scholarly journals Development and validation of a simple web‐based tool for early prediction of COVID‐19‐associated death in kidney transplant recipients

2021 ◽  
Author(s):  
Luis Gustavo Modelli de Andrade ◽  
Tainá Veras de Sandes‐Freitas ◽  
Lúcio R. Requião‐Moura ◽  
Laila Almeida Viana ◽  
Marina Pontello Cristelli ◽  
...  
Keyword(s):  
Kidney Transplant ◽  
Early Prediction ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Web Based ◽  
Development And Validation

Using Facebook in Recruiting Kidney Transplant Recipients for a REDCap Study

2019 ◽  
Vol 41 (12) ◽  
pp. 1790-1812 ◽  
Author(s):  
Shu-Yu Chung ◽  
Eileen D. Hacker ◽  
Susan Rawl ◽  
Rebecca Ellis ◽  
Tamilyn Bakas ◽  
...  
Keyword(s):  
Kidney Transplant ◽  
Support Groups ◽  
Online Survey ◽  
Response Times ◽  
Survey Response ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Web Based ◽  
The Cost ◽  
Missing Item

This web-based study recruited kidney transplant recipients from Facebook using three recruiting methods over a 5-week period. Participants completed 125 survey items via REDCap (Research Electronic Data Capture) survey. Facebook recruitment generated 153 eligible participants who completed surveys. The average survey response time was 15.07 min ( SD = 6.12; range: 4-43), with a low missing item rate (<5%). Facebook’s standard ads were most effective for recruiting subjects ( n = 78, 51%), followed by three targeted Facebook kidney transplant support groups ( n = 52, 34%) and a pay-to-promote study page ( n = 12, 7.8%). The average cost paid for each valid survey was US$2.19 through standard Facebook ads and US$2.92 from the study page. The cost for online survey completion is economically feasible even for those with limited funds. Issues related to online surveys including extreme survey response times and participant misrepresentation were reported in this study.

Early Prediction of Cardiovascular Disease in Kidney Transplant Recipients

2017 ◽  
Vol 49 (9) ◽  
pp. 2092-2098 ◽  
Author(s):  
G. Bilancio ◽  
M. Celano ◽  
V. Cozza ◽  
F. Zingone ◽  
G. Palladino ◽  
...  
Keyword(s):  
Cardiovascular Disease ◽  
Kidney Transplant ◽  
Early Prediction ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients

scholarly journals Web-Based Tailored Intervention to Support Optimal Medication Adherence Among Kidney Transplant Recipients: Pilot Parallel-Group Randomized Controlled Trial (Preprint)

2017 ◽  
Author(s):  
José Côté ◽  
Marie-Chantal Fortin ◽  
Patricia Auger ◽  
Geneviève Rouleau ◽  
Sylvie Dubois ◽  
...  
Keyword(s):  
Medication Adherence ◽  
Kidney Transplant ◽  
Controlled Trial ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Web Based ◽  
Randomized Controlled ◽  
Parallel Group ◽  
Experimental Group ◽  
Over Time

BACKGROUND Optimal immunosuppressive medication adherence is essential to graft survival. Transplant-TAVIE is a Web-based tailored intervention developed to promote this adherence. OBJECTIVE The objective of our study was to evaluate the Transplant-TAVIE intervention’s acceptability, feasibility, and preliminary efficacy. METHODS In a pilot, parallel-group, randomized controlled trial, we randomly assigned a convenience sample of 70 kidney transplant patients on immunosuppressive medication either to an experimental group (Transplant-TAVIE) or to a control group (existing websites). Kidney transplant recipients had to be older than 18 years, be taking immunosuppressant medication, and have access to the internet to participate in this study. Transplant-TAVIE was composed of three interactive Web-based sessions hosted by a virtual nurse. We documented user appreciation of and exposure to the intervention. Furthermore, we assessed medication adherence, medication self-efficacy, intake-related skills, and medication side effects at baseline and 3 and 6 months later. Analyses of variance were used to assess intergroup differences over time. RESULTS After baseline questionnaire completion, participants were randomly assigned either to Transplant-TAVIE (n=35) or to the websites (n=35) group. All participants had received their kidney graft <1 year to 32 years earlier (mean 6.8 years). Of the experimental group, 54% (19/35) completed the sessions of Transplant-TAVIE. Users found the intervention to be acceptable—33% were extremely satisfied (6/18), 39% were very satisfied (7/18), and 28% were satisfied (5/18). At baseline and over time, both experimental and control groups reported high medication adherence, high medication self-efficacy, and frequent use of skills related to medication intake. No intergroup differences emerged over time. CONCLUSIONS The results of this study support the feasibility and acceptability of Transplant-TAVIE. It could constitute an accessible adjunct in support of existing specialized services.

scholarly journals Development and Validation of a Multiplex Non-HLA Antibody Assay for the Screening of Kidney Transplant Recipients

2018 ◽  
Vol 9 ◽  
Author(s):  
Elena G. Kamburova ◽  
Tineke Kardol-Hoefnagel ◽  
Bram W. Wisse ◽  
Irma Joosten ◽  
Wil A. Allebes ◽  
...  
Keyword(s):  
Kidney Transplant ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Antibody Assay ◽  
Development And Validation ◽  
Hla Antibody

scholarly journals Web-Based Self-Management Guide for Kidney Transplant Recipients (The Getting on With Your Life With a Transplanted Kidney Study): Protocol for Development and Preliminary Testing (Preprint)

2019 ◽  
Author(s):  
Daniela Massierer ◽  
Ruth Sapir-Pichhadze ◽  
Vanessa Bouchard ◽  
Kaberi Dasgupta ◽  
Nicolas Fernandez ◽  
...  
Keyword(s):  
Health Care ◽  
Focus Groups ◽  
Needs Assessment ◽  
Kidney Transplant ◽  
Health Care Team ◽  
Care Team ◽  
Self Management ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Web Based

BACKGROUND Although it is well known that compared with dialysis, kidney transplantation improves the quality of life (QoL) of patients with end-stage renal disease, posttransplant recovery of physical health and other aspects of QoL remain well below age- and sex-matched norms. In addition, most transplant recipients are not physically active even years after the transplant and face several barriers to engaging in physical activity (PA). This is of concern as low levels of PA in transplant recipients has been associated with increased risk of mortality and poor graft function. Optimization of QoL needs a team approach involving the patients and the members of the health care team. While members of the health care team are focused on optimizing the biological responses to transplant, patients may have few or no tools at their disposal to engage in behaviors that optimize QoL. To accomplish the need of supporting these patients in the self-management of their condition and to facilitate engagement with PA, new tools tailored to this population are required. OBJECTIVE The aim of this protocol study is to develop a Web-based, patient-centered self-management intervention to promote a healthy lifestyle, increase daily PA, and improve QoL in kidney transplant recipients. METHODS We will use the Obesity-Related Behavioral Intervention Trials model for developing behavioral treatments for chronic diseases to guide the proposed project. We will follow a modified version of the iterative 10-step process that was used to develop educational material for people with multiple sclerosis. The development of the intervention will occur in partnership with patients and a multidisciplinary team of clinicians and researchers. A comprehensive needs assessment including data from our pilot study, literature review, and focus groups will be conducted. The focus groups will be conducted with 6 to 10 participants for each type of stakeholders: patients and professional experts to identify areas of concerns of kidney transplant recipients that are appropriate to address through self-management. The areas of concern identified through the assessment needs will be included in the website. RESULTS This study has received funding from the Kidney Foundation of Canada for 2 years (2018-2020) and was recently granted ethics approval. Investigators have begun conducting the needs assessment described in step 1 of the study. The study is expected to be completed by the end of 2020. CONCLUSIONS This will be the first comprehensive, evidence- and experience-based self-management program for kidney transplant recipients. Once the intervention is developed, we anticipate improvements in patient experience, shared decision making, daily PA, QoL, and, in future studies, improvements in health outcomes and demonstrations of cost savings in posttransplant care. INTERNATIONAL REGISTERED REPOR PRR1-10.2196/13420

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