scholarly journals The iPROMOS protocol: a stepped-wedge study to implement routine patient-reported outcomes in a medical oncology outpatient setting

BMJ Open ◽  
2019 ◽  
Vol 9 (2) ◽  
pp. e027046 ◽  
Author(s):  
Natasha Anne Roberts ◽  
Alison Mudge ◽  
Kim Alexander ◽  
David Wyld ◽  
Monika Janda
Keyword(s):  
Medical Oncology ◽  
Complex Interventions ◽  
Patient Reported Outcome Measures ◽  
Routine Care ◽  
Patient Reported Outcome ◽  
Outpatient Setting ◽  
Stepped Wedge ◽  
Mortality And Morbidity ◽  
Human Research Ethics ◽  
Patient Reported

IntroductionPatient-reported outcome measures (PROMs) are data capture tools that collect information directly from patients. Several large research studies provide evidence that the use of PROMs in routine care provides benefits to mortality and morbidity outcomes in medical oncology patients. Despite this, implementation of PROMs in daily clinical routine is slow and challenging.Methods and analysisThis study will use a stepped-wedge design to assess the implementation of a PROM intervention in highly frequented medical oncology outpatient clinics. During a lead-in period of 4 weeks, control data will be collected. The intervention will then be implemented for 4 weeks in Clinic 1 initially, then in Clinic 2 for another 4 weeks. 500 patient encounters will be measured over the 12 weeks in total. The process of implementation will be informed and evaluated using the Medical Research Council Guidelines for Implementing Complex Interventions. The study will be guided by the Promoting Action Research in Health Services framework approach for implementation. The intervention and implementation outcomes will be measured using qualitative and quantitative data.Ethics and disseminationEthical approval has been obtained, approval number HREC/16/QRBW/100 by the Royal Brisbane and Women’s Hospital Human Research Ethics Committee. Results will be disseminated in peer-reviewed journals and at scientific meetings.Trial registrationACTRN12618000398202. Trial Status: Opened on 25 March 2018 and will continue until 12 months after the last PROMs reporting encounter.

scholarly journals P086 A NOVEL CALIBRATION ALGORITHM FOR COMPARISON ACROSS PATIENT REPORTED OUTCOMES (PROS) IN VENTRAL HERNIA

2021 ◽  
Vol 108 (Supplement_8) ◽  
Author(s):  
Viren Patel ◽  
Jesse Y. Hsu ◽  
Robyn Broach ◽  
Adrienne Christopher ◽  
Martin Morris ◽  
...  
Keyword(s):  
Ventral Hernia ◽  
Fixed Effects ◽  
Accurate Method ◽  
Patient Reported Outcome Measures ◽  
Routine Care ◽  
Patient Reported Outcome ◽  
Abdominal Hernia ◽  
Patient Reported ◽  
Related Quality ◽  
Calibration Algorithm

Abstract Aim While there are many patient-reported outcome measures (PROMs) used for ventral hernia (VH), disease-specific instruments, like the Hernia-related Quality-of-Life (QoL) Survey (HerQLes) and Abdominal Hernia-Q (AHQ), have greater accuracy in capturing broad VH-related QoL. We present a novel calibration that allows providers to convert scores between the AHQ and HerQLes, enabling unification of QoL data. Material and Methods VH patients were prospectively identified and simultaneously administered the AHQ and HerQLes pre-and post-operatively. To ensure validity of the calibration, responses were excluded if patients answered instruments on different dates or if responses were discordant on corresponding questions on each instrument. The calibration was estimated using a linear mixed-effects model, including linear and quadratic scores, timing of survey relative to surgery and their interactions as fixed effects, and patients as random effects to account for multiple surveys from the same patient. Results In total, 109 patients were included, responding to 300 pairs of surveys (112 pre-operative and 188 post-operative). Seventeen (5.6%) were statistically excluded due to discordant responses. Conversion of the HerQLes to AHQ was most accurate when including whether the survey was completed pre-or post-operatively, with a mean square error (MSE) of 0.0091. Similarly, converting the AHQ to HerQLes was most accurate when factoring in the timing of survey administration, with a MSE of 0.016. Conclusions We present a novel and accurate method to convert scores between the AHQ and HerQLes. Portability of PROMs will be crucial in efforts to more broadly integrate PROMs into routine care in VH.

Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns

2019 ◽  
Author(s):  
Alexa Riobueno-Naylor ◽  
Stephanie Romo ◽  
Lewis Kazis ◽  
Shirley Wang ◽  
Martha Lydon ◽  
...  
Keyword(s):  
Psychosocial Functioning ◽  
Surgical Care ◽  
Feedback System ◽  
Well Being ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Outpatient Setting ◽  
Burn Injuries ◽  
Burn Care ◽  
Patient Reported

Abstract The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.

scholarly journals Living Well with Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere

2021 ◽  
pp. 1-7
Author(s):  
Kamyar Kalantar-Zadeh ◽  
Philip Kam-Tao Li ◽  
Ekamol Tantisattamo ◽  
Latha Kumaraswami ◽  
Vassilios Liakopoulos ◽  
...  
Keyword(s):  
Kidney Disease ◽  
Quality Care ◽  
Patient Empowerment ◽  
Patient Reported Outcome Measures ◽  
Steering Committee ◽  
Routine Care ◽  
Patient Reported Outcome ◽  
Living Well ◽  
Care Partners ◽  
Patient Reported

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

scholarly journals Haematologists’ experiences implementing patient reported outcome measures (PROMs) in an outpatient clinic: a qualitative study for applied practice

2019 ◽  
Vol 3 (1) ◽  
Author(s):  
Stine Thestrup Hansen ◽  
Mette Kjerholt ◽  
Sarah Friis Christensen ◽  
Bibi Hølge-Hazelton ◽  
John Brodersen
Keyword(s):  
Outcome Measures ◽  
Qualitative Methodology ◽  
Symptom Burden ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Outpatient Setting ◽  
Specific Patient ◽  
Individual Interviews ◽  
Individualized Care ◽  
Patient Reported

Abstract Background The patient-doctor relationship is crucial to provide person-centred care, allowing the alleviation of symptom burden caused by disease or treatment. Implementing Patient Reported Outcome Measures (PROMs) is suggested to inform the decision-making process and lead to initiation of care. Yet there are knowledge gaps regarding how meaningful it is to incorporate PROMs in clinical settings. The aim of this study was to investigate haematologists’ experiences when PROMs were implemented in an outpatient setting. Methods Fourteen participant observations, 13 individual interviews and three in-depth interviews were conducted with haematologists, guided by the qualitative methodology Interpretive Description. Analysis was inspired by Habermas’ critical theoretical framework. Results The haematologists included were characterised by dichotomous experiences with PROMs, either resistant to or supporting their implementation. None were observed to elaborate on PROMs during consultations: instead, primary attention was spent discussing the hematological agenda dictated by the system. Conclusion The use of PROMs for individualized care was linked with extensive uncertainties and PROMs were not requested by the haematologists. To improve individualized care, other approaches may be more suitable. If PROMs are to be incorporated into future clinical practice, they should be tested tothe specific patient group and involve relevant users.

scholarly journals Living Well with Kidney Disease by Patient and Care-Partner Empowerment: Kidney Health for Everyone Everywhere

Nephron ◽  
2021 ◽  
pp. 1-7
Author(s):  
Kamyar Kalantar-Zadeh ◽  
Philip Kam-Tao Li ◽  
Ekamol Tantisattamo ◽  
Latha Kumaraswami ◽  
Vassilios Liakopoulos ◽  
...  
Keyword(s):  
Kidney Disease ◽  
Quality Care ◽  
Patient Empowerment ◽  
Patient Reported Outcome Measures ◽  
Steering Committee ◽  
Routine Care ◽  
Patient Reported Outcome ◽  
Living Well ◽  
Care Partners ◽  
Patient Reported

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

Patient Satisfaction with Collection of Patient-Reported Outcome Measures in Routine Care

2016 ◽  
Vol 34 (2) ◽  
pp. 452-465 ◽  
Author(s):  
Pablo F. Recinos ◽  
Cheryl J. Dunphy ◽  
Nicolas Thompson ◽  
Jesse Schuschu ◽  
John L. Urchek ◽  
...  
Keyword(s):  
Patient Satisfaction ◽  
Outcome Measures ◽  
Patient Reported Outcome Measures ◽  
Routine Care ◽  
Patient Reported Outcome ◽  
Patient Reported
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