Metaphors that shape parents' perceptions of effective communication with healthcare practitioners following child death: a qualitative UK study
Objectives To offer an interpretation of bereaved parents' evaluations of communication with healthcare practitioners surrounding the death of a child. Design Interpretative qualitative study employing thematic and linguistic analyses of metaphor embedded in interview data. Setting England and Scotland. Participants 24 bereaved parents (21 women, 3 men) Methods Participants were recruited through the True Colours Trust website and mailing list, similar UK charities, and word of mouth. Following interviews in person or via video-conferencing platforms (Skype/Zoom), transcripts first underwent thematic and subsequently linguistic analyses supported by Nvivo. A focused analysis of metaphors used by the parents was undertaken allow in-depth interpretation of how they conceptualised their experiences. Results The findings illuminate the ways parents experienced communication with healthcare practitioners surrounding the death of a child. They show how their evaluations of effective care relate to the experience of the bereavement itself, as expressed through metaphor. We identified three broad themes: (1) Identity (2) Emotional and Physical Response(s) and (3) Time. Successful communication from healthcare practitioners takes account of parents' experiences related to these themes. Conclusions This study suggests that healthcare practitioners when communicating with bereaved parents need to recognise, and seek to comprehend, the ways in which the loss impacts upon an individual's identity as a parent, the 'physical' nature of the emotions that can be unleashed, and the ways in which the death of a child can alter their metaphorical conceptions of time.