AbstractPopulation-based cancer registries have a long-standing role in cancer
monitoring. Scientific use of cancer registry data is one important purpose of
cancer registration, but use of cancer registry data is not restricted to cancer
registries. Cancer registration in Germany is currently heading towards
population-based collection of detailed clinical data. This development together
with additional options for record linkage and long-term follow-up will offer
new opportunities for health services and outcome research. Both regional
population-based registries and the German Centre for Cancer Registry Data
(ZfKD) at the Robert Koch-Institute as well as international cancer registries
and consortia or organizations may provide external researchers access to
individual or aggregate level data for secondary data analysis. In this review,
we elaborate on the access to cancer registry data for research purposes,
availability of specific data items, and options for data linkage with external
data sources. We also discuss as well as on limitations in data availability and
quality, and describe typical biases in design and analysis.
Multivariate Survival Analysis of Human Papilloma Virus-Related Cancers in Men: A Secondary Data Analysis From a Population-Based Cancer Registry
