“You become their advocate”: the experiences of family carers as advocates for older people with dementia living in residential aged care.

2020 ◽  
Author(s):  
Deirdre Fetherstonhaugh ◽  
Jo‐Anne Rayner ◽  
Kane Solly ◽  
Linda McAuliffe
Keyword(s):  
Older People ◽  
Aged Care ◽  
Residential Aged Care ◽  
Family Carers ◽  
People With Dementia

scholarly journals A cross-country comparison of family carers experiences with residential aged care facilities during the COVID-19 pandemic

2021 ◽  
Vol 33 (S1) ◽  
pp. 26-26
Author(s):  
Katarzyna M Lion ◽  
Clarissa Giebel ◽  
Ilaria Chirico ◽  
Monica Cations ◽  
Rabih Chattat ◽  
...  
Keyword(s):  
Thematic Analysis ◽  
Aged Care ◽  
Care Quality ◽  
Residential Aged Care ◽  
Care Provision ◽  
Family Carers ◽  
Country Comparison ◽  
People With Dementia ◽  
Cross Country ◽  
The Uk

Background:The number of research projects into residential aged care (RAC) during the COVID-19 pandemic is increasing, however there are limited data on the cross-country comparison of experiences residents living with dementia and their families. Our study aimed to 1) give an overview of the RAC restrictions and changes (visiting policy, governmental & health authorities’ advice, service delivery) implemented during the pandemic in Australia, Italy and the UK and 2) and their impact on people with dementia in RAC facilities and their families.Methods:A total of 56 informal family carers of people with dementia residing in RAC took part in semi- structured interviews over the telephone or via Skype in Australia (n=6), Italy (n=25) and the UK (n=26) between July 2020 and March 2021. The interviews were recorded and translated verbatim. Transcripts were analysed by researchers in each country using thematic analysis, then combined across sites.Results:Inductive thematic analysis identified four overarching themes: 1) Adaptations implemented in RAC facilities due to the COVID-19 pandemic in Australia, Italy and the UK; 2) means of communication between RAC facility personnel, people with dementia living in RAC and family members; 3) impact of the implemented restrictions and changes in care provision due to the COVID-19 pandemic on people with dementia in RAC facilities and 4) impact of the implemented restrictions and changes in care provision due to the COVID-19 pandemic on families of people with dementia in RAC facilities. While differences between countries and facilities were identified, the restrictions and changes within the residential care system impacted families’ well-being, increased their worries about care quality and safety of people with dementia. The consequences of a lack or modified services for people with dementia included noticeable physical and mental health changes. Although the majority of the facilities implemented some form of video-communication between families and residents, those solutions were unable to replace face-to-face contact.Conclusions:These findings demonstrate the need for implementing safe solutions which might facilitate more frequent in-person contact between families and residents with dementia preventing consequences in mental and physical health in both groups.

What carers and family said about music therapy on behaviours of older people with dementia in residential aged care

2014 ◽  
Vol 10 (2) ◽  
pp. 146-157 ◽  
Author(s):  
Anthony G. Tuckett ◽  
Brent Hodgkinson ◽  
Lisa Rouillon ◽  
Tania Balil-Lozoya ◽  
Deborah Parker
Keyword(s):  
Older People ◽  
Music Therapy ◽  
Aged Care ◽  
Residential Aged Care ◽  
People With Dementia

scholarly journals Inadequate completion of advance care directives by individuals with dementia: national audit of health and aged care facilities

2021 ◽  
pp. bmjspcare-2020-002767
Author(s):  
Jamie Bryant ◽  
Marcus Sellars ◽  
Craig Sinclair ◽  
Karen Detering ◽  
Kimberly Buck ◽  
...  
Keyword(s):  
Healthcare Providers ◽  
Aged Care ◽  
Care Plan ◽  
Residential Aged Care ◽  
Multinomial Regression ◽  
People With Dementia ◽  
Care Facilities ◽  
Aged Care Facilities ◽  
Advance Care Directives ◽  
Advance Care

Objectives(i) Describe the prevalence and type of advance care directives (ACDs) and other advance care planning (ACP) documentation completed by persons with dementia, healthcare providers and others on behalf of a person with dementia; (ii) identify the personal and ACP programme characteristics associated with having ACP documentation in the health record; (iii) identify the personal and ACP programme characteristics associated with having a self-completed ACD.MethodsA multicentre audit was undertaken in Australian hospitals, general practices and residential aged care facilities. Auditors extracted demographic and ACP data from the records of eligible patients. ACP programme characteristics were provided by a site representative. Logistic and multinomial regression were used respectively to examine the factors associated with completion of any ACP documentation, and self-completion of an ACD by persons with dementia.ResultsA total of 1388 people with dementia (33.2%) from 96 sites were included. Overall, 60.8% (n=844) had ACP documentation; 31.6% (n=438) had a self-completed ACD and 29.3% (n=406) had an ACP document completed by a health professional or someone else on their behalf. Older participants were more likely to have ACP documented. Multivariate analyses indicated the odds of having self-completed ACP documents, compared with no advance care plan or ACP completed by someone else, were significantly influenced by age, country of birth, setting and whether the site had ACP training, policies or guidelines.DiscussionWhile 60% of people with dementia had some form of ACP documentation, only half of the cases in which ACP was documented included an ACD completed by the person themselves.

Person-centered care and engagement via technology of residents with dementia in aged care facilities

2017 ◽  
Vol 29 (12) ◽  
pp. 2099-2103 ◽  
Author(s):  
Anita M. Y. Goh ◽  
Samantha M. Loi ◽  
Alissa Westphal ◽  
Nicola T. Lautenschlager
Keyword(s):  
Aged Care ◽  
Care Staff ◽  
Residential Aged Care ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Person Centered Care ◽  
People With Dementia ◽  
Care Facilities ◽  
Centered Care ◽  
Aged Care Facilities

ABSTRACTTouchscreen technology (TT) is a resource that can improve the quality of life of residents with dementia, and care staff, in residential aged care facilities (RACF) through a person-centered care approach. To enable the use of TTs to engage and benefit people with dementia in RACFs, education is needed to explore how these devices may be used, what facilitates use, and how to address barriers. We sought to provide education and explore RACF staff views and barriers on using TT to engage their residents with dementia. An educational session on using TT with residents with dementia was given to staff from three long-term RACFs in Melbourne, Australia. A cross-sectional convenience sample of 17 staff members (personal care attendants, registered nurses, enrolled nurses, allied health clinicians, and domestic staff) who attended were administered questionnaires pre- and post-sessions. As a result of the education seminar, they were significantly more confident in their ability to use TT devices with residents. TT, and education to staff about its use with residents with dementia, is a useful strategy to enhance RACF staff knowledge and confidence, thereby enhancing the use of technology in RACFs in order to improve care standards in people with dementia.

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