In Whose Interest? Current Issues in Communicating Personal Health Information: A Canadian Perspective

2003 ◽  
Vol 31 (2) ◽  
pp. 292-301 ◽  
Author(s):  
Mark Weitz ◽  
Neil Drummond ◽  
Dorothy Pringle ◽  
Lorraine E. Ferris ◽  
Judith Globerman ◽  
...  
Keyword(s):  
Health Care ◽  
Best Practice ◽  
Social Care ◽  
Electronic Data Interchange ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Needs ◽  
Data Interchange ◽  
Canadian Perspective ◽  
Complex Care Needs

The continuing spread and development of electronic data interchange in health care settings is fuelling a significant global debate about the practicality, ethics, and legality of such a practice. The uncertainties implicit in this debate are particularly acute in the context of disease or population groups for whom multidisciplinary, multipleagency teamworking has become acknowledged as the “best practice” for providing effective and timely care or support. The greying of the population is a demographic phenomenon that will have a profound impact on the health care system, social care agencies, and caregivers, and will require a greater degree of service coordination in order to meet the complex care needs of both care-receiver and caregiver.

scholarly journals People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?

2008 ◽  
Vol 32 (3) ◽  
pp. 405 ◽  
Author(s):  
Linda Goddard ◽  
Patricia M Davidson ◽  
John Daly ◽  
Sandra Mackey
Keyword(s):  
Health Care ◽  
Intellectual Disability ◽  
Chronic Conditions ◽  
Health Professions ◽  
Disability Services ◽  
Complex Care ◽  
Competency Development ◽  
Care Needs ◽  
Complex Care Needs ◽  
Respiratory Conditions

People with an intellectual disability and their families experience poorer health care compared with the general population. Living with an intellectual disability is often challenged by coexisting complex and chronic conditions, such as gastrointestinal and respiratory conditions. A literature review was undertaken to document the needs of this vulnerable population, and consultation was undertaken with mothers of children with disabilities and with professionals working within disability services for people with an intellectual disability and their families. Based on this review, there is a need to increase the profile of people with an intellectual disability in the discourse surrounding chronic and complex conditions. Strategies such as guideline and competency development may better prepare health professions to care for people with disabilities and chronic and complex care needs and their families.

Introduction: Key sociopolitical changes affecting the health and wellbeing of people

2020 ◽  
pp. 1-12
Author(s):  
Adrian Bonner
Keyword(s):  
Health Care ◽  
Social Care ◽  
Care Needs ◽  
Local Authorities ◽  
Late 20Th Century ◽  
Health And Wellbeing ◽  
Health And Social Care ◽  
Key Driver ◽  
The Relationship

This introductory chapter provides an overview of the relationship between health and housing, regional disparities and responses across England, Wales, and Scotland in the provision of health and social care and local authority commissioning. It considers how the Municipal Corporations Act (1835) led to the establishment of elected town councils. In the mid- to late 20th century, municipalisation gave way to centralised government, which subverted the autonomy of local authorities. Currently, social care is provided and funded by local authorities and private funders. The main objective of social care is to help people to live well and happily, and live as long as they can. This person-centred approach is in contrast to the systems that have been developed to support the health care needs of people. In 2020, poverty still remains a key driver of poor health and wellbeing.

scholarly journals Patient portals and personal health information online: perception, access, and use by US adults

2016 ◽  
Vol 24 (e1) ◽  
pp. e173-e177 ◽  
Author(s):  
Sue Peacock ◽  
Ashok Reddy ◽  
Suzanne G Leveille ◽  
Jan Walker ◽  
Thomas H Payne ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Health Care Providers ◽  
Race And Ethnicity ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Providers ◽  
Patient Portals ◽  
The Past ◽  
Patient Race

Background: Access to online patient portals is key to improving care, but we have limited understanding of patient perceptions of online portals and the characteristics of people who use them. Methods: Using a national survey of 3677 respondents, we describe perceptions and utilization of online personal health information (PHI) portals. Results: Most respondents (92%) considered online PHI access important, yet only 34% were offered access to online PHI by a health care provider, and just 28% accessed online PHI in the past year. While there were no differences across race or ethnicity in importance of access, black and Hispanic respondents were significantly less likely to be offered access (P = .006 and <.001, respectively) and less likely to access their online PHI (P = .041 and <.001, respectively) compared to white and non-Hispanic respondents. Conclusion: Health care providers are crucial to the adoption and use of online patient portals and should be encouraged to offer consistent access regardless of patient race and ethnicity.

Privacy and Personal Health Data in Cyberspace: The Role and Responsibility of Healthcare Professionals

2001 ◽  
Vol 2 (1) ◽  
pp. 9-14 ◽  
Author(s):  
James Day
Keyword(s):  
Healthcare Professionals ◽  
Medical Information ◽  
Electronic Data Interchange ◽  
Health Data ◽  
Medical Data ◽  
Personal Health ◽  
Electronic Communications ◽  
Data Interchange ◽  
Computer Based ◽  
Potential Risks

Abstract In this series of articles, the author discusses the potential risks, benefits, and liabilities associated with using electronic communications and computer-based records to manage a patient's medical information. This second article in the series considers the role and responsibility of the healthcare professional in collecting and sharing a patient's private personal and medical data in online environments. Current practices and the potential pitfalls of Electronic Data Interchange (EDI) are reviewed.

The HIPAA Privacy Rule: Reviewing the Post-Compliance Impact on Public Health Practice and Research

2003 ◽  
Vol 31 (S4) ◽  
pp. 70-72 ◽  
Author(s):  
Lora Kutkat ◽  
James G. Hodge ◽  
Thomas Jeffry ◽  
Diana M. Bontá
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Information ◽  
Public Health Practice ◽  
Personal Health Information ◽  
Personal Health ◽  
Health Plans ◽  
Privacy Rule ◽  
Public Health Officials ◽  
Hipaa Privacy Rule

Current economic conditions have coincided with the implementation of the Health Insurance Portability and Accountability Act (HIPAA) and forced public health officials to consider how to ethically incorporate compliance into their already strained budgets, while maintaining the integrity and intent of the legislation.As of April 14, 2003, the HIPAA Privacy Rule provides a new federal floor of protections for personal health information. The Privacy Rule establishes standards for the protection of health information held by many physicians’ offices, health plans, and health care clearinghouses. The Rule protects personal health information by establishing conditions regulating the use and disclosure of individually identifiable health information by these entities, also referred to as covered entities. The Rule does not prevent the daily operations of health care establishments (i.e., the treatment of patients and the collection of payment).

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