scholarly journals Identifying research priorities in newborn medicine: a Delphi study of parents’ views

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e044836
Author(s):  
Abbey L Eeles ◽  
Alice C Burnett ◽  
Jeanie LY Cheong ◽  
Alex Aldis ◽  
Louise Pallot ◽  
...  

ObjectiveNeonatal conditions can have lifelong implications for the health and well-being of children and families. Traditionally, parents and patients have not been included in shaping the agenda for research and yet they are profoundly affected by the neonatal experience and its consequences. This study aimed to identify consensus research priorities among parents/patients of newborn medicine in Australia and New Zealand.DesignParents/patients with experience of neonatal care in Australia and New Zealand completed an online Delphi study to identify research priorities across four epochs (neonatal admission, early childhood, childhood/adolescence and adulthood). Parents/patients first generated key challenges in each of these epochs. Through inductive thematic analysis, recurring topics were identified and research questions generated. Parents/patients rated these questions in terms of priorities and a list of questions consistently rated as high priority was identified.Participants393 individuals participated, 388 parents whose children had received neonatal care and 5 adults who had received neonatal care themselves.ResultsMany research questions were identified as high-priority across the lifespan. These included how to best support parental mental health, relationships between parents and neonatal clinical staff (including involvement in care and communication), bonding and the parent–child relationship, improving neonatal medical care and addressing long-term impacts on child health and neurodevelopment.ConclusionsParents with experience of newborn medicine have strong, clear and recurring research priorities spanning neonatal care practices, psychological and other impacts on families, and impacts on child development. These findings should guide neonatal research efforts. In addition to generating new knowledge, improved translation of existing evidence to parents is also needed.

2017 ◽  
Vol 35 (1) ◽  
pp. 39-45 ◽  
Author(s):  
Heather Carol Deane ◽  
Catherine L Wilson ◽  
Franz E Babl ◽  
Stuart R Dalziel ◽  
John Alexander Cheek ◽  
...  

BackgroundThe Paediatric Research in Emergency Departments International Collaborative (PREDICT) performs multicentre research in Australia and New Zealand. Research priorities are difficult to determine, often relying on individual interests or prior work.ObjectiveTo identify the research priorities of paediatric emergency medicine (PEM) specialists working in Australia and New Zealand.MethodsOnline surveys were administered in a two-stage, modified Delphi study. Eligible participants were PEM specialists (consultants and senior advanced trainees in PEM from 14 PREDICT sites). Participants submitted up to 3 of their most important research questions (survey 1). Responses were collated and refined, then a shortlist of refined questions was returned to participants for prioritisation (survey 2). A further prioritisation exercise was carried out at a PREDICT meeting using the Hanlon Process of Prioritisation. This determined the priorities of active researchers in PEM including an emphasis on the feasibility of a research question.ResultsOne hundred and six of 254 (42%) eligible participants responded to survey 1 and 142/245 (58%) to survey 2. One hundred and sixty-eight (66%) took part in either or both surveys. Two hundred forty-six individual research questions were submitted in survey 1. Survey 2 established a prioritised list of 35 research questions. Priority topics from both the Delphi and Hanlon process included high flow oxygenation in intubation, fluid volume resuscitation in sepsis, imaging in cervical spine injury, intravenous therapy for asthma and vasopressor use in sepsis.ConclusionThis prioritisation process has established a list of research questions, which will inform multicentre PEM research in Australia and New Zealand. It has also emphasised the importance of the translation of new knowledge.


Author(s):  
Sarah McLachlan ◽  
Hilary Bungay

Abstract Background Consensus methods such as the Delphi technique have been used widely for research priority setting in health care. Within pre-hospital emergency medicine, such approaches have helped to establish national and international research priorities. However, in a dynamic field such as pre-hospital critical care, it is necessary to regularly review the continued relevance of findings. Further, considering the variability between pre-hospital critical care providers, it is also important to determine priorities at the local level. Essex & Herts Air Ambulance (EHAAT) sought to develop a five-year research strategy that aligns with their clinical work streams and organisational priorities. Methods All staff and Trustees were invited to participate in an online Delphi study with three Rounds. The Delphi was administered via email and Online Surveys software. The first Round invited participants to submit up to five research questions that they felt were of greatest importance to EHAAT  to advance the care provided to patients. In Round 2, participants were asked to rate the importance of questions from Round 1, while Round 3 required participants to rank questions that were prioritised in Round 2 in order of importance. Results 22 participants submitted a total of 86 research questions in Round 1, which were reduced to 69 questions following deduplication and refinement. 11 participants rated the importance of the questions in Round 2, resulting in 14 questions being taken forward to Round 3. Following the ranking exercise in Round 3, completed by 12 participants, a top five research priorities were identified. The question deemed most important was “How does a pre-hospital doctor-paramedic team affect the outcome of patients with severe head injuries?”. Conclusions The top five research priorities identified through the Delphi process will inform EHAAT’s research strategy. Findings suggest that there is still work to be done in addressing research priorities described in previous literature.


10.18060/1881 ◽  
2012 ◽  
Vol 13 (1) ◽  
pp. 51-66 ◽  
Author(s):  
Staci J. Jensen-Hart ◽  
Jeff Christensen ◽  
Lacey Dutka ◽  
J. Corey Leishman

Military families experience increased stress when facing issues of deployment, separation, and reunification. The increased stress impacts the parent-child relationship as well as child behavioral and emotional well-being. Although recognizing the resiliency of military families, research points to the need to monitor parental stress both pre- and post-deployment and highlights the inherent risks that separation and reunification pose for the parent-child relationship bond. This pilot study was designed to explore the effectiveness of the Child Parent Relationship Therapy (CPRT) Training Model as a proactive method of enhancing parent-child relationships, reducing parental stress, and preventing negative impact of military separations on children.


2021 ◽  
Author(s):  
Nickola Overall ◽  
Valerie Chang ◽  
Rachel S. T. Low ◽  
Annette M E Henderson ◽  
Caitlin McRae ◽  
...  

Are parents and families struggling with the ongoing demands of the pandemic, or are parents resilient and adjusted to the ‘new normal’? Assessing average risk versus resilience requires examining how parents and families have fared across the pandemic, beyond the initial months examined in prior investigations. The current research examines average levels of risk versus resilience in parents’ health and functioning over the first 1.5 years of the pandemic. Parents (N = 272) who had completed general assessments prior to the pandemic completed reassessments of psychological and physical health, couple and family functioning, and parenting within two lockdowns involving mandatory home confinement: at the beginning of the pandemic (26 March–28 April 2020) and 17 months later (18 August–21 September 2021). On average, parents exhibited declines in psychological and physical health (greater depressive symptoms; reduced well-being, energy and physical health) and in couple and family functioning (reduced commitment and family cohesion; greater problem severity and family chaos). By contrast, parent-child relationship quality and parenting practices were resilient with no average differences across the lockdowns. Declines in health and couple/family functioning generally occurred irrespective of pre-existing vulnerabilities (poor health and functioning prior to the pandemic) and external stress (reported impact of the pandemic). Partner support, however, tended to buffer declines in couple/family functioning. The results emphasize that attending to the challenges parents and couples face in the home will be important targets to mitigate the ongoing risks of the pandemic to parents’ and children’s well-being.


Religions ◽  
2019 ◽  
Vol 10 (3) ◽  
pp. 227
Author(s):  
Mark Ogletree ◽  
W. Dyer ◽  
Michael Goodman ◽  
Courtney Kinneard ◽  
Bradley McCormick

This study examines depression among Latter-day Saint teens, particularly how religiosity and the parent–child relationship are associated with depressive symptomology. Although there is an abundance of research on adolescent depression and on adolescent religiosity, there is less research addressing the connection between the two. The research questions include: Does religiosity among Latter-day Saint teens reduce their rates of depression? What aspects of religiosity affect depression most significantly? How does religious coping influence depression? How does the parent–child relationship affect depression rates among Latter-day Saint teens? Being a sexual minority and living in Utah were related to higher levels of depression. Greater depression was also associated with more anxiety and poorer physical health. Authoritative parenting by fathers was associated with lower depression for daughters but not sons. Finally, feeling abandoned by God was related to higher depression, while peer support at church was associated with lower depression.


2016 ◽  
Vol 39 (1) ◽  
pp. 209-229 ◽  
Author(s):  
Esther S. Chang

The current study is based on the responses of 153 married Korean mothers accompanying their youth in the United States or in New Zealand while their spouses remained in Korea. Kirogi means “wild geese” in Korean and has come to refer to split-family transnational living for the sake of children’s education. Spillover, or a positive correlation, between indicators assessing marital and parent–child relationship quality was tested within the transnational family context. It was also hypothesized that mother–child relationship quality and youth’s educational progress would be positively and uniquely predictive of indicators of maternal well-being when compared with marital quality due to education-focused Confucian values among Koreans. Results indicated positive correlations between indicators of marital and parent–child relationship quality; and only measures of marital quality had unique associations with maternal well-being.


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