scholarly journals 256 Exploring the perceived impact of the chronic disease self-management program on self-management behaviors among african american women with lupus: a qualitative study

2019 ◽  
Author(s):  
Abena Twumasi ◽  
Anna Shao ◽  
Charmayne Dunlop-Thomas ◽  
Hannah Cooper ◽  
Cristina Drenkard
Keyword(s):  
African American ◽  
Chronic Disease ◽  
Qualitative Study ◽  
African American Women ◽  
Management Program ◽  
Self Management ◽  
American Women ◽  
Perceived Impact ◽  
Management Behaviors

scholarly journals My life with lupus: contextual responses of African-American women with systemic lupus participating in a peer mentoring intervention to improve disease self-management

BMJ Open ◽  
2018 ◽  
Vol 8 (11) ◽  
pp. e022701 ◽  
Author(s):  
Trevor D Faith ◽  
Minnjuan Flournoy-Floyd ◽  
Kasim Ortiz ◽  
Leonard E Egede ◽  
Jim C Oates ◽  
...  
Keyword(s):  
African American ◽  
Qualitative Study ◽  
African American Women ◽  
Lupus Erythematosus ◽  
Peer Mentoring ◽  
Self Management ◽  
Systemic Lupus ◽  
American Women ◽  
Disease Experience ◽  
The Impact

ObjectiveThe current article seeks to examine the ways in which African-American women with systemic lupus erythematosus (SLE) describe their disease experience and how they cope with their disease. This qualitative study provides deeper insight into whether experiences of African-American women with SLE differ from previous qualitative study findings.MethodsQualitative data were gathered using interviews and a focus group, from participants in the Peer Approaches to Lupus Self-management (PALS) programme. Data were analysed for themes related to disease experience and how participants cope with their disease. Twenty-seven African-American women with SLE were recruited into the peer mentoring programme, of which 7 served as mentors and 20 served as mentees. A 12-week peer mentoring intervention delivered by phone and based on the Chronic Disease Self-Management and Arthritis Self-Management Programs.ResultsThree categories encompassing a total of 10 subcategories emerged from analyses: (A) interpersonal, familialandromantic relationships; (B) individual experiences of living with SLE; and (C) physician–patient relationships.ConclusionWe gained insight on several issues related to patient perspectives of African-American women with SLE, and the context surrounding their thoughts and feelings related to lupus, including their providers, families and other social support networks. Additional research efforts could explore and address the thematic domains and respective subthemes identified here. Although limited due to the preliminary nature of the study, this information can be used to create future evidence-based interventions to decrease the impact of SLE on African-American patients.

scholarly journals Self-management of multiple chronic conditions among African American women with asthma: a qualitative study

2013 ◽  
Vol 51 (3) ◽  
pp. 243-252 ◽  
Author(s):  
Mary R. Janevic ◽  
Katrina R. Ellis ◽  
Georgiana M. Sanders ◽  
Belinda W. Nelson ◽  
Noreen M. Clark
Keyword(s):  
African American ◽  
Qualitative Study ◽  
African American Women ◽  
Chronic Conditions ◽  
Self Management ◽  
Multiple Chronic Conditions ◽  
American Women

Novel Interventions for HIV Self-management in African American Women: A Systematic Review of mHealth Interventions

2015 ◽  
Vol 26 (2) ◽  
pp. 139-150 ◽  
Author(s):  
Kimberly Adams Tufts ◽  
Kaprea F. Johnson ◽  
Jewel Goodman Shepherd ◽  
Ju-Young Lee ◽  
Muna S. Bait Ajzoon ◽  
...  
Keyword(s):  
Systematic Review ◽  
African American ◽  
African American Women ◽  
Self Management ◽  
American Women

scholarly journals Social support and diabetes self-management behavior among Caribbean, Caribbean American, and African American women: A descriptive correlation study

2017 ◽  
Vol 05 (01) ◽  
pp. 016-024 ◽  
Author(s):  
Idethia Harvey ◽  
Ledric Sherman ◽  
Erica Spears ◽  
Chanee Ford ◽  
Helena Green
Keyword(s):  
Social Support ◽  
African American ◽  
African American Women ◽  
The United States ◽  
Demographic Characteristics ◽  
Self Management ◽  
Foot Care ◽  
Caribbean Women ◽  
Management Behaviors ◽  
Care Procedure

Abstract Background: Type-2 diabetes (T2D) is one of the most prevalent chronic and noncommunicable conditions both domestically and globally. The objective of this descriptive study was to examine how perceived social support impacted self-care management behavior among female African American and Caribbean populations. Materials and Methods: The cross-sectional study recruited 42 African American and Caribbean women diagnosed with T2D (M = 69.1, SD = 12.0). Univariate and bivariate analyses were conducted to explore the relationship between (1) demographic characteristics, (2) desired and received social support variables, and (3) self-management behaviors. Results: Caribbean women residing in the United States were more likely to follow general diet (M = 5.38, SD = 1.43) and to engage in physical activity (M = 4.31, SD = 2.39), whereas African American women were more likely to follow a specific diabetes diet (M = 3.79, SD = 1.60) and to monitor their glucose (M = 5.70, SD = 1.75). Caribbean women living in the United States Virgin Islands were more likely to follow recommended foot care procedure (M = 4.65, SD = 1.36). A negative correlation occurred between female participants exercising and the desired support in exercising. Women who reported that they desired more support with physical activity exercised less (r s= −0.34; P = 0.04). No relationship was found between foot care procedure and demographic characteristics or social support variables (i.e. desired or received). Conclusion: This study suggests directions for future studies that would examine the dynamics of social support and T2D self-management behaviors, and this study might be relevant to other Caribbean and African American communities with T2D both in North America and the Caribbean.

scholarly journals Overcoming barriers to recruitment and retention of African–American women with SLE in behavioural interventions: lessons learnt from the WELL study

2020 ◽  
Vol 7 (1) ◽  
pp. e000391
Author(s):  
Cristina Drenkard ◽  
Kirk Easley ◽  
Gaobin Bao ◽  
Charmayne Dunlop-Thomas ◽  
S Sam Lim ◽  
...  
Keyword(s):  
African American ◽  
African American Women ◽  
Research Team ◽  
Performance Standards ◽  
Self Management ◽  
Close Monitoring ◽  
Culturally Competent ◽  
Behavioural Interventions ◽  
American Women ◽  
Recruitment And Retention

BackgroundAfrican–Americans are historically under-represented in SLE studies and engaging them in behavioural interventions is challenging. The Women Empowered to Live with Lupus (WELL) study is a trial conducted to examine the effectiveness of the Chronic Disease Self-Management Program (CDSMP) among African–American women with SLE. We describe enrolment and retention challenges and successful strategies of the WELL study.MethodsThe Georgians Organized Against Lupus (GOAL) cohort, a population-based cohort established in Atlanta, Georgia, was used to enrol a sample of 168 African–American women with SLE into the CDSMP. The CDSMP is a 6-week, group-based programme led by peers to enhance self-management skills in people with chronic conditions. Study performance standards were predefined and close monitoring of recruitment and retention progress was conducted by culturally competent staff members. Continuous contact with participants, research coordinators’ notes and regular research team meetings served to assess barriers and define strategies needed to meet the desired recruitment and retention outcomes.ResultsWhile no substantial barriers were identified to enrol GOAL participants into the WELL study, WELL participants faced difficulties registering for and/or completing (attending ≥4 sessions) a CDSMP workshop. Major barriers were unpredicted personal and health-related issues, misunderstanding of the scope and benefits of the intervention, and transportation problems. Early implementation of tailored strategies (eg, CDSMP scheduled on Saturdays, CDSMP delivered at convenient/familiar facilities, transportation services) helped to reduce participant barriers and achieve a CDSMP registration of 168 participants, with 126 (75%) completers. Frequent contact with participants and compensation helped to reach 92.3% retention for the 6-month survey.ConclusionsPredefined standards and monitoring of participant barriers by a culturally competent research team and proactive solutions were critical to implementing successful strategies and achieving the desired recruitment and retention outcomes of a behavioural trial involving African–American women with SLE.Trial registration numberNCT02988661.

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