scholarly journals Development and application of a chronic kidney disease-specific health literacy, knowledge and disease awareness assessment tool for patients with chronic kidney disease in Taiwan

BMJ Open ◽  
2021 ◽  
Vol 11 (10) ◽  
pp. e052597
Author(s):  
Chung-Jen Wei ◽  
Chung-Liang Shih ◽  
Yu-Juei Hsu ◽  
Yin-Cheng Chen ◽  
Jue-Zong Yeh ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Educational Attainment ◽  
Assessment Tool ◽  
Reliability And Validity ◽  
Specific Knowledge ◽  
Disease Awareness ◽  
Disease Specific ◽  
Specific Health

ObjectivesThis study aims to develop an assessment tool for health literacy and knowledge specific to chronic kidney disease (CKD) for use in examining the associations between health literacy, disease-specific knowledge and disease awareness among patients with CKD in Taiwan.DesignAn assessment tool in Mandarin and Taiwanese was developed based on patient input, panel discussions with experts and a literature review, and checked for validity and reliability in a pilot test. Formal data were collected through population-based sampling with a set quota according to region and hospital accreditation level. Cross-sectional data were collected to confirm the reliability and validity of the assessment tool. Levels of health literacy, disease knowledge, and disease awareness were then reported and analysed.SettingSample hospitals included 10 medical centres, 18 regional hospitals and 15 local hospitals in Taiwan. Researchers were granted Internal Review Board approval and obtained agreement to collect data in all study settings.ParticipantsPatients at least 20 years old who had been diagnosed with CKD of any stage were eligible to participate. The formal assessment collected 1155 valid questionnaires, yielding an 87.3% response rate. The mean age of participants was 67.48 years (SD=12.87, range 22–98), while 484 (41.95%) were female and 78% were aware they had CKD.ResultsThe self-devised instrument proved to have excellent reliability and validity. Use of the instrument in the main study showed that CKD-specific health literacy was significantly associated with age (β=−0.33, p<0.00), educational attainment and disease awareness (β=0.13, p<0.00). CKD-specific knowledge was also significantly associated with age (β=−0.18, p<0.00), educational attainment and disease awareness (β=0.19, p<0.00).ConclusionsThis CKD-specific health literacy and knowledge assessment tool developed for Mandarin and Taiwanese-speaking patients is reliable and well validated. Patients with CKD who are aware of and understand their disease performed better in the assessment.

scholarly journals Health Literacy Not Associated with Chronic Kidney Disease Awareness

2017 ◽  
Vol 1 (3) ◽  
pp. e117-e127
Author(s):  
Milda R. Saunders ◽  
Ashley Snyder ◽  
Marshall H. Chin ◽  
David O. Meltzer ◽  
Vineet M. Arora ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Disease Awareness

scholarly journals Reliability and validity of the Persian version of 5-D itching scale among patients with chronic kidney disease

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Amin Kordi Yoosefinejad ◽  
Fatemeh Karjalian ◽  
Marzieh Momennasab ◽  
Shahrokh Ezzatzadegan Jahromi
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Psychometric Properties ◽  
Internal Consistency ◽  
Reliability And Validity ◽  
Hemodialysis Patients ◽  
Life Questionnaire ◽  
Retest Reliability ◽  
Persian Version ◽  
Test Retest Reliability

Abstract Background Hemodialysis is considered a major therapeutic method for patients with chronic kidney disease. Pruritus is a common complaint of hemodialysis patients. The 5-D pruritus scale is amongst the most common tools to evaluate several dimensions of itch. Psychometric properties of the 5-D scale have not been evaluated in Persian speaking population with hemodialysis; hence, the objective of this study was to assess reliability and validity of the Persian version of the scale. Methods Ninety hemodialysis patients (men: 50, women: 40, mean age: 54.4 years) participated in this cross-sectional study. The final Persian version of 5-D scale was given to the participants. Tests Compared: One-third of the participants completed the scale twice within 3–7 days apart to evaluate test- retest reliability. Other psychometric properties including internal consistency, absolute reliability, convergent, discriminative and construct validity, floor/ceiling effects were also evaluated. Results The Persian 5-D scale has strong test-retest reliability (ICC= 0.98) and internal consistency (Cronbach’s alpha= 0.99). Standard error of measurement and minimal detectable change were 0.33 and 0.91, respectively. Regarding convergent validity, the scale had moderate correlation with numeric rating scale (r =0.67) and quality of life questionnaire related to itch (r = 0.59). Exploratory factor analysis revealed two factors within the scale. No floor or ceiling effect was found for the scale. Conclusion The Persian version of 5-D the itching scale is a brief instrument with acceptable reliability and validity. Therefore, the scale could be used by experts, nurses, and other health service providers to evaluate pruritus among Persian speaking hemodialysis patients.

scholarly journals A Linguistic Analysis of Health Literacy Demands of Chronic Kidney Disease Patient Education Materials

2018 ◽  
Vol 2 (1) ◽  
pp. e1-e14
Author(s):  
Suzanne Morony ◽  
Angela C. Webster ◽  
Rachelle Buchbinder ◽  
Suzanne Kirkendall ◽  
Kirsten J. McCaffery ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Patient Education ◽  
Kidney Disease ◽  
Chronic Kidney Disease Patient ◽  
Disease Patient ◽  
Linguistic Analysis

Community-Partnered Approaches to Enhance Chronic Kidney Disease Awareness, Prevention, and Early Intervention

2008 ◽  
Vol 15 (2) ◽  
pp. 153-161 ◽  
Author(s):  
Roberto B. Vargas ◽  
Loretta Jones ◽  
Chrystene Terry ◽  
Suzanne B. Nicholas ◽  
Joel Kopple ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Early Intervention ◽  
Kidney Disease ◽  
Disease Awareness

scholarly journals Exploring health literacy in patients with chronic kidney disease: a qualitative study

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Une Elisabeth Stømer ◽  
Astrid Klopstad Wahl ◽  
Lasse Gunnar Gøransson ◽  
Kristin Hjorthaug Urstad
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Qualitative Study

scholarly journals Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Esmaeel Toni ◽  
Habibollah Pirnejad ◽  
Khadijeh Makhdoomi ◽  
Azam Mivefroshan ◽  
Zahra Niazkhani
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Personal Health Record ◽  
Self Management ◽  
Personal Health ◽  
Health Record ◽  
User Centered Design ◽  
Electronic Personal Health Record

Abstract Background To improve chronic disease outcomes, self-management is an effective strategy. An electronic personal health record (ePHR) is a promising tool with the potential to support chronic patient’s education, counseling, and self-management. Fitting ePHRs within the daily practices of chronic care providers and chronic patients requires user-centered design approaches. We aimed to understand users’ needs and requirements in chronic kidney disease (CKD) care to consider in the design of an ePHR to facilitate its implementation, adoption, and use. Methods A qualitative study was conducted in a major Iranian nephrology center including inpatient and outpatient settings in 2019. We conducted 28 semi-structured interviews with CKD patients, nurses, and adult nephrologists. To confirm or modify the requirements extracted from the interviews, a focus group was also held. Data were analyzed to extract especially those requirements that can facilitate implementation, adoption, and sustained use based on the PHR adoption model and the unified theory of acceptance and use of technology. Results Participants requested an ePHR that provides access to up to date patient information, facilitates patient-provider communication, and increases awareness about patient individualized conditions. Participants expected a system that is able to cater to low patient e-health literacy and high provider workload. They requested the ePHR to include purposeful documentation of medical history, diagnostic and therapeutic procedures, tailored educational content, and scheduled care reminders. Messaging function, tailored educational content to individual patients’ conditions, and controlled access to information were highly valued in order to facilitate its implementation, adoption, and use. Conclusions We focused on the ePHR’s content and functionalities in the face of facilitators and/or barriers envisioned for its adoption in nephrology care. Designers and implementers should value CKD patients’ needs and requirements for self-management such as providing personalized education and counseling (on the basis of their condition and risk factors), health literacy, and disease progression levels. The socio-technical aspects of care also need further attention to facilitate ePHR’s adoption.

Chronic kidney disease awareness, screening and prevention: Rationale for the design of a public education program

Nephrology ◽  
2010 ◽  
Vol 15 ◽  
pp. 37-42 ◽  
Author(s):  
ALLAN J COLLINS ◽  
DAVID T GILBERTSON ◽  
JON J SNYDER ◽  
SHU-CHENG CHEN ◽  
ROBERT N FOLEY
Keyword(s):  
Chronic Kidney Disease ◽  
Public Education ◽  
Kidney Disease ◽  
Education Program ◽  
Disease Awareness ◽  
Screening And Prevention

scholarly journals Disease-specific health literacy, disease knowledge, and adherence behavior among patients with type 2 diabetes in Taiwan

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
Jue-Zong Yeh ◽  
Chung-jen Wei ◽  
Shuen-fu Weng ◽  
Cheng-yu Tsai ◽  
Jia-hui Shih ◽  
...  
Keyword(s):  
Type 2 Diabetes ◽  
Health Literacy ◽  
Adherence Behavior ◽  
Disease Knowledge ◽  
Disease Specific ◽  
Specific Health

scholarly journals The association of genetic factors, educational attainment, and their interaction, with kidney function outcomes

2020 ◽  
Author(s):  
Chris H L Thio ◽  
Sander K R van Zon ◽  
Peter J van der Most ◽  
Harold Snieder ◽  
Ute Bültmann ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Educational Attainment ◽  
Kidney Function ◽  
Genetic Risk ◽  
Ordinary Least Squares ◽  
Environment Interaction ◽  
Genetic Score ◽  
Interaction Term ◽  
Egfr Decline

Abstract Both genetic predisposition and low educational attainment (EA) are associated with higher risk of chronic kidney disease. We examined the interaction of EA and genetic risk in kidney function outcomes. We included 3,597 participants from the Prevention of REnal and Vascular ENd stage Disease Cohort Study, a longitudinal study in a community-based sample from Groningen, the Netherlands (median follow-up 11 years, 1997-2012). Kidney function was approximated by estimating glomerular filtration rate (eGFR) from serum creatinine and cystatin C. Individual longitudinal linear eGFR trajectories were derived from linear mixed models. Genotype data on 63 single nucleotide polymorphisms, with known associations to eGFR, were used to calculate an allele-weighted genetic score (WGS). EA was categorized into high, medium, and low. In ordinary least squares analysis, higher WGS and lower EA showed additive effects on reduced baseline eGFR; the interaction term was non-significant. In analysis of eGFR decline, the significant interaction term suggested amplification of genetic risk by low EA. Adjustment for known renal risk factors did not affect our results. This study presents the first evidence of gene-environment interaction between EA and a WGS on eGFR decline, and provides population-level insights into the mechanisms underlying socioeconomic disparities in chronic kidney disease.

Sign in / Sign up

Export Citation Format

Share Document