scholarly journals People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?

2008 ◽  
Vol 32 (3) ◽  
pp. 405 ◽  
Author(s):  
Linda Goddard ◽  
Patricia M Davidson ◽  
John Daly ◽  
Sandra Mackey
Keyword(s):  
Health Care ◽  
Intellectual Disability ◽  
Chronic Conditions ◽  
Health Professions ◽  
Disability Services ◽  
Complex Care ◽  
Competency Development ◽  
Care Needs ◽  
Complex Care Needs ◽  
Respiratory Conditions

People with an intellectual disability and their families experience poorer health care compared with the general population. Living with an intellectual disability is often challenged by coexisting complex and chronic conditions, such as gastrointestinal and respiratory conditions. A literature review was undertaken to document the needs of this vulnerable population, and consultation was undertaken with mothers of children with disabilities and with professionals working within disability services for people with an intellectual disability and their families. Based on this review, there is a need to increase the profile of people with an intellectual disability in the discourse surrounding chronic and complex conditions. Strategies such as guideline and competency development may better prepare health professions to care for people with disabilities and chronic and complex care needs and their families.

scholarly journals Protocol for a mixed-method analysis of implementation of case management in primary care for frequent users of healthcare services with chronic diseases and complex care needs

BMJ Open ◽  
2020 ◽  
Vol 10 (6) ◽  
pp. e038241
Author(s):  
Alya Danish ◽  
Maud-Christine Chouinard ◽  
Kris Aubrey-Bassler ◽  
Fred Burge ◽  
Shelley Doucet ◽  
...  
Keyword(s):  
Primary Care ◽  
Case Management ◽  
Chronic Conditions ◽  
Healthcare Services ◽  
Research Ethic Board ◽  
Complex Care ◽  
Care Needs ◽  
Patient Reported ◽  
Complex Care Needs ◽  
Analytical Approaches

IntroductionCase management (CM) in a primary care setting is a promising approach to integrating and improving healthcare services and outcomes for patients with chronic conditions and complex care needs who frequently use healthcare services. Despite evidence supporting CM and interest in implementing it in Canada, little is known about how to do this. This research aims to identify the barriers and facilitators to the implementation of a CM intervention in different primary care contexts (objective 1) and to explain the influence of the clinical context on the degree of implementation (objective 2) and on the outcomes of the intervention (objective 3).Methods and analysisA multiple-case embedded mixed-methods study will be conducted on CM implemented in ten primary care clinics across five Canadian provinces. Each clinic will represent a subunit of analysis, detailed through a case history. Cases will be compared and contrasted using multiple analytical approaches. Qualitative data (objectives 1 and 2) from individual semistructured interviews (n=130), focus group discussions (n=20) and participant observation of each clinic (36 hours) will be compared and integrated with quantitative (objective 3) clinical data on services use (n=300) and patient questionnaires (n=300). An evaluation of intervention fidelity will be integrated into the data analysis.Ethics and disseminationThis project received approval from the CIUSSS de l'Estrie – CHUS Research Ethic Board (project number MP-31-2019-2830). Results will provide the opportunity to refine the CM intervention and to facilitate effective evaluation, replication and scale-up. This research provides knowledge on how to resp ond to the needs of individuals with chronic conditions and complex care needs in a cost-effective way that improves patient-reported outcomes and healthcare use, while ensuring care team well-being. Dissemination of results is planned and executed based on the needs of various stakeholders involved in the research.

scholarly journals What Factors Influence Patient and Carer Engagement in Community Based Primary Health Care? Insights from People with Complex Care Needs and their Carers

2017 ◽  
Vol 17 (5) ◽  
pp. 46
Author(s):  
Kerry Kuluski ◽  
Ashlinder Gill ◽  
Allie Peckham ◽  
Nicolette Sheridan ◽  
Dominique Gagnon ◽  
...  
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Complex Care ◽  
Care Needs ◽  
Community Based ◽  
Primary Health ◽  
Complex Care Needs

scholarly journals Complex Care Needs in Multiple Chronic Conditions: Population Prevalence and Characterization in Primary Care. A Study Protocol

2018 ◽  
Vol 18 (2) ◽  
Author(s):  
Francisco Hernansanz Iglesias ◽  
Clara Alavedra Celada ◽  
Carmen Berbel Navarro ◽  
Lidia Palau Morales ◽  
Nuria Albi Visus ◽  
...  
Keyword(s):  
Primary Care ◽  
Study Protocol ◽  
Chronic Conditions ◽  
Multiple Chronic Conditions ◽  
Complex Care ◽  
Care Needs ◽  
Population Prevalence ◽  
Complex Care Needs

Optimization of the care model for elderly in Poland

Physiotherapy ◽  
2013 ◽  
Vol 21 (4) ◽  
Author(s):  
Felicja Lwow ◽  
Małgorzata Korzeniowska ◽  
Joanna Dadacz ◽  
Ewa Hladik ◽  
Agata Łukojko ◽  
...  
Keyword(s):  
Health Care ◽  
Chronic Conditions ◽  
Institutional Care ◽  
Developed Countries ◽  
Social Aspect ◽  
Age Group ◽  
Care Needs ◽  
Optimal Health ◽  
Health Care Models ◽  
The Individual

AbstractThe demographic situation of Poland as well as other developed countries shows a growing number of people at retirement age. According to the data from GUS (Central Statistical Office), their number reached 6.5 mln in Poland in 2011, and the prognosis for shows 8,3 mln by the year 2035. The consequence of this fact is a necessity of including the specificity of this age group in the functioning of Polish health care as well as in preventive medicine and health promotion. Unifying the health needs of this age group would be disadvantageous due to the diversification of physical efficiency level in the psychosomatic and social aspect. Nevertheless, the key problem is to distinguish the optimal health care models which include not only chronic conditions and dysfunctions but also the quality of life and socially independent life style that guarantee the lack of isolation and social exclusion. Distinguishing the four action models, namely people considered as healthy by the system, autonomously functioning people with chronic conditions, and people who need other people or institutional care to function in a society, seems to cover the individual needs of this group. Concluding, the National Health Care needs to work out some proceeding algorithms for these models. The optimal program adjustment for the needs of the target group would most certainly improve the effectiveness of the Health Care.

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