scholarly journals Stakeholder perspectives: Communication, care coordination, and transitions in care for children with medical complexity

2020 ◽  
Author(s):  
Lori J. Williams ◽  
Katherine Waller ◽  
Rachel P. Chenoweth ◽  
Anne L. Ersig
Keyword(s):  
Care Coordination ◽  
Children With Medical Complexity ◽  
Transitions In Care ◽  
Stakeholder Perspectives ◽  
Medical Complexity

Lessons Learned, Best Practices: Care Coordination for Children with Medical Complexity

2020 ◽  
Vol 49 (11) ◽  
pp. e457-e466
Author(s):  
John Maypole ◽  
Tiffany Gavin ◽  
Mary Ann de Banate ◽  
Matthew Sadof
Keyword(s):  
Best Practices ◽  
Care Coordination ◽  
Lessons Learned ◽  
Children With Medical Complexity ◽  
Medical Complexity

scholarly journals Estimated Nonreimbursed Costs for Care Coordination for Children With Medical Complexity

PEDIATRICS ◽  
2018 ◽  
Vol 143 (1) ◽  
pp. e20173562 ◽  
Author(s):  
Sarah D. Ronis ◽  
Richard Grossberg ◽  
Rabon Allen ◽  
Andrew Hertz ◽  
Lawrence C. Kleinman
Keyword(s):  
Care Coordination ◽  
Children With Medical Complexity ◽  
Medical Complexity

scholarly journals Care coordination for children with medical complexity

2020 ◽  
Vol 45 (6) ◽  
pp. 11-17
Author(s):  
Rhonda Cady ◽  
Andrea Bushaw ◽  
Heidi Davis ◽  
Julie Mills ◽  
Deana Thomasson
Keyword(s):  
Care Coordination ◽  
Children With Medical Complexity ◽  
Medical Complexity

scholarly journals Capturing At-Home Health and Care Information for Children With Medical Complexity Using Voice Interactive Technologies: Multi-Stakeholder Viewpoint

10.2196/14202 ◽  
2020 ◽  
Vol 22 (2) ◽  
pp. e14202 ◽  
Author(s):  
Emre Sezgin ◽  
Garey Noritz ◽  
Alexander Elek ◽  
Kimberly Conkol ◽  
Steve Rust ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Care Coordination ◽  
Digital Health ◽  
Clinical Settings ◽  
Children With Medical Complexity ◽  
Home Setting ◽  
Medical Complexity ◽  
Care Information ◽  
At Home

Digital health tools and technologies are transforming health care and making significant impacts on how health and care information are collected, used, and shared to achieve best outcomes. As most of the efforts are still focused on clinical settings, the wealth of health information generated outside of clinical settings is not being fully tapped. This is especially true for children with medical complexity (CMC) and their families, as they frequently spend significant hours providing hands-on medical care within the home setting and coordinating activities among multiple providers and other caregivers. In this paper, a multidisciplinary team of stakeholders discusses the value of health information generated at home, how technology can enhance care coordination, and challenges of technology adoption from a patient-centered perspective. Voice interactive technology has been identified to have the potential to transform care coordination for CMC. This paper shares opinions on the promises, limitations, recommended approaches, and challenges of adopting voice technology in health care, especially for the targeted patient population of CMC.

scholarly journals Self-Management Characterization for Families of Children With Medical Complexity and Their Social Networks: Protocol for a Qualitative Assessment

10.2196/14810 ◽  
2020 ◽  
Vol 9 (1) ◽  
pp. e14810
Author(s):  
Rupa S Valdez ◽  
Christopher Lunsford ◽  
Jiwoon Bae ◽  
Lisa C Letzkus ◽  
Jessica Keim-Malpass
Keyword(s):  
Social Networks ◽  
Social Network ◽  
Data Collection ◽  
Care Coordination ◽  
Support Network ◽  
System Level ◽  
Qualitative Assessment ◽  
Self Management ◽  
Children With Medical Complexity ◽  
Medical Complexity

Background Children with medical complexity (CMC) present rewarding but complex challenges for the health care system. Transforming high-quality care practices for this population requires multiple stakeholders and development of innovative models of care. Importantly, care coordination requires significant self-management by families in home- and community-based settings. Self-management often requires that families of CMC rely on vast and diverse social networks, encompassing both online and offline social relationships with individuals and groups. The result is a support network surrounding the family to help accomplish self-management of medical tasks and care coordination. Objective The goal of this study is to use a theoretically driven perspective to systematically elucidate the range of self-management experiences across families of CMC embedded in diverse social networks and contextual environments. This approach will allow for characterization of the structure and process of self-management of CMC with respect to social networks, both in person and digitally. This research proposal aims to address the significant gaps in the self-management literature surrounding CMC, including the following: (1) how self-management responsibilities are distributed and negotiated among the social network and (2) how individual-, family-, and system-level factors influence self-management approaches for CMC from a theoretically driven perspective. Methods This study will encompass a qualitative descriptive approach to understand self-management practices among CMC and their social networks. Data collection and analysis will be guided by a theoretical and methodological framework, which synthesizes perspectives from nursing, human factors engineering, public health, and family counseling. Data collection will consist of semistructured interviews with children, parents, and social network members, inclusive of individuals such as friends, neighbors, and community members, as well as online communities and individuals. Data analysis will consist of a combination of inductive and deductive methods of qualitative content analysis, which will be analyzed at both individual and multiadic levels, where interview data from two or more individuals, focused on the same experience, will be comparatively analyzed. Results This study will take approximately 18 months to complete. Our long-term goals are to translate the qualitative analysis into (1) health IT design guidance for innovative approaches to self-management and (2) direct policy guidance for families of CMC enrolled in Medicaid and private insurance. Conclusions Multiple innovative components of this study will enable us to gain a comprehensive and nuanced understanding of the lived experience of self-management of CMC. In particular, by synthesizing and applying theoretical and methodological approaches from multiple disciplines, we plan to create novel informatics and policy solutions to support their care within home and community settings. International Registered Report Identifier (IRRID) PRR1-10.2196/14810

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