scholarly journals Everyday life experiences in families with a child with kidney disease

2019 ◽  
Vol 45 (4) ◽  
pp. 205-211 ◽  
Author(s):  
Hanne Agerskov ◽  
Helle C. Thiesson ◽  
Birthe D. Pedersen
2021 ◽  
Vol 23 (4) ◽  
pp. 796-815
Author(s):  
Yang Wang ◽  
Sun Sun Lim

People are today located in media ecosystems in which a variety of ICT devices and platforms coexist and complement each other to fulfil users’ heterogeneous requirements. These multi-media affordances promote a highly hyperlinked and nomadic habit of digital data management which blurs the long-standing boundaries between information storage, sharing and exchange. Specifically, during the pervasive sharing and browsing of fragmentary digital information (e.g. photos, videos, online diaries, news articles) across various platforms, life experiences and knowledge involved are meanwhile classified and stored for future retrieval and collective memory construction. For international migrants who straddle different geographical and cultural contexts, management of various digital materials is particularly complicated as they have to be familiar with and appropriately navigate technological infrastructures of both home and host countries. Drawing on ethnographic observations of 40 Chinese migrant mothers in Singapore, this article delves into their quotidian routines of acquiring, storing, sharing and exchanging digital information across a range of ICT devices and platforms, as well as cultural and emotional implications of these mediated behaviours for their everyday life experiences. A multi-layer and multi-sited repertoire of ‘life archiving’ was identified among these migrant mothers in which they leave footprints of everyday life through a tactical combination of interactive sharing, pervasive tagging and backup storage of diverse digital content.


Author(s):  
Charlotte Wassenius ◽  
Lisbeth Claesson ◽  
Christian Blomstrand ◽  
Katarina Jood ◽  
Gunnel Carlsson

2020 ◽  
Vol 56 (6) ◽  
pp. 1023-1032 ◽  
Author(s):  
Katarina Piuva ◽  
Helene Brodin

AbstractThis study explores experiences of mothers in Sweden who care for their adult children suffering from severe mental illness. Using 15 interviews with mothers from 40 to 80 years old, the article examines how predominant professional knowledge and sanism constructs the mothers and their children as deviant and what counterstrategies the mothers develop as a response to these experiences of discrimination. The findings show that the mothers’ experiences are characterized by endless confrontations with negative attitudes and comments that have forced them to go through painful and prolonged processes of self-accusations for not having given enough love, care, support and help in different stages of their children's life. But the mothers’ experiences also reveal important aspects of changes over the life span. As the mothers are ageing, the relationship between them and their children becomes more reciprocal and the ill child may even take the role as family carer.


Author(s):  
Vera Araújo

Abstract In the context of reflections on modernity, an increasingly widespread belief seems to be emerging: the subject at which it is necessary to direct our attention, to which to throw a lifeline as it were, is the concrete and real human being, alone and at the same time besieged by increasingly tight and numerous systemic schemes. Are the “human subject” and his social context only undergoing a deep transformation, or are they actually in danger? This “new” knowledge involves all the humanistic and social sciences, such as philosophy, anthropology, psychology, economics, political science, and theology, in a sort of fusion and pact for mankind. Great spiritualities include life experiences and ideas that reverberate on everyday life, lifestyles, and culture. From the very beginning, Chiara Lubich’s spirituality, is based on two fundamental concepts: unity and forsaken Jesus, has been perceived as a new way to know God, but also as an idea that is able to renew human life, as well as to penetrate social and cultural realities.


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