Institutional Issues
Increasingly, older adults wishing to avoid prolonged dying with dementia are completing advance directives to limit oral nutrition and hydration (ONH) in advanced dementia, but resistance to implementing these directives has arisen within the professional long-term care (LTC) community. Some “dementia directives” call for withholding or withdrawing assisted hand-feeding when specific thresholds are met during dementia’s progression. “Comfort feeding only” (CFO) has been suggested as a best practice in advanced dementia, but CFO may not be sufficient for those wishing to hasten death when advanced dementia develops. Of concern, some LTC facility residents desiring comfort-focused care may be harassed or coaxed to eat and drink by staff as part of “basic care.” It may be possible to identify areas of shared understanding between older people who fear living in advanced dementia and staff who find meaning in caring for demented people who appear to accept or even enjoy ONH.