Evaluating a Research Training Programme for People with Intellectual Disabilities Participating in Inclusive Research: The Views of Participants

Purpose People with intellectual disabilities (ID) can be vulnerable to developing mental health problems. It has been found that participating in regular exercise can help to improve emotional well-being, both in typically developing people and those with ID. The purpose of this paper is to investigate the experiences of community clients with ID who have engaged in a football training programme, and the perceived impacts on attitudes, mood and behaviour. Design/methodology/approach Interviews with seven patients from generic or forensic community ID services were conducted. The transcripts were analysed using interpretative phenomenological analysis. Findings Two master themes were identified from the interviews, “Striving” and “Togetherness”. Originality/value The most important factors related to taking part in the football programme were the social, emotional and personal growth associated with being part of a team and general enjoyment of being part of something. Although aspects of football knowledge and physical fitness were still evident, their impact seemed to be less significant. The experience of football was overwhelmingly positive.

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University Education for People with Intellectual Disabilities. Evaluation of a Training Experience in Spain

Disabilities ◽

10.3390/disabilities1040027 ◽

2021 ◽

Vol 1 (4) ◽

pp. 388-405

Author(s):

Rosa M. Díaz-Jiménez ◽

Teresa Terrón-Caro ◽

M. Dolores Yerga-Míguez

Keyword(s):

Intellectual Disabilities ◽

New Technologies ◽

Radical Change ◽

Training Programme ◽

Training System ◽

University Education ◽

Training Experience ◽

Community Associations ◽

People With Intellectual Disabilities ◽

The University

Despite the substantial increase in the access of people with disabilities to higher education, university institutions continue to be an exclusive environment for people with intellectual disabilities. This paper aims to present a training programme for the employment and university inclusion of young people with intellectual disabilities at the Pablo de Olavide University in Seville, Spain, under the title “Training for the employment and autonomous life of people with intellectual disabilities”, which was launched in the academic year 2017–2018 and has already completed four editions. The programme includes a hybrid training system with specific university training oriented towards employment and autonomy together with inclusive training in subjects of various university degrees. The training is provided by interdisciplinary university lecturers together with support staff specialised in intervention with people with intellectual disabilities who come from experienced community associations. Other components of the experience include internships in companies, individualised academic tutoring of students, family accompaniment, and community inclusion with the use of the university residence as accommodation. Cognitive accessibility and new technologies are not lacking as supports in the process. This work shows the assessment of the fundamental actors of this experience during the four years of its development, and as a conclusion, it shows a high overall satisfaction with the programme and the radical change observed in the lives of people with intellectual disabilities after their time at the university.

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Staff communication with people with intellectual disabilities: the impact of a work-based training programme

International Journal of Language & Communication Disorders ◽

10.1080/136828200247313 ◽

2000 ◽

Vol 35 (1) ◽

pp. 147-158 ◽

Cited By ~ 37

Author(s):

Margaret Purcell, Roy McConkey, Irene Morris

Keyword(s):

Intellectual Disabilities ◽

Training Programme ◽

People With Intellectual Disabilities ◽

The Impact

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The Effect of Systematic Information and Communication Technology (ICT) Training Programme for People with Intellectual Disabilities

The British Journal of Development Disabilities ◽

10.1179/096979506799103613 ◽

2006 ◽

Vol 52 (102) ◽

pp. 3-18 ◽

Cited By ~ 2

Author(s):

Cecilia W. P. Li-Tsang ◽

Susanna S. S. Yeung ◽

Jenny C. Y. Choi ◽

Chetwyn C. H. Chan ◽

C. S. Lam

Keyword(s):

Intellectual Disabilities ◽

Information And Communication Technology ◽

Communication Technology ◽

Training Programme ◽

Systematic Information ◽

Information And Communication ◽

People With Intellectual Disabilities ◽

Ict Training

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Short-term PsychoEducation for Carers To Reduce Over Medication of people with intellectual disabilities (SPECTROM): study protocol

BMJ Open ◽

10.1136/bmjopen-2020-037912 ◽

2020 ◽

Vol 10 (4) ◽

pp. e037912 ◽

Cited By ~ 1

Author(s):

Shoumitro Deb ◽

Bharati Limbu ◽

Mike Crawford ◽

Tim Weaver

Keyword(s):

Intellectual Disabilities ◽

Field Test ◽

Complex Interventions ◽

Training Programme ◽

Care Staff ◽

Related Information ◽

Relevant Stakeholder ◽

People With Intellectual Disabilities ◽

Training Programmes ◽

The Uk

IntroductionPsychotropic medications that are primarily licenced for the treatment of psychiatric disorders are used widely (32%–85%) among people with intellectual disabilities (ID) often for the management of problem (challenging) behaviour in the absence of a psychiatric disorder. Care staff play a pivotal role in the prescribing process. Currently, no staff training programme exists to address the issue of overprescribing of psychotropic medication in people with ID, thus highlighting an urgent need for developing a psychoeducational programme (PEP) specifically designed to address this issue. We propose to develop a PEP for care staff using the methodology described in the UK Medical Research Council guide for complex interventions.Methods and analysisThe development of the PEP will involve (1) gathering information on available relevant training programmes, (2) running four focus groups with care staff and other professionals to establish the content and format of the PEP, and (3) organising a co-design event involving all relevant stakeholders to discuss the format of the PEP. A core project team will develop the PEP under guidance from the PEP Development Group which will consist of 10–12 relevant stakeholder representatives. Feedback from selected stakeholders on a draft PEP will allow us to refine the PEP before implementation. The PEP will have web-based modules supplemented by face to face training sessions. When the final draft is ready, we will field test the PEP on six to eight care staff from community care homes for people with ID. After completing the field test, we will run a focus group involving participants in the PEP to get feedback on the PEP.Ethics and disseminationEthics approval for this study was waived by the UK Health Regulatory Authority as the study does not collect any patient related information and only include care staff outside the UK NHS. This will be the first ever such universally freely available PEP supported by training manual and slides.

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A 6-month follow-up of the effects of an information and communication technology (ICT) training programme on people with intellectual disabilities

Research in Developmental Disabilities ◽

10.1016/j.ridd.2006.06.007 ◽

2007 ◽

Vol 28 (6) ◽

pp. 559-566 ◽

Cited By ~ 12

Author(s):

Cecilia W.P. Li-Tsang ◽

Maggie Y.F. Lee ◽

Susanna S.S. Yeung ◽

Andrew M.H. Siu ◽

C.S. Lam

Keyword(s):

Intellectual Disabilities ◽

Information And Communication Technology ◽

Communication Technology ◽

Training Programme ◽

Information And Communication ◽

People With Intellectual Disabilities ◽

Ict Training

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Short-Term Psycho-Education for Caregivers to Reduce Overmedication of People with Intellectual Disabilities (SPECTROM): Development and Field Testing

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph182413161 ◽

2021 ◽

Vol 18 (24) ◽

pp. 13161

Author(s):

Shoumitro (Shoumi) Deb ◽

Bharati Limbu ◽

Gemma Unwin ◽

Linda Woodcock ◽

Vivien Cooper ◽

...

Keyword(s):

Intellectual Disabilities ◽

Process Evaluation ◽

Design Method ◽

Medication Management ◽

Field Testing ◽

Training Programme ◽

Structured Interview ◽

Management Domain ◽

Knowledge Questionnaire ◽

People With Intellectual Disabilities

People with intellectual disabilities (PwID) are at a higher risk of developing challenging behaviours (CB). Despite the poor evidence for the effectiveness of medications in managing CB, they are used widely among PwID (50–63%). The aims of our study were to develop a training programme, SPECTROM for support staff to help reduce overmedication in PwID and carry out field testing of SPECTROM including a process evaluation. We developed SPECTROM using the Experience-based co-design method that included four focus groups and a one-day co-design event. Twenty trainees received SPECTROM training. We used the Management of Aggression and Violence Attitudes Scale-Revised-Intellectual Disabilities (MAVAS-R-ID) and the Psychotropic knowledge questionnaire. A semi-structured interview and a feasibility questionnaire were used for process evaluation. SPECTROM website contains 14 modules, resources, and face-to-face training. MAVAS-R-ID scores showed change in staff attitude to ‘medication management’ domain was statistically significant (p < 0.05). Psychotropic knowledge questionnaire showed statistical post-training improvement in correct responses (p < 0.05). Process evaluation data showed that SPECTROM was acceptable, applicable, practical, and relevant to staff practice, and helped to improve self-reflection, knowledge, and support to PwID. SPECTROM is a useful training that helps to change the support staff’s attitude toward CB and improve their knowledge of psychotropic medications.

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