scholarly journals Exploring dementia family carers’ self-initiated strategies in managing behavioural and psychological symptoms in dementia: a qualitative study

BMJ Open ◽  
2021 ◽  
Vol 11 (8) ◽  
pp. e048761
Author(s):  
Dara K Y Leung ◽  
Kayla K Y Wong ◽  
Aimee Spector ◽  
Gloria H Y Wong

ObjectivesCarer’s self-initiated management strategies of behavioural and psychological symptoms of dementia (BPSD) can inform intervention development. These strategies are affected by cultural values. Little is known about non-Western dementia carers’ BPSD management strategies. This study aimed to explore self-initiated strategies in managing BPSD adopted by Chinese carers.DesignQualitative study using thematic framework method.SettingCommunity setting in Hong Kong.Participants16 dementia carers with purposive sampling to include carers of different relationships to the people living with dementia (PLwD), education level and living arrangement.ResultsSix overarching themes emerged from the data: (1) maintaining personhood in PLwD, (2) responding positively to BPSD, (3) explanation and bargaining, (4) responding negatively to BPSD, (5) controlling upsetting thoughts, and (6) getting respite care. Chinese carers treasured warm and supportive family relationships. They identified and minimised triggers to alleviate BPSD. Some carers struggled with care tasks and reacted with confrontation and avoidance. Changing attitudes and getting social and emotional support were described to manage carers’ distress. Few self-care strategies including getting respite care were reported.ConclusionsCarers’ self-initiated strategies largely aligned with existing theoretical frameworks in BPSD management, such as person-centred approach, and echoed Asian culture, which advocates filial piety and supportive family relationships. While these cultural values encourage the engagement of people living with dementia in the normal process of family life, they may also prevent carers from taking time away from care. Interventions could support carers by enhancing their knowledge and skills in managing BPSD, providing social and emotional support, and providing guidance in self-care. Future cross-cultural research could explore factors contributing to how carers manage BPSD and how interventions could be culturally adapted to facilitate carers to apply learnt skills in daily practice and hence benefit the people living with dementia and carer population.

2020 ◽  
Vol 10 ◽  
pp. 384-393
Author(s):  
Carolina Pinazo

The behavioural and psychological symptoms of dementia are very predominant in the disease, aggravating the suffering of people with dementia and increasing the physical and emotional burden professional caregivers are exposed to. Despite being so present in nursing homes, professional caregivers do not always have adequate training or the tools needed to deal with these situations. Objectives: to determine what knowledge professional caregivers in residential centres have about behavioural and psychological symptoms of dementia; to evaluate how behavioural and psychological symptoms associated with dementia are managed by professional caregivers in residential centres; and to know the training needs perceived by professional caregivers in behavioural and psychological symptoms of dementia. Professionals (in the fields of psychology, nursing coordination and geriatric assistance) from residential centres for the elderly were interviewed and a qualitative analysis of the interviews was carried out. The results show that most professionals do not know the behavioural and psychological symptoms of dementia or how to cope with them and have low levels of knowledge. This study highlights the need to design and provide ongoing training in the residential setting on the management of these symptoms.


BMJ Open ◽  
2016 ◽  
Vol 6 (3) ◽  
pp. e010278 ◽  
Author(s):  
Ian D Maidment ◽  
Lydia Aston ◽  
Andrea Hilton ◽  
Naveed Iqbal ◽  
Anne Child ◽  
...  

Sains Insani ◽  
2018 ◽  
Vol 3 (1) ◽  
pp. 52-60
Author(s):  
Mohammad Zaini Yahaya ◽  
Muhammad Adib Samsudin ◽  
Mohd Izhar Ariff Mohd Kashim

In the study school of thought, an exposure to the context of across the time boundary known as "al-fiqh al-taqdiri" is a special feature in the formation of the Hanafi sect. It is also a feature shared by other sects including the Syafie sect. The authors chose the book of "Ghiyath al-Umam" by Imam al-Haramayn al-Juwayniyy (419H-478H) for this study as the book was loaded with elements across the time compared to his other books. This study is a qualitative study and the design is document analysis. The study of Ghiyath al-Umam's book shows how far Imam al-Haramayn's imagination that has not been reflected by most of the people at his time. But some have already happened now and some might happen in the future.Keywords: civilization, futuristics, Syafie sect ABSTRAK: pengajian sejarah mazhab kita biasa didedahkan bahawa fiqh merentasi sempadan masa yang dikenali sebagai “al-fiqh al-taqdiri” merupakan ciri istimewa dalam pembentukan mazhab Hanafi. Hakikatnya dengan berlalunya zaman ia turut menjadi ciri yang dikongsi bersama oleh mazhab-mazhab lain termasuk mazhab Syafie. Untuk melihat kebenaran teori ini penulis memilih kitab “Ghiyath al-Umam” karangan Imam al-Haramayn al-Juwayniyy (419H-478H). Imam al-Haramayn merupakan antara tokoh terawal yang tersohor dalam bidang fiqh syafie dan usul al-fiqh di samping bidang ilmu kalam. Karya-karya beliau dalam bidang fiqh mazhab Syafie dan usul al-fiqh aliran mutakallimin menjadi sumber utama dalam disiplin masing-masing. Pandangan-pandangan beliau sangat berautoriti dan dinukilkan oleh para ulama muhaqqiqun seperti Imam al-Nawawiyy dalam fiqh Syafie dan Fakhr al-Din al-Raziyy dalam bidang usul al-fiqh. Justeru beliau ialah tokoh yang sangat bersesuaian untuk tujuan kajian ini. Kitab Ghiyath al-Umam dijadikan fokus kajian memandangkan kitab ini sarat dengan elemen merentasi masa berbanding kitab-kitab beliau yang lain. Kajian ini merupakan kajian kualitatif dan reka bentuknya adalah analisis dokumen. Kajian terhadap kitab Ghiyath al-Umam dapat menunjukkan betapa jauhnya imiginasi Imam al-Haramayn yang tidak tergambar oleh sebahagian besar manusia ketika itu. Namun sebahagiannya sudah pun berlaku pada masa ini dan sebahagiannya mungkin akan berlaku pada masa akan datang.Kata Kunci: peradaban, futuristik, fiqh mazhab Syafie


Author(s):  
Susan E. Whyman

A newly discovered autobiographical manuscript is used to reconstruct Hutton’s early life in Derby and Nottingham. Of the data in his ‘Memorandums from Memory all Trifles and, of Ancient Date’, 70 per cent was not included in his published Life. This chapter analyses the people, places, and subjects found in this manuscript. Hutton’s earliest memories reveal his hardships as a child labourer in a Derby silk mill and an apprentice stockinger in Nottingham. We observe the strategies he used to find a pathway out of poverty, and the details of his self-education. The importance of family relationships, social networks, and urban marketplaces were common factors shared by entrepreneurs in the Industrial Revolution. How Hutton prepared to become a bookseller is also revealed.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S235-S235
Author(s):  
Jooyoung Kong ◽  
Yin Liu ◽  
David Almeida

Abstract Extensive evidence suggests that adverse childhood experiences (ACEs) can lead to negative health effects across a lifetime. This study examines the impact of ACEs on the frequency of providing daily support (i.e., unpaid assistance, emotional support, and disability-related assistance) to family members and the moderating effects of ACEs in the association between providing daily support to family and daily negative affect. Using the National Study of Daily Experiences II, we analyzed a total of 14,912 daily interviews from 2,022 respondents aged 56 on average. Key results showed that a greater number of ACEs were associated with providing more frequent emotional support to family. We also found the significant interaction effect that adults with more ACEs showed greater negative affect on the days when they provided assistance to family members with disabilities. The findings underscore the long-term negative impact of ACEs on daily well-being in the context of family relationships.


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