Bereaved parents’ needs regarding hospital based bereavement care after the death of a child to cancer

Death Studies ◽  
2020 ◽  
pp. 1-9
Author(s):  
Stavroula Giorgali
Keyword(s):  
Bereaved Parents ◽  
Death Of A Child ◽  
Bereavement Care

scholarly journals Parental Grief and Marital Issues Aftermath: A Pilot Study

2016 ◽  
Vol 5 (6) ◽  
pp. 17
Author(s):  
Nur Atikah Mohamed Hussin ◽  
Azlinda Azman
Keyword(s):  
Pilot Study ◽  
Coping Mechanisms ◽  
Mutual Understanding ◽  
Parental Grief ◽  
Limited Knowledge ◽  
Bereaved Parents ◽  
Death Of A Child

<p>The death of a child is difficult to the bereaved parents. Literature had associated the loss with marriage disruption. The issues on that the difficulties to communicate, gender-related coping mechanisms and sexual need were discussed as reasons for bereaved parents to have conflict in their relationship. However there is limited knowledge about this issue. A pilot study has been conducted among six bereaved parents. The bereaved parents were Malaysian Muslim bereaved parents. They were interviewed individually to explore the challenges or conflicts that they had experienced after the death of their child. This study revealed that there were situations which bereaved parents described as having difficulties in their relationship. However, this study also revealed that the mutual understanding and respect to each other are the most of important components for bereaved parents to maintain their relationship post-loss. This study suggested the importance of suggesting couple counselling to bereaved parents after the death of their child.</p>

scholarly journals A Systematic Literature Review of the Current State of Knowledge Related to Interventions for Bereaved Parents

2019 ◽  
Vol 36 (12) ◽  
pp. 1124-1133 ◽  
Author(s):  
Nancy Dias ◽  
Verna L. Hendricks-Ferguson ◽  
Holly Wei ◽  
Elizabeth Boring ◽  
Kerry Sewell ◽  
...  
Keyword(s):  
Literature Review ◽  
Systematic Literature Review ◽  
Emotional Health ◽  
Group Discussions ◽  
Assessment Development ◽  
Bereaved Parents ◽  
Mesh Terms ◽  
Support Resource ◽  
State Of The Science ◽  
Bereavement Care

Aims: The purpose of this systematic literature review is to describe the interventions for bereaved parents, evaluate intervention effectiveness through study methodology rigor, replicability, and theoretical foundations. Methods: We searched MEDLINE via PubMed (1966-2018), CINAHL (1937-present), PsycINFO (1887-present), and Embase (1947-present) using various search words and MeSH terms related to the study purpose. A blinded screening of title/abstract was performed, with conflicting inclusion decisions resolved through group discussions. Matrices for remaining articles were created and discussed among the team. The levels of evidence of the 9 records were rated from very low to high based on the Grading of Recommendations Assessment, Development, and Evaluation guidelines. Results: Our initial pool included 1025 articles. After the screening of titles/abstracts, 63 articles were retained for full-text reviews. Evaluated based on the inclusion/exclusion criteria, 9 records met the review criteria. Of the 9 records, 1 was graded as very low, 3 low, and 5 low to moderate. The interventions for bereaved parents varied from using single-model interventions such as expressive arts therapy and telephone support to multimodal interventions that combined resources (ie, peer support, resource packets, and health-care support). Only 1 study explicitly illustrated how its bereavement intervention was designed based on the proposed theoretical model. Conclusions: This review highlights the need for individualized, well-tested, and effective bereavement care interventions to support bereaved parents. In summary, the state of the science on interventions for bereaved parents is poor and much work needs to be done to effectively address the needs of bereaved parents, including both their physical and emotional health needs.

scholarly journals Bereavement Care for Parents in the Neonatal Intensive Care Unit: A Literature Review

2020 ◽  
Vol 26 (2) ◽  
pp. 286-295
Author(s):  
Wonjin Seo ◽  
Hyejung Lee ◽  
Sumi Oh ◽  
Hyoeun Sa ◽  
Hyoyeong Kim
Keyword(s):  
Social Support ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
Literature Review ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Cochrane Library ◽  
Care Providers ◽  
Bereaved Parents ◽  
Bereavement Care

Purpose: The purpose of this study was to review studies investigating the effect of bereavement care provided for parents in the neonatal intensive care unit. Methods: We conducted a literature review of databases (MEDLINE, Embase, Cochrane Library, and CINAHL) for studies published in English and four databases (RISS, KISS, NANET, and KoreaMed) for Korean studies. The selection criteria included original articles that evaluated the parents’ perceptions or responses to bereavement care provided in the neonatal intensive care unit. Of 889 articles from the initial screening, 66 articles underwent full-text review and five articles were finally selected for analysis. Results: None of the studies was conducted in Korea. Only one study used a randomized control trial design. The forms of bereavement care reviewed included a provision of a memory package, grief information, and emotional and/or social support from peers or health care providers. The effectiveness of bereavement care was measured by including grief, social support, and depression. Conclusion: Bereavement care can be considered to be beneficial for relieving grief reactions and enhancing the personal growth of bereaved parents. Future research should assess the needs of bereaved parents in Korea. Nurses may play a role in developing the bereavement care for parents.

Parental Bereavement: A Panoramic View

2012 ◽  
Vol 64 (1) ◽  
pp. 41-63 ◽  
Author(s):  
Sonya Hunt ◽  
Abraham P. Greeff
Keyword(s):  
Risk Factor ◽  
Cause Of Death ◽  
Qualitative Approach ◽  
Parental Bereavement ◽  
Panoramic View ◽  
Cognitive Reactions ◽  
Bereaved Parents ◽  
Death Of A Child ◽  
The Family ◽  
Grief Reactions

This study is aimed at identifying central themes of bereavement. A qualitative approach was employed in the analyses of interviews with 22 bereaved parents. The analyses yielded four central issues or themes of bereavement, each with its own set of sub-themes or categories, as the narrative demanded. The first of these themes, pertaining to the life of the family before the death of a child had taken place, was named the risk factor. Circumstances leading up to the death, surrounding the death, the cause of death, and the events following the death were coded as bereavement circumstances. The grief reactions codes were divided into categories of emotional, physical, behavioral, relational, spiritual, and cognitive reactions, as described by the participants. Finally, the mourning codes described the mechanisms employed by the participants in their attempts to survive and continue living after the death. These findings can be used in the training of support workers and the development of bereavement interventions.

Life after the Death of a Child: Initial and Long Term Support from Others

1995 ◽  
Vol 31 (1) ◽  
pp. 67-85 ◽  
Author(s):  
Sarah Brabant ◽  
Craig Forsyth ◽  
Glenda McFarlain
Keyword(s):  
Social Impact ◽  
Social Contexts ◽  
Symbolic Interactionist ◽  
Child Deaths ◽  
Bereaved Parents ◽  
Death Of A Child ◽  
The Social ◽  
Interactionist Perspective ◽  
Point Of Departure

This article presents research on both the source and continuity of support received by bereaved parent(s) within four different social contexts: family, friends, co-workers, and clergy. The data were obtained from a study conducted in 1990–91 on the social impact of the death of a child, and are drawn from fourteen interviews with bereaved parents representing nine families and ten child deaths. The responses to three questions are considered. First, how were you treated by family members and close friends? What were their expectations? Second, how were you treated by your boss and co-workers when you returned to work? What were their expectations? And, finally, how did your clergy treat you? Using the work of Therese Rando and William Worden as point of departure, social support or lack thereof for the bereaved parent is reexamined from a symbolic interactionist perspective. Implications for grief counseling are discussed.

scholarly journals Facing Loss and Finding Hope in Narrating Together: Accounts of Parenthood Following the Death of a Child to Muscular Dystrophy

2021 ◽  
pp. 105413732110137
Author(s):  
James Randall ◽  
Lizette Nolte ◽  
David Wellsted
Keyword(s):  
Muscular Dystrophy ◽  
Narrative Inquiry ◽  
Muscle Wasting ◽  
Positive Influence ◽  
Narrative Interviews ◽  
Potential Value ◽  
Collaborative Processes ◽  
Bereaved Parents ◽  
Death Of A Child ◽  
Waking Up

Muscular dystrophy is a terminal muscle-wasting condition, whereby families face continuous challenges as their child’s health deteriorates. This research explored accounts of parenthood following bereavement of their child to muscular dystrophy. Narrative inquiry was used to analyse interviews with four couples. Findings suggest an importance in narrating adversities ( waking up to different futures) and positive influence ( creating legacies). The research highlighted how humour is often used to support others to witness painful accounts ( humour through the struggle). Parents appeared to co-regulate the painfulness of narrating loss ( storytelling together). Further research is needed on conjoint narrative interviews and how these may enable participants to address shared loss experiences. Practitioners who support bereaved parents could consider the potential value highlighted in this study of meeting with parents conjointly, which include that, through co-regulatory, collaborative processes, families seemed to be supported to reach narrative cohesion, sensitively and safely, when facing loss and bereavement.

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