Could Ethical Tensions in Oral Healthcare Management Revealed by Adults with Intellectual Disabilities and Caregivers Explain Unmet Oral Health Needs? Participatory Research with Focus Groups

2015 ◽  
Vol 30 (1) ◽  
pp. 172-187 ◽  
Author(s):  
Alessandra Blaizot ◽  
Olivier Hamel ◽  
Marysette Folliguet ◽  
Christian Herve ◽  
Jean-Paul Meningaud ◽  
...  
Keyword(s):  
Oral Health ◽  
Focus Groups ◽  
Intellectual Disabilities ◽  
Participatory Research ◽  
Healthcare Management ◽  
Health Needs ◽  
Adults With Intellectual Disabilities

Psychiatric Care of Adults with Intellectual Disabilities: Changing Perceptions Over a Decade

2008 ◽  
Vol 42 (10) ◽  
pp. 890-897 ◽  
Author(s):  
Jennifer Torr ◽  
Nicholas Lennox ◽  
Sally-Ann Cooper ◽  
Therese Rey-Conde ◽  
Robert S. Ware ◽  
...  
Keyword(s):  
Mental Health ◽  
Intellectual Disabilities ◽  
Clinical Training ◽  
Psychiatric Treatment ◽  
Health Needs ◽  
Mental Health Needs ◽  
Problem Behaviours ◽  
Adults With Intellectual Disabilities ◽  
Training Opportunities

Objective: In light of developments in training and service provision, the aim of the present study was to compare two state-wide surveys, undertaken in 1994 and in 2004, of psychiatrists about their perceptions of their training and psychiatric treatment of adults with intellectual disabilities who also have mental health needs. Methods: A 50-item self-administered questionnaire was developed for the 2004 survey, based on the 1994 study. This was sent to all 624 Fellows of the Royal Australian and New Zealand College of Psychiatry registered in Victoria at the time. A series of questions was asked based on workload, training, the role of psychiatry in intellectual disabilities, opinions on assessment and management, improving services, and the demographics of participant psychiatrists. Results of the 2004 survey are compared with the 1994 study. Results: There has been some change in psychiatrists’ opinions about acute admission wards, believing strongly that they do not meet the needs of the adults with severe intellectual disabilities, leaving them vulnerable to exploitation. There has been some improvement in their ability to adequately manage adults with intellectual disabilities who have mental health needs and/or problem behaviours. Conclusions: Mainstream mental health services fail to meet the needs of adults with intellectual disabilities. Improved specialist clinical services and more clinical training opportunities are required.

Is health a priority? Examining health-related support needs in adults with intellectual disability through a self-determination framework

2021 ◽  
pp. 174462952110096
Author(s):  
Romina Rinaldi ◽  
Jordan Duplat ◽  
Marie-Claire Haelewyck
Keyword(s):  
Intellectual Disabilities ◽  
Psychological Health ◽  
Self Determination ◽  
Health Needs ◽  
Support Needs ◽  
Major Health ◽  
Health Related ◽  
People With Intellectual Disabilities ◽  
A Priority ◽  
Adults With Intellectual Disabilities

Background: People with intellectual disabilities experience inequities in healthcare. Those are maintained by individual limitations as well as environmental factors. In this context, health needs are less likely to be expressed, identified and met. Method: We led a survey in 832 adults with intellectual disabilities to identify if health was set as a priority and if so, what were their major health-related support needs (in terms of physical, social and psychological health). Results: 67.1% of participants reported at least one need. Most frequently, two or more types of needs were reported with gender and living facility having an effect on whether participants would report these needs, but these did not affect which type of needs were reported. Conclusions: Health-related support needs are highly prevalent and diversified in people with intellectual disabilities. This study emphasizes the importance to consider health as a global concept as well as the relationships between health and self-determination.

scholarly journals Oral health of adults with intellectual disabilities: a systematic review

2019 ◽  
Vol 63 (11) ◽  
pp. 1359-1378 ◽  
Author(s):  
L. M. Ward ◽  
S. A. Cooper ◽  
L. Hughes‐McCormack ◽  
L. Macpherson ◽  
D. Kinnear
Keyword(s):  
Systematic Review ◽  
Oral Health ◽  
Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

scholarly journals “Got to build that trust”: Aboriginal Health Workers’ perspectives and experiences of maternal oral health

2020 ◽  
Author(s):  
Ariana C Kong ◽  
Mariana S Sousa ◽  
Lucie Ramjan ◽  
Michelle Dickson ◽  
Joanne Goulding ◽  
...  
Keyword(s):  
Oral Health ◽  
Health Services ◽  
Focus Groups ◽  
Pregnant Women ◽  
Dental Care ◽  
Health Workers ◽  
Aboriginal Health ◽  
Health Needs ◽  
New Mothers ◽  
Aboriginal Women

Abstract Background Aboriginal Health Workers provide a unique insight into understanding the health needs of the Aboriginal peoples in the community on account of their cultural knowledge, experiences and understanding of the health services. The aim of this study was to explore the perceptions and experiences of Aboriginal Health Workers towards oral health care to inform the development of an oral health care program to better meet the oral health needs of Aboriginal pregnant women and new mothers.Methods A participatory action research methodology informed the study. Focus groups were conducted with Aboriginal Health Workers at two antenatal health services in Sydney, Australia.Results A total of 14 people participated in the focus groups. The four themes that emerged from the focus groups provided insight on the importance of trust in the building of empowering relationships with Aboriginal women and highlighted the need for Aboriginal Health Workers to receive additional training to better address the oral health needs of Aboriginal pregnant women and new mothers. However, the Aboriginal Health Workers worked in a system fundamentally driven by the legacy of colonisation and integenerational trauma that has created systemic barriers to access of health services, including dental care. The participants recommended that a priority dental referral pathway, that supported continuity of care, could provide increased accessibility to dental care for Aboriginal pregnant women and new mothers.Conclusions The oral health of Aboriginal pregnant women and new mothers is supported by Aboriginal Health Workers, who outlined both a systems and an individual approach in delivery of existing dental care. The Aboriginal Health Workers provided recommendations to develop a program of dental care that could break down the systemic factors that create barriers to accessing dental care for Aboriginal women.

Aging in Adults With Intellectual Disabilities

2014 ◽  
Vol 19 (1) ◽  
pp. 36-43
Author(s):  
Tracy Lazenby-Paterson ◽  
Hannah Crawford
Keyword(s):  
Intellectual Disabilities ◽  
Swallowing Disorders ◽  
Speech And Language ◽  
Adults With Intellectual Disabilities

The literature recognizes the important role of the Speech and Language Pathologist (SLP) in the treatment of communication and swallowing disorders in children with Intellectual Disabilities (ID). However there is also a need to emphasize the importance of specialist SLP input across the lifespan of people with ID, and to recognize the specific, ongoing and changing communication and swallowing needs of adults with ID as they get older.

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