scholarly journals Barriers to palliative care in sexual and gender minority patients with cancer: A scoping review of the literature

Author(s):  
Kelly Haviland ◽  
Chasity Burrows Walters ◽  
Susan Newman
Cancer ◽  
2019 ◽  
Vol 125 (24) ◽  
pp. 4371-4379 ◽  
Author(s):  
Erin E. Kent ◽  
Christopher W. Wheldon ◽  
Ashley Wilder Smith ◽  
Shobha Srinivasan ◽  
Ann M. Geiger

2019 ◽  
Vol 37 (6) ◽  
pp. 418-423 ◽  
Author(s):  
Elizabeth Cathcart-Rake ◽  
Jennifer M. O’Connor ◽  
Jennifer L. Ridgeway ◽  
Carmen Radecki Breitkopf ◽  
Lois J. Mc Guire ◽  
...  

Background: Although national organizations advocate that health-care providers ask patients about sexual health and sexual and gender minority status—to learn, for example, about side effects of treatment and to understand patients’ social support—these conversations often do not occur. This study explored health-care providers’ reasons for having/not having these conversations. Methods: This single-institution study recruited health-care providers from medical oncology, hematology, radiation oncology, and gynecology. Face-to-face interviews were recorded, transcribed, and analyzed qualitatively. Results: Three main themes emerged: (1) patient-centric reasons for discussing/not discussing sexual health and sexual and gender minority status (“So I think just the holistic viewpoint is important”); (2) health-care provider–centric reasons for discussing/not discussing these issues (“That’s going to take more time to talk about and to deal with…” or “I was raised orthodox, so this is not something we talk about…”; and (3) reasons that appeared to straddle both of the above themes (eg, acknowledgment of the sometimes taboo nature of these topics). Conclusion: Although many health-care providers favor talking with patients with cancer about sexual health and sexual and gender minority status, limited time, personal reluctance, and the taboo nature of these topics appear at times to hamper the initiation of these conversations.


2018 ◽  
Vol 5 (2) ◽  
pp. 158-173 ◽  
Author(s):  
Jeremy D. Kidd ◽  
Kasey B. Jackman ◽  
Margaret Wolff ◽  
Cindy B. Veldhuis ◽  
Tonda L. Hughes

2020 ◽  
Vol 16 (6) ◽  
pp. 309-316
Author(s):  
Gwendolyn P. Quinn ◽  
Ash B. Alpert ◽  
Megan Sutter ◽  
Matthew B. Schabath

Sexual and gender minority (SGM) individuals encompass a broad spectrum of sexual orientations and gender identities. Although SGM is a research term, this population is often known as lesbian, gay, bisexual, transgender, queer (LGBTQ). Typically, LGB refers to sexual orientation, T refers to gender identity, and Q may refer to either. Although each group is distinct, they share the common bond of experiencing health disparities that may be caused, in part, by stigma and discrimination, as well as by the oncology provider’s lack of knowledge and, therefore, lack of comfort in treating this population. One challenge in improving the quality of care for SGM patients with cancer is the lack of collection of sexual orientation and gender identity (SOGI) data in the medical record. Furthermore, national studies suggest that many oncologists are unsure of what to do with this information, even when it is collected, and some are uncertain as to why they would need to know the SOGI of their patients. This clinical review offers insight into the health disparities experienced by SGM individuals and strategies for improving the clinical encounter and creating a welcoming environment.


Author(s):  
Jeremy D. Kidd ◽  
Margaret M. Paschen-Wolff ◽  
Amy A. Mericle ◽  
Billy A. Caceres ◽  
Laurie A. Drabble ◽  
...  

2020 ◽  
Vol 3 ◽  
pp. 11 ◽  
Author(s):  
Nerilee Ceatha ◽  
Marta Bustillo ◽  
Louise Tully ◽  
Oscar James ◽  
Des Crowley

Background: There is much concern at the substantial vulnerabilities experienced by lesbian, gay, bisexual, transgender and intersex (LGBTI+) youth as a consequence of discrimination, stigmatisation and marginalisation. Recent research highlights the importance of understanding factors that can promote wellbeing for this population. This paper presents a protocol for a scoping review which aims to systematically map and synthesise the extent and nature of the peer-reviewed, published academic literature on the protective factors that promote wellbeing for sexual and gender minority young people. Methods: In accordance with the methodological framework for scoping reviews, the following six stages will be undertaken: (1) identifying the research question, (2) identifying relevant studies, (3) study selection, (4) charting the data, (5) collating, summarising and reporting results and (6) consultation. The PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation will be used throughout the review process. Key inclusion criteria will use the Population, Concept, Context approach, with two reviewers independently conducting the screening and extraction stages across five databases. Identified protective factors will be collated, summarised and categorised iteratively by one reviewer in consultation with the review team. Stakeholder consultation is a key strength of the scoping review process and will be complemented by the public patient involvement of LGBTI+ young people with expertise by experience. Conclusions: The scoping review has the potential to inform policy, practice and future research through enhanced understandings of the complex interplay of factors that promote wellbeing for sexual and gender minority youth. This first stage of the research process will inform the development of a larger research project. The findings will be disseminated through a peer reviewed publication, a conference presentation and by sharing the findings with key stakeholders, including LGBTI+ young people.


2021 ◽  
pp. 152483802110438
Author(s):  
Edward J. Alessi ◽  
Shannon Cheung ◽  
Sarilee Kahn ◽  
Melanie Yu

Violence against sexual and gender minority (SGM) individuals has continued to proliferate globally. Yet, less is known about victimization among subgroups of SGM individuals, especially SGM immigrants, refugees, and asylum seekers. There has been a steady increase in this vulnerable group of migrants over the years, and emerging evidence has pointed to their heightened risk of victimization. We conducted a scoping review of the peer-reviewed literature that examined violence, abuse, and mental health among SGM individuals who migrate internationally. One hundred ninety-nine articles were identified by searching five scholarly databases and hand searching. Twenty-six articles met inclusion criteria. We first used the migration framework, which outlines the distinct phases of the migration trajectory (predeparture, travel, interception, destination, and return), to categorize findings and then identified four overarching themes to capture SGM migrants’ experiences at each phase: severe and prolonged violence and abuse related to sexual orientation or gender identity (predeparture); continued victimization and high-risk for sexual violence (travel); detainment- and deportation-related violence and abuse (interception and return); and new manifestations of violence and abuse while living with past trauma (destination). Violence and abuse began in childhood and continued in the host country, where they faced discrimination while managing posttraumatic stress disorder and depression. Findings indicate that SGM migrants are extremely vulnerable to victimization. There is an immediate need for policies to protect SGM individuals worldwide and for affirmative, culturally informed practices to help SGM migrants manage trauma and the structural barriers impeding recovery.


2020 ◽  
Author(s):  
Christina L. Tamargo ◽  
Edith P. Mitchell ◽  
Lynne I. Wagner ◽  
Melissa A. Simon ◽  
Ruth C. Carlos ◽  
...  

2020 ◽  
Author(s):  
Wilson S. Figueroa ◽  
Peggy M. Zoccola ◽  
Andrew W. Manigault ◽  
Katrina R. Hamilton ◽  
Matt C. Scanlin ◽  
...  

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