The Department of Health research studies in child protection: a response to Parton

1996 ◽  
Vol 1 (2) ◽  
pp. 115-118 ◽  
Author(s):  
Rupert Hughes
Keyword(s):  
Child Protection ◽  
Health Research ◽  
Department Of Health ◽  
Research Studies

scholarly journals Principles for the production and dissemination of recruitment material for three clinical trials of an online intervention

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Stefan Rennick-Egglestone
Keyword(s):  
Social Media ◽  
Clinical Trials ◽  
Health Research ◽  
Online Intervention ◽  
Ethics Committee ◽  
Promotional Material ◽  
Media Campaigns ◽  
Social Media Platforms ◽  
Ethical Oversight ◽  
Research Studies

AbstractSome health research studies recruit participants through electronic mechanisms such as the placement of messages on social media platforms. This raises questions for ethics committee oversight, since effective social media campaigns might involve the production and dissemination of hundreds of contemporaneous messages. For the Narrative Experiences Online (NEON) study, we have developed nine principles to control the production and dissemination of promotional material. These have been approved by an ethics committee and enable the audit of our recruitment work. We propose that the drafting for approval of recruitment principles by health research studies may, in many cases, strike an appropriate balance between enabling ethical oversight of online recruitment work and the potential burden of message review.

scholarly journals Fast Healthcare Interoperability Resources (FHIR) in a FAIR Metadata Registry for COVID-19 Research

2021 ◽  
Author(s):  
Sophie Anne Ines Klofenstein ◽  
Carina Nina Vorisek ◽  
Aliaksandra Shutsko ◽  
Moritz Lehne ◽  
Julian Sass ◽  
...  
Keyword(s):  
Public Health ◽  
Health Research ◽  
Public Health Research ◽  
International Standards ◽  
Metadata Schema ◽  
Research Communities ◽  
Resource Type ◽  
Research Studies

Adopting international standards within health research communities can elevate data FAIRness and widen analysis possibilities. The purpose of this study was to evaluate the mapping feasibility against HL7® Fast Healthcare Interoperability Resources® (FHIR)® of a generic metadata schema (MDS) created for a central search hub gathering COVID-19 health research (studies, questionnaires, documents = MDS resource types). Mapping results were rated by calculating the percentage of FHIR coverage. Among 86 items to map, total mapping coverage was 94%: 50 (58%) of the items were available as standard resources in FHIR and 31 (36%) could be mapped using extensions. Five items (6%) could not be mapped to FHIR. Analyzing each MDS resource type, there was a total mapping coverage of 93% for studies and 95% for questionnaires and documents, with 61% of the MDS items available as standard resources in FHIR for studies, 57% for questionnaires and 52% for documents. Extensions in studies, questionnaires and documents were used in 32%, 38% and 43% of items, respectively. This work shows that FHIR can be used as a standardized format in registries for clinical, epidemiological and public health research. However, further adjustments to the initial MDS are recommended – and two additional items even needed when implementing FHIR. Developing a MDS based on the FHIR standard could be a future approach to reduce data ambiguity and foster interoperability.

scholarly journals Child Protective Services and University-Based Partnerships: A Participatory Action-Based Model for Creating and Sharing Knowledge

2020 ◽  
Vol 4 (2) ◽  
pp. 118-128 ◽  
Author(s):  
Randall L. Waechter ◽  
Christine Wekerle ◽  
Bruce Leslie ◽  
Deborah Goodman ◽  
Nadine Wathen ◽  
...  
Keyword(s):  
Child Welfare ◽  
Child Protection ◽  
Health Research ◽  
Aboriginal People ◽  
Research Impact ◽  
Well Being ◽  
Professional Staff ◽  
Participatory Action ◽  
University Partnerships ◽  
Key Factor

This paper presents one model for building and sustaining a research partnership between researchers and professional staff in child protection (CPS) agencies. The Maltreatment and Adolescent Pathways (MAP) study was designed to assess the health and well-being of the population of adolescents involved in the child welfare system of a major urban area. The study involved the collaboration between university based researchers and a range of child welfare staff, from administration to front-line workers. A key factor supporting collaboration was reciprocity with expertise, with CPS practitioner knowledge yielding intervention-relevant study queries and constructs, and researcher knowledge on health content and best practices yielding tailored training opportunities and increased climate for knowledge uptake. The MAP study combined a Participatory Action Research (PAR) model with a traditional, scientific positivist model, including the scientific elements of standardized measures, explicit evaluation of the participatory process, and research impact on the community members. This study: 1) provides information on the process of creating effective researcher-CPC agency partnerships, 2) considers key ethics issues, such as the participant’s reactivity to research of child welfare- involved clients, and 3) examines the implications of implanting a PAR approach in research with Aboriginal CPS agencies, as per the required use of the Canadian Institutes of Health Research (CIHR) Guidelines for Health Research Involving Aboriginal People for future community- university partnerships.

The EQUATOR Network and reporting guidelines: Helping to achieve high standards in reporting health research studies

Maturitas ◽  
2009 ◽  
Vol 63 (1) ◽  
pp. 4-6 ◽  
Author(s):  
Iveta Simera ◽  
David Moher ◽  
John Hoey ◽  
Kenneth F. Schulz ◽  
Douglas G. Altman
Keyword(s):  
Health Research ◽  
Reporting Guidelines ◽  
Equator Network ◽  
High Standards ◽  
Research Studies

scholarly journals 2520

2017 ◽  
Vol 1 (S1) ◽  
pp. 82-82
Author(s):  
Meghan Spiroff ◽  
Lisa Connally ◽  
Anita Johnson ◽  
Aalap Doshi ◽  
Patricia Piechowski
Keyword(s):  
Clinical Trials ◽  
Best Practices ◽  
Health Research ◽  
Participant Recruitment ◽  
Gender And Age ◽  
Study Population ◽  
Gender And Age Differences ◽  
The University ◽  
Racial Ethnic ◽  
Research Studies

OBJECTIVES/SPECIFIC AIMS: Across the Clinical and Translational Science Award (CTSA) Consortium, participant recruitment into clinical trials is essential to advance science. Without proper participant recruitment, clinical trials do not result in gains in scientific knowledge, wastes time, funds, and other resources (Mahon et al., 2015). METHODS/STUDY POPULATION: Participant recruitment programs across the consortium are inconsistent in staffing, program services, and program goals. The participant recruitment program at the University of Michigan’s (U-M) Michigan Institute for Clinical & Health Research (MICHR) provides expertise, tools, and resources to facilitate participant recruitment in clinical and health research studies. RESULTS/ANTICIPATED RESULTS: We will explain our program infrastructure, staffing, services, and discuss how we maintain an engaged registry with over 27,000 participants interested in research studies at U-M. DISCUSSION/SIGNIFICANCE OF IMPACT: Proper recruitment into clinical trials results in findings that are relevant for genetic, cultural, linguistic, racial/ethnic, gender, and age differences (Cottler et al., 2013). We hope to share our best practices that aid in the development and success of participant recruitment across the CTSA Consortium.

scholarly journals Increasing Clinical, Community, and Patient-Centered Health Research for Preventing and Managing Multimorbidity

2013 ◽  
Vol 3 (2) ◽  
pp. 41-44 ◽  
Author(s):  
Jose M. Valderas
Keyword(s):  
Health Research ◽  
Chronic Conditions ◽  
Multiple Chronic Conditions ◽  
Patient Centered ◽  
Related Research ◽  
Department Of Health ◽  
Clinical Community ◽  
Usual Clinical Practice ◽  
Secondary Analyses ◽  
Research Initiatives

The report “Multiple Chronic Conditions: A Strategic Framework,” which was developed by the U.S. Department of Health & Human Services (HSS), has identified as one of the key goals for improving health and the provision of healthcare for people with multiple chronic conditions “to increase clinical, community and patient-centered research.” In their linked commentary of this special journal issue, Parekh and Goodman identify and consider the potential impact of a number of related research initiatives supported by the National Institutes of Health and the Agency for Health Research and Quality, particularly focusing on two very specific areas: behavioral medicine and secondary analyses of available datasets. In this paper, I comment on both documents and discuss the opportunities offered by the current approaches and highlight related research needs; in particular, the need for an improved and expanded conceptual model of healthcare for people with multimorbidity, and the need for further exploration of the use of multimorbidity-relevant outcomes as part of usual clinical practice.

scholarly journals Creating the infrastructure for mental health research

2002 ◽  
Vol 26 (11) ◽  
pp. 403-406 ◽  
Author(s):  
Graham Thornicroft ◽  
Jonathan Bindman ◽  
David Goldberg ◽  
Kevin Gournay ◽  
Peter Huxley
Keyword(s):  
Mental Health ◽  
Health Research ◽  
Research Agenda ◽  
Mental Health Research ◽  
National Service ◽  
Department Of Health ◽  
National Service Framework ◽  
Service Framework

The purpose of this paper is to identify the important gaps in research coverage, particularly in areas key to the National Service Framework for Mental Health (NSF-MH) (Department of Health, 1999) and the NHS Plan (Department of Health, 2000), and to translate these gaps into researchable questions, with a view to developing a potential research agenda for consideration by research funders.

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