Taking Care of Our Own: When Family Caregivers Do Medical Work

2021 ◽  
Vol 51 (1) ◽  
pp. 60-62
Author(s):  
Sarah E. Patterson
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Fatemeh Darban ◽  
Roghayeh Mehdipour- Rabori ◽  
Jamileh Farokhzadian ◽  
Esmat Nouhi ◽  
Sakineh Sabzevari

Abstract Background The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of family caregivers. Such changes may directly affect the family performance and the patient’s recovery stage. Present study aimed to explain the positive experiences reported by family caregivers of patients with schizophrenia. Methods The present study is a qualitative study of content analysis. Data were collected using semi-structured and in-depth interviews with 15 family caregivers of patients with schizophrenia referring to one of the psychiatric hospitals in Zahedan, Southeast part of Iran. Purposive sampling method was applied and data analysis was conducted using conventional content analysis proposed by Graneheim and Lundman. Results Data analysis created a theme entitled “family achievements in struggling with schizophrenia”. This theme included four categories including Developing positive personality traits in family members, Strengthening family ties, developing insight into the life, and social mobility. Conclusions The results provided insights that the experience of taking care of patients with schizophrenia led to positive consequences for family caregivers. Thus, it is recommended that psychiatrists or consultants help families rely on positive experiences and share these experiences with families with a newly-suffered patient.


2020 ◽  
Author(s):  
fatemeh darban ◽  
Roghayeh Mehdipour_Rabori ◽  
Jamileh Farokhzadian ◽  
Esmat Nouhi ◽  
Sakineh Sabzevari

Abstract Background: The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of family caregivers. Such changes may directly affect the family performance and the patient's recovery stage. Present study aimed to explain the positive experiences reported by family caregivers of patients with schizophrenia.Methods: The present study is a qualitative study of content analysis. Data were collected using semi-structured and in-depth interviews with 15 family caregivers of patients with schizophrenia referring to one of the psychiatric hospitals in Zahedan, Southeast part of Iran. Purposive sampling method was applied and data analysis was conducted using conventional content analysis proposed by Graneheim and Lundman. Results: Data analysis created a theme entitled “family achievements in struggling with schizophrenia”. This theme included four categories including Developing positive personality traits in family members, Strengthening family ties, developing insight into the life, and social mobility.Conclusions: The results provided insights that the experience of taking care of patients with schizophrenia led to positive consequences for family caregivers. Thus, it is recommended that psychiatrists or consultants help families rely on positive experiences and share these experiences with families with a newly-suffered patient.


2011 ◽  
Vol 28 (8) ◽  
pp. 564-568 ◽  
Author(s):  
Jaime R. Boquet ◽  
Debra Parker Oliver ◽  
Elaine Wittenberg-Lyles ◽  
Ardith Z. Doorenbos ◽  
George Demiris

This study aims to provide insight into the role of grandchildren as informal hospice caregivers. It presents 4 cases that highlight the challenges and perceptions of grandchildren who care for a grandparent at the end of life. A researcher met regularly with family caregivers to discuss the problems or challenges during hospice caregiving. Although each caregiver presented unique individual experiences, several themes are common among the family caregivers including fatigue, stress, guilt, and loss of the “grandchild” identity. Grandchildren caregivers often take care of 3 generations (grandparents, parents, and children) and in many cases need additional assistance to help them overcome the challenges associated with managing a household, career, family, and caregiving roles.


Author(s):  
Shika Card ◽  
Huali Wang

This chapter takes an anthropological perspective to examine how different modes of communication play a crucial role in caregiving for a person with Alzheimer's disease (AD) in the context of modern-day China and to rethink the predominant perception of AD as a condition of degeneration, loss, and disability. This chapter is based on 10 weeks of ethnographic fieldwork research in Beijing, including 13 interviews with clinicians and family caregivers, as well as observational data gathered in diverse therapeutic settings. Putting into question the common impulse to listen primarily for the semantic qualities of speech, the authors argue that alternative and experimental forms of communication make possible a different interactive space between people with AD and their caregivers. This research proposes the notion of play as a particular mode of communication that can enact new and transformative practices of care and, as a result, reconfigure and reaffirm relationships of care.


2012 ◽  
Vol 26 (1) ◽  
Author(s):  
Kamila Faleńczyk ◽  
Agnieszka Pluta ◽  
Wiesława Kujawa ◽  
Halina Basińska ◽  
Maria Budnik-Szymoniuk ◽  
...  

2021 ◽  
Author(s):  
Fatemeh Darban ◽  
Roghayeh Mehdipour_Rabori ◽  
Jamileh Farokhzadian ◽  
Esmat Nouhi ◽  
Sakineh Sabzevari

Abstract Background: The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of family caregivers. Such changes may directly affect the family performance and the patient's recovery stage. Present study aimed to explain the positive experiences reported by family caregivers of patients with schizophrenia.Methods: The present study is a qualitative study of content analysis. Data were collected using semi-structured and in-depth interviews with 15 family caregivers of patients with schizophrenia referring to one of the psychiatric hospitals in Zahedan, Southeast part of Iran. Purposive sampling method was applied and data analysis was conducted using conventional content analysis proposed by Graneheim and Lundman. Results: Data analysis created a theme entitled “family achievements in struggling with schizophrenia”. This theme included four categories including Developing positive personality traits in family members, Strengthening family ties, developing insight into the life, and social mobility.Conclusions: The results provided insights that the experience of taking care of patients with schizophrenia led to positive consequences for family caregivers. Thus, it is recommended that psychiatrists or consultants help families rely on positive experiences and share these experiences with families with a newly-suffered patient.


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