and CS in PPC providers as well as potential interventions.

Pediatric Palliative Care

2018 ◽  
Author(s):  
Kevin Madden
Keyword(s):  
United States ◽  
Palliative Care ◽  
Chronic Condition ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Care Providers ◽  
Surgical Interventions ◽  
Disease Trajectory ◽  
The Relationship ◽  
Learning Points

Pediatric palliative care shares similarities with adult palliative care, but there are significant differences as well. Whereas the preponderance of adults receiving palliative care have cancer, 80% of children who receive pediatric palliative care in the United States have either a congenital/genetic or a neuromuscular complex chronic condition. Given the uncertainty of prognosis for these medical conditions, it is not unusual for pediatric palliative care providers to have years-long relationships with children and their families. The nature of the relationship is rooted in helping families think through whether medical or surgical interventions would be beneficial for their child at different points in the disease trajectory. As such, communication is the cornerstone skill that a provider of pediatric palliative care must possess. This chapter illustrates fundamental learning points about how to communicate with children and their families.

Variation in Pediatric Palliative Care Allocation Among Critically Ill Children in the United States

2020 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Siobhán O’Keefe, ◽  
Aline B. Maddux ◽  
Kimberly S. Bennett ◽  
Jeanie Youngwerth ◽  
Angela S. Czaja
Keyword(s):  
United States ◽  
Palliative Care ◽  
Critically Ill ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Critically Ill Children ◽  
Care Allocation

Psychologists in pediatric palliative care: Clinical care models within the United States.

2021 ◽  
Author(s):  
Aimee K. Hildenbrand ◽  
Christina M. Amaro ◽  
Colette Gramszlo ◽  
Melissa A. Alderfer ◽  
Carly Levy ◽  
...  
Keyword(s):  
United States ◽  
Palliative Care ◽  
Clinical Care ◽  
The United States ◽  
Pediatric Palliative Care ◽  
Care Models

scholarly journals Settings for Pediatric Palliative Care in the United States

2007 ◽  
Vol 16 (1) ◽  
pp. 42-43
Author(s):  
Ann Armstrong-Dailey ◽  
Jane Koppelman
Keyword(s):  
United States ◽  
Palliative Care ◽  
The United States ◽  
Pediatric Palliative Care

Development of Hospice and Palliative Care in the United States

2008 ◽  
Vol 56 (1) ◽  
pp. 89-99 ◽  
Author(s):  
Stephen R. Connor
Keyword(s):  
United States ◽  
Palliative Care ◽  
Health Care Industry ◽  
The United States ◽  
Regulatory Change ◽  
Care Providers ◽  
Care Industry ◽  
History Of ◽  
Hospice And Palliative Care

More than 30 years have passed since palliative care was introduced in the United States, and what began as a small rebellion has evolved into a fairly large health care industry. Although the palliative care movement has considerably improved the care given to those at the end of life, many challenges remain for palliative care providers in the United States. This article discusses the history of hospice and palliative care in the United States, the Medicare Hospice Benefit, the growth of hospice and palliative care, and challenges such as the need for regulatory change, workforce issues, improving access to care, and improving the quality of palliative care.

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