Supporting People with Intellectual and Developmental Disabilities to Participate in their Communities through Support Staff Pilot Intervention

People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Family members provided similar support in this area as support staff, including both practical and emotional support. More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.

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National Dementia Capable Care Training: A Model Implementation and Evaluation

Intellectual and Developmental Disabilities ◽

10.1352/1934-9556-59.5.422 ◽

2021 ◽

Vol 59 (5) ◽

pp. 422-435

Author(s):

Yumi Shirai ◽

Kathleen Bishop ◽

Melissa Kushner

Keyword(s):

Developmental Disabilities ◽

Support Staff ◽

Short Version ◽

Intellectual And Developmental Disabilities ◽

Specialized Training ◽

Structured Interviews ◽

National Task ◽

Core Components ◽

Care Training

Abstract With a growing need for specialized training for direct caregivers and support staff of persons with intellectual and developmental disabilities (IDD) affected by dementia, the National Task Group on Developmental Disabilities and Dementia Practices (NTG) developed a comprehensive evidence-informed Dementia Capable Care Training (DCCT). To overcome the challenge of the training length and cost, and to extend its dissemination, the Sonoran Center developed a shorter version of the NTG-DCCT while retaining its core components, and implemented it in seven cities in the U. S. Southwest (N = 368). The pre- and post-training evaluation (n =260) demonstrated that the short version of the NTG-DCCT is effective in significantly improving participants' knowledge and/or confidence in dementia capable care. The follow-up semi-structured interviews of participants (n = 7) provide some insights.

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Implementation of Self-Directed Supports for People With Intellectual and Developmental Disabilities in the United States

Journal of Disability Policy Studies ◽

10.1177/1044207318790061 ◽

2018 ◽

Vol 30 (1) ◽

pp. 11-21 ◽

Cited By ~ 3

Author(s):

M. P. DeCarlo ◽

M. D. Bogenschutz ◽

J. A. Hall-Lande ◽

A. S. Hewitt

Keyword(s):

Developmental Disabilities ◽

The United States ◽

Support Staff ◽

Self Determination ◽

Intellectual And Developmental Disabilities ◽

Thematic Map ◽

Human Service Delivery ◽

State Administrators ◽

Services And Supports

Self-direction is an approach to human service delivery within long-term services and supports that aims to provide greater control for individuals with disabilities and their closest supporters. The purpose of this study was to understand the implementation of self-directed supports for individuals with intellectual and developmental disabilities. Researchers interviewed state developmental disabilities administrators in 34 of 42 states that currently operate self-directed service options and used qualitative analysis to arrive at a thematic map of the strengths and challenges currently experienced by state administrators. Common strengths identified by state administrators were increased opportunities for participant self-determination and improved relationships with support staff. Common challenges included restructuring case management relationships, as well as rulemaking and enforcement. Administrators’ suggestions for the future of self-direction focused on increasing program size and streamlining services using technology.

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Implementation of Self-Directed Supports for People With Intellectual and Developmental Disabilities in the United States

10.31235/osf.io/cyf6d ◽

2019 ◽

Author(s):

Matthew Peter DeCarlo ◽

Matthew D. Bogenschutz ◽

Jennifer Hall-Lande ◽

Amy Hewitt

Keyword(s):

Developmental Disabilities ◽

The United States ◽

Support Staff ◽

Self Determination ◽

Intellectual And Developmental Disabilities ◽

Thematic Map ◽

Human Service Delivery ◽

State Administrators ◽

Services And Supports

Self-direction is an approach to human service delivery within long term services and supports that aims to provide greater control for individuals with disabilities and their closest supporters. The purpose of this study was to understand the implementation of self-directed supports for individuals with IDD. Researchers interviewed state developmental disabilities administrators in 34 of 42 states that currently operate self-directed service options and used qualitative analysis to arrive at a thematic map of the strengths and challenges currently experienced by state administrators. Common strengths identified by state administrators were increased opportunities for participant self-determination and improved relationships with support staff. Common challenges included restructuring case management relationships as well as rulemaking and enforcement. Administrators’ suggestions for the future of self-direction focused on increasing program size and streamlining services using technology.

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