scholarly journals Long-term follow-up of coeliac disease - what do coeliac patients want?

2006 ◽  
Vol 23 (6) ◽  
pp. 827-831 ◽  
Author(s):  
J. R. BEBB ◽  
A. LAWSON ◽  
T. KNIGHT ◽  
R. G. LONG
Keyword(s):  
Coeliac Disease ◽  
Long Term Follow Up

scholarly journals Cancer incidence and factors associated with malignancies in coeliac disease during long‐term follow‐up

GastroHep ◽  
2021 ◽  
Vol 3 (2) ◽  
pp. 107-115
Author(s):  
Inka Koskinen ◽  
Kaisa Hervonen ◽  
Eero Pukkala ◽  
Timo Reunala ◽  
Katri Kaukinen ◽  
...  
Keyword(s):  
Coeliac Disease ◽  
Cancer Incidence ◽  
Factors Associated ◽  
Long Term Follow Up

Coeliac Disease

2009 ◽  
Vol 2 (8) ◽  
pp. 471-478
Author(s):  
Emily Foley
Keyword(s):  
Coeliac Disease ◽  
Failure To Thrive ◽  
Chronic Diarrhoea ◽  
Improve Symptom ◽  
Long Term Follow Up ◽  
Symptom Awareness ◽  
Life Threatening ◽  
Autoimmune Condition

Coeliac disease has historically been considered a rare gastro-intestinal disorder with most clinicians expecting to recognize the overt childhood presentation of chronic diarrhoea, malabsorption and failure to thrive. In fact, it is estimated to affect 1% of the general population, often presenting in adulthood with a multitude of intestinal and extra-intestinal manifestations. It is a chronic, permanent, autoimmune condition, which if left untreated, can be potentially life threatening. The only effective treatment is complete, lifelong removal of gluten from the diet with long-term follow-up. Currently, for every adult patient diagnosed, eight cases are estimated to go undetected, indicating a failure in case finding in primary care. This article aims to improve symptom awareness of coeliac disease, highlight common pitfalls in diagnosis and management, discuss common associations and provide guidance in gluten-free prescribing.

scholarly journals Lack of long-term follow-up after paediatric-adult transition in coeliac disease is not associated with complications, ongoing symptoms or dietary adherence

2020 ◽  
Vol 8 (2) ◽  
pp. 157-166
Author(s):  
Laura Kivelä ◽  
Sointu Hekkala ◽  
Heini Huhtala ◽  
Katri Kaukinen ◽  
Kalle Kurppa
Keyword(s):  
Coeliac Disease ◽  
Term Treatment ◽  
Dietary Adherence ◽  
Diagnostic Features ◽  
Adult Transition ◽  
Unsuccessful Treatment ◽  
Long Term Treatment ◽  
Long Term Follow Up

Background Follow-up of coeliac disease is recommended to prevent complications associated with unsuccessful treatment. Objective The objective of this article is to evaluate the implementation and significance of long-term follow-up. Methods Medical data were collected from 585 and follow-up questionnaires sent to 559 current adult coeliac disease patients diagnosed in childhood. Diagnostic features and adulthood health outcomes were compared between those with and without adulthood follow-up. Results Of paediatric patients, 92% were followed up 6–24 months after diagnosis. A total of 235 adults responded to the questionnaires a median of 18 years after diagnosis, and 25% of them reported regular follow-up. They were diagnosed more recently than those without follow-up (median year 2001 vs 1995, p = 0.001), being otherwise comparable at diagnosis. Those with follow-up were less often smokers (5% vs 16%, p = 0.042) and relatives of coeliac patients (48% vs 66%, p = 0.018), and more often students (48% vs 28%, p = 0.005) and type 1 diabetics (19% vs 4%, p = 0.001). Lack of follow-up was not associated with complications, ongoing symptoms, poorer general health or dietary adherence. All completely non-adherent patients were without follow-up. Conclusions Most coeliac disease patients diagnosed in childhood were not followed up according to recommendations in adulthood. The individual effect of this on long-term treatment outcomes varied markedly.

scholarly journals Mortality in people with coeliac disease: Long‐term follow‐up from a Scottish cohort

2019 ◽  
Vol 7 (3) ◽  
pp. 377-387 ◽  
Author(s):  
Wilhemina Quarpong ◽  
Timothy R Card ◽  
Joe West ◽  
Masoud Solaymani-Dodaran ◽  
Richard FA Logan ◽  
...  
Keyword(s):  
Coeliac Disease ◽  
Long Term Follow Up

scholarly journals LONG TERM FOLLOW-UP (over 10 years) IN CONFIRMED COELIAC DISEASE

1989 ◽  
Vol 26 (3) ◽  
pp. 280-280
Author(s):  
J P Olives ◽  
C L E Tallec ◽  
E Aramouni ◽  
J Ghisolfi
Keyword(s):  
Coeliac Disease ◽  
Long Term Follow Up

scholarly journals Long-term follow-up in adults with coeliac disease: Predictors and effect on health outcomes

2018 ◽  
Vol 50 (11) ◽  
pp. 1189-1194 ◽  
Author(s):  
Henna Pekki ◽  
Katri Kaukinen ◽  
Tuire Ilus ◽  
Markku Mäki ◽  
Heini Huhtala ◽  
...  
Keyword(s):  
Health Outcomes ◽  
Coeliac Disease ◽  
Long Term Follow Up

scholarly journals The Long-Term Safety and Quality of Life Effects of Oats in Dermatitis Herpetiformis

Nutrients ◽  
2020 ◽  
Vol 12 (4) ◽  
pp. 1060
Author(s):  
Anna Alakoski ◽  
Kaisa Hervonen ◽  
Eriika Mansikka ◽  
Timo Reunala ◽  
Katri Kaukinen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Coeliac Disease ◽  
Dermatitis Herpetiformis ◽  
Gastrointestinal Symptoms ◽  
Long Term Follow Up ◽  
Assess Quality

The treatment of choice for dermatitis herpetiformis (DH), a cutaneous manifestation of coeliac disease, is a life-long gluten-free diet (GFD). In a GFD, wheat, rye and barley should be strictly avoided, but the role of oats is more controversial. This study aimed to investigate the safety and long-term quality of life and health effects of oat consumption in 312 long-term treated DH patients. Baseline data were gathered from patient records and follow-up data from questionnaires or interviews, and validated questionnaires were used to assess quality of life. We found that altogether 256 patients (82%) were consuming oats as part of their GFD at the follow-up. Long-term follow-up data showed that there were no differences in the presence of long-term illnesses, coeliac disease complications or the usage of medication between those consuming and not consuming oats. However, oat consumers had a better quality of life and reported ongoing gastrointestinal symptoms less frequently (4% vs 19%, p = 0.004) at the follow-up than those not consuming oats. The study established that oats are safe for DH patients and in the long-term seem to improve the quality of life of DH patients.

Therapy and prevention for mental health: What if mental diseases are mostly not brain disorders?

2019 ◽  
Vol 42 ◽  
Author(s):  
John P. A. Ioannidis
Keyword(s):  
Mental Health ◽  
Mental Disease ◽  
Brain Disorders ◽  
Social Stressors ◽  
Labor Education ◽  
Mental Diseases ◽  
Long Term Follow Up ◽  
Political Decisions

AbstractNeurobiology-based interventions for mental diseases and searches for useful biomarkers of treatment response have largely failed. Clinical trials should assess interventions related to environmental and social stressors, with long-term follow-up; social rather than biological endpoints; personalized outcomes; and suitable cluster, adaptive, and n-of-1 designs. Labor, education, financial, and other social/political decisions should be evaluated for their impacts on mental disease.

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