Establishing Relationships With Specialty Palliative Care for More Complex Patient Needs

2020 ◽  
pp. 67-75
Author(s):  
Kate Schueller ◽  
Joseph D. Rotella
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Palliative Care ◽  
Quality Improvement ◽  
Palliative Care Team ◽  
Patient Needs ◽  
Improve Quality ◽  
Palliative Care Teams ◽  
Whole Person

Interdisciplinary palliative care teams can improve quality of life by addressing the needs and experience of the whole person with chronic kidney disease, including physical, psychological, social, spiritual, cultural, end-of-life, ethical, and practical concerns. Nephrology teams can develop the essential skills to provide primary palliative care for uncomplicated problems, but consultation with a specialty palliative care team is warranted for more severe, complex, or refractory problems. Although specialty palliative care can be delivered in any care setting, it may be a scarce resource outside of a hospital or hospice. Nephrology teams should identify all the specialty palliative care resources available in their community and consider engaging palliative care experts not only in patient care but also in advisory, educational, and quality improvement activities.

scholarly journals Healing at the End of Life: The Voice of the Patient

2014 ◽  
Vol 1 (1) ◽  
Author(s):  
Cory Ingram
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Lived Experience ◽  
End Of Life ◽  
Life Story ◽  
Patient Centered ◽  
Whole Person ◽  
Centered Care ◽  
The Impact

In palliative care we have the privilege to care for seriously ill people and their families. Some people value capturing their life story or illness journey on film. I have been fortunate to have been invited into the lives of many people close the end of life for a heartfelt conversation.On an interactive iPad incorporated in the poster, the recorded narrative of patients and one bereft spouse the poster audience will experience the lived experience of people close to the end of life as they reflect on their lives. The narratives will demonstrate how each lived with a new found improved quality of life in the face of increasing symptoms, declining functioning and the approaching end of life; otherwise known as healing. Topics of healing and quality of life, patient-centered care, dignity, human development, spirituality and love will be the focus of their stories. The stories lay bare the very practical, emotional, existential, and personal experience central to our provision of whole person care through palliative care. The poster audience will experience a renewed sense of the impact of a dedicated approach to whole person care as experienced through those on the receiving end.

scholarly journals Quality Improvement Yields Quality of Life: A Palliative Care Tissue Donation Collaborative (SA508C)

2018 ◽  
Vol 55 (2) ◽  
pp. 642-643
Author(s):  
Karen Blackstone ◽  
Anissa Rahman ◽  
Margaret Gloria ◽  
Elizabeth Cobbs
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Quality Improvement ◽  
Tissue Donation

scholarly journals A Multidimensional Strategy to Improve Quality of Life in Patients with Multiple Symptoms and Palliative Care Needs: the Development of the MuSt-PC

2018 ◽  
Vol 56 (6) ◽  
pp. e60-e61
Author(s):  
Albert de Heij ◽  
Lotte van der Stap ◽  
Agnes van der Heide ◽  
Yvonne Engels ◽  
Heidi Fransen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Improve Quality ◽  
Care Needs ◽  
Multiple Symptoms ◽  
Palliative Care Needs

Reduction of Opioid Side Effects by Prophylactic Measures of Palliative Care Team May Result in Improved Quality of Life

2010 ◽  
Vol 13 (4) ◽  
pp. 401-406 ◽  
Author(s):  
Michiaki Myotoku ◽  
Akiko Nakanishi ◽  
Miwa Kanematsu ◽  
Noriko Sakaguchi ◽  
Norio Hashimoto ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Side Effects ◽  
Palliative Care Team ◽  
Care Team ◽  
Prophylactic Measures

Moving palliative care upstream for patients diagnosed with head and neck cancers.

2020 ◽  
Vol 38 (29_suppl) ◽  
pp. 227-227
Author(s):  
Tamara M Day
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Head And Neck ◽  
Symptom Burden ◽  
Psychosocial Distress ◽  
Head And Neck Cancers ◽  
Improve Quality ◽  
Convenience Sample

227 Background: Adults with cancer face complex treatment choices and symptom burden that impact their quality of life. Goals of palliative care (PC) are to reduce symptom burden and improve quality of life. Strong evidence exists that PC helps reduce symptom burden, decreases hospital utilization, and improve quality of life. Yet, PC remains underutilized, especially in the context of cancer care. Methods: This descriptive longitudinal study evaluated whether use of a psychosocial distress screening tool would help identify patients eligible for PC. A convenience sample of adults with diagnosis of head and neck cancers presenting to an otolaryngology clinic, located in the cancer center of a Midwestern academic health system, were screened for eligibility for PC referral. If eligible, the provider was notified and introduced PC to the patient. Upon acceptance, a PC referral was ordered. The project consisted of baseline (n = 61) and follow-up chart reviews (n = 60) of patients seen in clinic during over a 3-month period. Results: We found an increase in PC referrals from 14.6% at baseline to 30.8% in follow-up, a 227% increase. Psychosocial distress screenings increased from 5% at baseline to 45% in follow-up, an increase of 200%. Of patients who received a PC referral, 85.6% accepted. There were statistically significant differences found between the pre- and post-intervention groups for marital status, χ2 (3) = 9.67, ( p = .02); and cancer stage χ2 (4) = 21.35, ( p = .00) with increased referrals for married patients at higher cancer stages in the prospective group. Conclusions: This study has shown physicians maybe more likely to offer PC referrals based on cancer stages, and not based on psychosocial distress symptoms. Potential barriers to early referral to PC were identified and could serve as useful information for future studies.

Benchmarking: A Tool for Excellence in Palliative Care

1992 ◽  
Vol 8 (4) ◽  
pp. 41-45 ◽  
Author(s):  
J. Alex Murray ◽  
Mary H. Murray
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Total Quality Management ◽  
Continuous Improvement ◽  
Well Being ◽  
The United States ◽  
Palliative Care Team ◽  
Care Providers ◽  
Total Quality

Quietly and without fanfare, total quality management (TQM) is being implemented in a branch of health care where quality of care has particular impact on the patient's comfort and well-being. Some palliative care providers, dedicated to improving the quality of life for the dying, have fulfilled all the criteria to be contenders for prestigious quality honors like the Baldrige Award in the United States and the Canada Award for Excellence. Their secret is simple: the patient defines quality, and the palliative care team acts on that definition. Benchmarking, a TQM tool, allows institutions and organizations to benefit from sharing their best processes, and keeps the TQM continuous improvement cycle on track.

Proxy-Reported Quality of Life and Family Impact for Children Followed Longitudinally by a Pediatric Palliative Care Team

2018 ◽  
Vol 21 (2) ◽  
pp. 241-244 ◽  
Author(s):  
Meaghann Weaver ◽  
Christopher Wichman ◽  
Cheryl Darnall ◽  
Sue Bace ◽  
Catherine Vail ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Palliative Care Team ◽  
Care Team ◽  
Pediatric Palliative Care ◽  
Family Impact
Sign in / Sign up

Export Citation Format

Share Document