Professionals’ perceptions of pain communication of children with cerebral palsy in South African school settings

2016 ◽  
Vol 58 ◽  
pp. 40-40
Keyword(s):  
Cerebral Palsy ◽  
South African ◽  
School Settings ◽  
Pain Communication ◽  
Children With Cerebral Palsy ◽  
South African School

scholarly journals How pain management for children with cerebral palsy in South African schools complies with up-to-date knowledge

2019 ◽  
Vol 8 ◽  
Author(s):  
Ensa Johnson ◽  
Stefan Nilsson ◽  
Margareta Adolfsson
Keyword(s):  
Cerebral Palsy ◽  
Pain Management ◽  
South African ◽  
Scientific Knowledge ◽  
Waiting Times ◽  
System Level ◽  
Evidence Based ◽  
Special Educational Needs ◽  
Published Evidence ◽  
Children With Cerebral Palsy

Background: Pain in children with cerebral palsy (CP) has its sources in musculoskeletal problems that can influence learning in a school setting. Best pain management is essential for these children, but school staff may not keep up to date with the latest developments and interventions. Therefore, staff’s perceptions of beneficial strategies may not comply with contemporary scientific knowledge about effective evidence-based interventions.Objectives: This study investigated how pain management intervention for children with CP in South African schools complied with international scientific knowledge about evidence-based interventions. The intention was to provide support for an update of knowledge on both individual level (i.e. professionals) and system level (i.e. decision makers).Method: Five focus groups were conducted with staff members at five schools for children with special educational needs in South Africa. Manifest and latent content analyses of professional statements identified interventions reported as beneficial and related them to higher and lower levels of intervention evidence as reported at the time of data collection.Results: Most treatment strategies concerned motor functioning that fell within the framework of physiotherapists and occupational therapists. Access to orthopaedic expertise was limited, waiting times were long and medication for spasticity treatment was not offered.Conclusion: A discrepancy between published evidence and clinical practice for pain management in children with CP in South African school settings was noted. Suggestions for improved early intervention to identify children’s hips at risk through surveillance programmes; and orthopaedic management are proposed to prevent deformities and unnecessary suffering in South African children with CP.

scholarly journals Using caregivers’ perceptions of rehabilitation services for children with Cerebral Palsy at public sector hospitals to identify the components of an appropriate service

2011 ◽  
Vol 67 (3) ◽  
Author(s):  
G.M. Saloojee ◽  
P.L. Rosenbaum ◽  
A.V. Stewart
Keyword(s):  
Cerebral Palsy ◽  
Public Sector ◽  
South African ◽  
Rehabilitation Service ◽  
Rehabilitation Services ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Essential Components ◽  
Children With Cerebral Palsy ◽  
Appropriate Therapy

Despite  a  growing  body  of  evidence  favouring  a  family-centred approach to rehabilitation services for children with cerebral palsy (cp), the essential components for a quality service for children with disabilities and their families living in poorly-resourced South African (SA) settings  remains unknown.  The  study  aimed  to  identify  key  components of  an appropriate  rehabilitation  service  which  would  meet  the  needs of children  with  CP  and  their  caregivers  at  SA  public  sector  hospitals. This cross-sectional descriptive study used the modified Measure of processes of care (Mpoc-20) questionnaire together with two open-endedquestions with  a  convenience  sample  of  caregivers attending therapy  at  CP  Clinics in gauteng and limpopo hospitals. A total of 263 caregivers attending cerebral palsy clinics at 31 public sector hospitals in gauteng and limpopo were interviewed. Kind and caring attitudes, exercises or “training” for the child,  and  practical  assistance  (handling  ideas  and suggestions,  assistive devices, food supplements, nappies, advice) were components of care most valued. The most frustration was caused by long queues waiting for files or at the pharmacy and being treated disrespectfully whilst providing caregivers with information and explanations regarding treatment choice were services that could be improved.  Key components for  an  appropriate  therapy  service  include  caring  and respectful  attitudes,  hands-on  therapy,  handling  suggestions and practical assistance. Logistical and administrative procedures together with disrespectul and unhelpful attitudes negatively impact rehabilitation service delivery.

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