scholarly journals Health-related quality of life in patients with non-communicable disease: study protocol of a cross-sectional survey

BMJ Open ◽  
2020 ◽  
Vol 10 (9) ◽  
pp. e037131
Author(s):  
Lisa Van Wilder ◽  
Els Clays ◽  
Brecht Devleesschauwer ◽  
Peter Pype ◽  
Pauline Boeckxstaens ◽  
...  

IntroductionNon-communicable diseases (NCDs) are associated with lower health-related quality of life (HRQoL). However, knowledge about those diseases and predictors with a greater impact on patients’ HRQoL as well as knowledge on the complex relationship between HRQoL and comorbidities is lacking. The aim of this study is to assess the impact of NCDs on patients’ HRQoL, with a focus on multimorbidity and socioeconomic status.Methods and analysisA primary care-based cross-sectional study is conducted in Flanders (Belgium). Study participants (≥18 years) are medically diagnosed with at least one of the following diseases: cardiometabolic disorders, mental disorders and musculoskeletal disorders. A minimum of 50 general practitioners will participate to recruit participants (convenient sample) and a total of 531 patients will be enrolled (voluntary response sample). Each participant will complete a paper-based questionnaire to gather research outcomes. Statistical analyses will be performed using multiple linear regression models with HRQoL as main outcome parameter, adjusted for possible confounders. This study will generate new evidence on the key predictors of HRQoL in patients with NCDs, and particularly provide new insights in multimorbidity to improve the quality of care in primary care, to support patients’ self-management and to allocate resources more effectively.Ethics and disseminationThe study has been approved by the Ethical Committee of Ghent University Hospital, Ghent, Belgium (reference number: B670201939629) prior to the beginning of the recruitment. Study results will be disseminated through peer-reviewed publications and conference presentations.

2017 ◽  
Vol 6 (1) ◽  
pp. 77-82 ◽  
Author(s):  
Shanti Chhetri ◽  
Muhammad Waseem Ullah Khan ◽  
Nazia Yazdanie

Background: Hypodontia is the developmental absence of one or more teeth from the dentition whereas acquired missing teeth are those lost due to carries, periodontal problem or dental trauma. Patients with congenitally missing teeth suffer aesthetic, functional and psychological morbidity to various degree through childhood, adolescence and adulthood. Greater understanding of the impact of hypodontia on patient’s quality of life is very important. Oral health related quality of life (OHRQoL) is considered as an outcome measure to evaluate the consequences of edentulism and the available treatment options.Material and Methods: A cross-sectional comparative survey was carried out in the department of Prosthodontics, de’Montmorency College of Dentistry/Punjab Dental Hospital Lahore from 02/03/2010 to 01/09/2010. Total 80 partially dentate patients were studied which included 40 hypodontia patients and 40 patients with acquired missing teeth. All patients were given OHIP-14 questionnaire and responses were recorded on 5-point Likert scale. The mean scores of the two groups were calculated and compared using chi square test.Results: The total OHIP scores in hypodontia patients was more compared to that in patients with acquired missing teeth and difference was significant in the patient group with 4-5 missing teeth.Conclusion: As the missing teeth number increased, it was found that the OHRQoL in hypodontia patients was more impaired compared to the OHRQoL in patients with acquired missing teeth. Journal of Nobel Medical CollegeVolume 6, Number 1, Issue 10 (January-June, 2017), Page: 77-82


2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Shinichi Noto ◽  
Masashi Miyazaki ◽  
Hidemi Takeuchi ◽  
Shinya Saito

Abstract Background Hemodialysis is a medical technology implemented for various renal diseases and has a significant budget impact in Japan. Hemodialysis also affects health-related quality of life, as it interferes with daily life, but the effect of diagnosis and duration of hemodialysis is not clear. The purpose of this study was to examine the impact of hemodialysis on health-related quality of life, with a focus on diagnosis and duration of hemodialysis. Methods We conducted EQ-5D-5L surveys among hemodialysis patients at a single hemodialysis hospital between November 2015 and September 2017 and used a scoring algorithm that was developed in Japan to calculate the scores. Results A total of 274 subjects without missing data were included in the data analysis. The mean score of the entire group was 0.772 ± 0.215. Compared with other domains, pain/discomfort had the highest percentage of problems (59.1%). There were no differences in the distributions with respect to diagnostic names in any domain. Multiple regression analysis showed that hemodialysis duration was the only explanatory variable that had a mild significant effect on EQ-5D-5L scores, but it was not large. Conclusions QOL measured using the EQ-5D-5L survey score was not affected by age, gender, or diagnosis but was affected by hemodialysis duration. Future studies are needed to investigate the impact of prolonged hemodialysis on health-related quality of life.


2018 ◽  
Vol 7 (1) ◽  
pp. 45-49
Author(s):  
Manish Pradhan ◽  
Chandra Bhal Jha ◽  
Dipa Rai

Background: Acne is a very common distressing skin condition that affects multiple aspects of quality of life of an individual. It has been illustrated that acne have tremendous effect on an individual’s self-image and impacts his or her quality of life. The extent of burden of the disease experienced by the patients seems to be underestimated by the whole medical fraternity. The aim of the study is to determine the health related quality of life impairment in acne patients using CADI and to identify various variables that increase the patients’ susceptibility for quality of life impairment. Subjects and Methods: This is a hospital based, cross sectional study conducted in the Department of Dermatology, Nobel Medical College Teaching Hospital from Jan 2017 to December 2017.A total of 202 acne patients were evaluated with CADI. Clinical characteristics were recorded after history and clinical examination. Results: Out of total 202 patients enrolled, 56.4% of patient scored a CADI score of (5-9) indicating moderate quality of life impairment and 15.3% of patient scored a CADI score of 10 or more indicating severe quality of life impairment. The mean CADI score was 6.82 ± 2.75. There was positive correlation between the CADI score and impact on quality of life with grade of acne, which was statistically significant (p<0.001). Conclusion: Acne is a common skin disease with tremendous adverse effect on the patient’s health related quality of life. Patients are affected both physically and mentally with this condition. Journal of Nobel Medical College Volume 7, Number 1, Issue 12, January-June 2018, Page: 45-49 


2015 ◽  
Vol 10 (1) ◽  
pp. 11-15 ◽  
Author(s):  
Antonella Gigantesco ◽  
Paolo D’Argenio ◽  
Vincenza Cofini ◽  
Cristiana Mancini ◽  
Valentina Minardi

AbstractObjectiveA recent article reported a reduction in the suicide rate in the inhabitants of L’Aquila (Italy) in 2009, when on the night of April 6, a devastating earthquake struck the city. The potential implications of the role of resilience in the aftermath of natural disasters, together with the limitations of existing evidence on this topic, suggest a need for more research. We aimed to retrospectively investigate the impact of the L’Aquila earthquake on a standardized self-reported measure of health-related quality of life (HRQoL).MethodsHRQoL data were collected through 2 separate cross-sectional surveys conducted during 2008 and 2010, before and after the earthquake that occurred in 2009, on 2 random samples of adults living in L’Aquila.ResultsThe data seemed to suggest no decrease in the inhabitants’ HRQoL level after the disaster, which may suggest the role of resilience in supporting survivors’ HRQoL. The findings were also consistent with previous observations of a reduction in the suicide rate in the same inhabitants after the earthquake.ConclusionsAfter a natural disaster, people likely activate personal resources and protective social factors that result in better subjective outcomes. (Disaster Med Public Health Preparedness. 2016;10:11-15)


2021 ◽  
Vol 8 ◽  
pp. 2333794X2110653
Author(s):  
Deepa Shaji Thomas ◽  
Divya K. Y. ◽  
Judie Arulappan

Introduction. Caregivers of children with chronic illness are at risk of having impairment in their quality of life (QOL). We systematically reviewed the available literature related to the Health Related Quality Of Life (HRQOL) of caregivers of children with Phenylketonuria (PKU). Methods. We comprehensively searched in electronic databases including Scopus, Science Direct, CINAHL, Medline, PubMed, Google scholar, and ProQuest. The search criteria included studies with samples more than one, children suffering from PKU, exploring parents or primary caregiver’s HRQOL, published from 2010 to 2020, full article available for download and published in English. Eight studies including 5 cross sectional studies, 1 open label trial, and 2 surveys were systematically reviewed. Results. Seven out of 8 studies have established a negative correlation between PKU and parent’s HRQOL in at least 1 of the domains. In one study, the HRQOL of parents is higher than their population norms. Conclusion. Most of the caregivers had poor to moderate HRQOL. More studies are required to explore HRQOL of caregivers of children with PKU using similar tools and outcome measures addressing all the domains of HRQOL in order to have more clarity on the impact of PKU on caregiver’s HRQOL. Interventional studies might help in improving the HRQOL of caregivers.


2011 ◽  
Vol 11 (3) ◽  
pp. 297-303 ◽  
Author(s):  
Dimitrios Tziallas ◽  
Catherine Kastanioti ◽  
Michael S Kostapanos ◽  
Petros Skapinakis ◽  
Moses S Elisaf ◽  
...  

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